“Same same or different?” A review of reviews of person-centered and patient-centered care

Eklund, Jakob Håkansson; Holmström, Inger; Kumlin, Tomas; Kaminsky, Elenor; Skoglund, Karin; Höglander, Jessica; Sundler, Annelie Johansson; Condén, Emelie; Meranius, Martina Summer

doi:10.1016/j.pec.2018.08.029

Cited by 482 publications

(502 citation statements)

References 41 publications

Supporting

Mentioning

436

Contrasting

Unclassified

Order By: Relevance

“…Thus, for example, engaging in a mutual dialogue is not only a route to shared decision making and self‐care, but constitutes participation in itself . Further, effective collaboration and exchange of information can create mutual understanding between HCPs and patients, promoting patient participation suitable for dialysis care.…”

Section: Discussionmentioning

confidence: 99%

“…They also share their gained knowledge and experiences with staff and fellow patients, thereby participating in and influencing their own care. Consequently, HCPs in dialysis care who recognize the individual's experience and priorities facilitate not only the patient's active involvement in their care, but also the defining of participation according to their own preferences.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Patient participation in dialysis care—A qualitative study of patients’ and health professionals’ perspectives

Årestedt

Martinsson

Hjelm

et al. 2019

Health Expectations

View full text Add to dashboard Cite

Background and objective End‐stage renal disease (ESRD) affects a multitude of aspects in the patient's daily life, often entailing their own involvement in various aspects of the treatment. Although patient participation is a core health‐care value, what the concept signifies is not yet fully known. The purpose of this paper is to conceptualize patient participation in dialysis care, depicting patients’ and health‐care professionals’ perspectives. Design This explorative study employed qualitative interviews and content analysis. Setting and participants Seven focus group discussions engaging 42 key informants were performed, including patients, staff and managers with experience of dialysis care. Results In dialysis care, patient participation connotes a sharing of information and knowledge, the learning of and planning of care, including partaking in shared decisions with regards to treatment and management, and being involved in the management of one's own health‐care treatment and/or self‐care activities. Although these attributes were illustrated by all stakeholders, their significance varied: patients suggested that their preferences regarding primary aspects of participation vary, while staff considered patients’ performance of dialysis to be the ultimate form of participation. Further, while patients considered multiple ways to execute participation, staff suggested that aspects such as sharing information were a route to, rather than actual, involvement. Conclusions Without a common understanding to denote the idea of patient participation, staff and patients are exposed to a potential deficit in terms of facilitating patient participation in everyday encounters of dialysis treatment. Further studies and means to serve a mutual understanding are needed.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Patient participation in dialysis care—A qualitative study of patients’ and health professionals’ perspectives

Årestedt

Martinsson

Hjelm

et al. 2019

Health Expectations

View full text Add to dashboard Cite

show abstract

“…These practices re ect an individualised approach to managing patient agitation -as described by the nurses -and a willingness to engage patients to facilitate shared decision making over their care. Both of these processes are central to the delivery of effective person-centred care [17,30].…”

Section: Discussionmentioning

confidence: 99%

Recognition and Management of Agitation in Acute Mental Health Services: A Qualitative Evaluation of Staff Perceptions

Tucker¹,

Whitehead

Palamara

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: Agitation among patients is a common and distressing behaviour across a variety of health care settings, particularly inpatient mental health. Unless recognised early and effectively managed it can lead to aggression and personal injury. The aim of this paper is to explore the experiences of mental health nurses in recognising and managing agitation in an inpatient mental health setting and the alignment of these experiences with best practice and person-centred care. Methods: This study used a qualitative cross-sectional descriptive methodology. Semi-structured focus group interviews were conducted with twenty-one nurses working in a mental health unit in 2018. Nursing staff described their experiences of assessing and managing agitation. Descriptive and Thematic Analysis were undertaken of the transcribed focus group dialogue. Results: Nurses combined their clinical knowledge, assessment protocols and training with information from patients to make an individualised assessment of agitation. Nurses also adopted an individualised approach to management by engaging patients in decisions about their care. In keeping with best practice recommendations, de-escalation strategies were the first choice option for management, though nurses also described using both coercive restraint and medication under certain circumstances. From the perspective of patient-centred care, the care provided aligned with elements of person-centred care nursing care.Conclusion: The findings suggest that clinical mental health nurses assess and manage agitation, with certain exceptions, in line with best practice and a person-centred care nursing framework.

show abstract

“…In the present study, continuity of care was emphasised as being linked to the patient's and the next of kin's everyday life. Even when dealing with an illness, a meaningful life is the goal of both patients and next of kin; this points to the need for a more person-centred caring approach (38).…”

Section: Discussionmentioning

confidence: 99%

“Being in good hands”: Next of kin’s perceptions of continuity of care in patients with heart failure

Östman

Bäck-Pettersson

Sandvik

et al. 2019

Preprint

View full text Add to dashboard Cite

Background Heart failure (HF) is a chronic condition with a variety of diverse symptoms. Patients with HF are usually elderly with multimorbidity, which are both multifaceted and challenging. Being a next of kin to patients with HF is described as a complex task consisting of managing care and treatment, monitoring illness and being an emotional support, while also being able to navigate the healthcare system especially in long-term contact. However, few studies have investigated next of kin's perceptions of continuity of care in connection with HF. The present study aimed to describe continuity of care as perceived by the next of kin who care for patients with HF. Methods This study used a qualitative descriptive design. Semi-structured interviews were conducted with the next of kin (n=15) of patients with HF to obtain their perceptions of continuity of care. A phenomenographic analysis method was used to capture the participants' perceptions of the phenomenon. Results The analysis reveals that the next of kin perceive that support from healthcare professionals was strongly associated with experiences of continuity of care. Four categories reveal the next of kin's perceptions of continuity of care: Want to be involved without being in charge; A desire to be in control without acting as the driving force in the care situation; A need for sustainability without being overlooked; and Focusing on making life meaningful while being preoccupied with caregiving activities. Conclusions Next of kin perceive continuity of care to entail well-functioning, long-term and reliable contact with healthcare providers that support them in reducing unnecessary medical and nursing hindrances. They have a variety of needs for continuity and support in connection with their caregiving activities so they can continue to live a meaningful life under the prevailing circumstances. In order to strengthen the next of kin's contact with healthcare providers, it is important to consider the need for continuity of care in relation to patients with HF. Keywords Continuity of care, Heart failure, Next of kin, Phenomenography, Qualitative research

show abstract

“Same same or different?” A review of reviews of person-centered and patient-centered care

Cited by 482 publications

References 41 publications

Patient participation in dialysis care—A qualitative study of patients’ and health professionals’ perspectives

Patient participation in dialysis care—A qualitative study of patients’ and health professionals’ perspectives

Recognition and Management of Agitation in Acute Mental Health Services: A Qualitative Evaluation of Staff Perceptions

“Being in good hands”: Next of kin’s perceptions of continuity of care in patients with heart failure

Contact Info

Product

Resources

About