Safeguarding Being: a bioethical principle for genetic nursing care

Abstract

This philosophical inquiry examines the nature of the technology of genetic predisposition testing and its relation to patients as whole persons. The bioethical principles of non-maleficence, beneficence, autonomy and justice are judged insufficient to resolve issues associated with use. A new principle of 'sustained being', drawn from philosophical propositions of Pellegrino, is suggested. The new principle is suited to an evolving practice and is compatible with consequentialist, deontological and relational ethics theories. The notion of 'taking care' is related to nursing in genetic health care to form a standard of conduct and a moral imperative to 'safeguard being'.

Knowledge, Perceptions, and Attitudes of Advanced Practice Nursing Students Regarding Medical Genetics

“…Schools and professional organizations must provide leadership in preparing the next generation of health professionals to interpret and use genetic information appropriately and to address related ethical, legal, social, and psychological implications (Giarelli, 2003). With the nursing faculty shortage and the depth and breadth of scientific advances, it is imperative that schools have interdisciplinary approaches to solving this dilemma.…”

Reversing Kristeva’s first instance of abjection: the formation of self reconsidered

“…However, the results of these tests provide families and healthcare professionals with risk ratios and probabilities, and on occasion a definitive diagnosis of the presence of a genetic condition. The immediate purpose of utilizing genetic screening practices, including prenatal screening, becomes the prediction of the likelihood of disease (Giarelli 2003).…”

“…The pretence of offering these tests is based on the assumed decision that the woman will chose to have a therapeutic abortion – a literal abjection. While prenatal screening may determine the risk of the presence of a disease or disability it also effects the direction of healthcare services (Giarelli 2003), and consequently the actions of healthcare providers, including nurses.…”

“…The role of nurses in prenatal screening and normative procedures extends beyond the dissemination of information; as professionals within a humanistic profession, they must also consider how prenatal testing will affect and transform the patient’s world (Giarelli 2003). In addition, nurses must also consider what factors may influence not only the patient’s decision of engaging in prenatal testing but also the choices they make in the wake of a positive result.…”

“…In doing so nurses can question the role of ‘standardized’ care and the ethical issues that surface as technology is integrated into patient care without question. Giarelli (2003) points out that ethical issues only multiply as available technologies become more abundant and utilized by both professionals and consumers – especially as it relates to disease control and health planning.…”