“Running Water Won't Freeze”: How people with advanced Parkinson's disease experience occupation

Abstract

Participants' experiences crossed the domains of palliative care and suggest that adopting a palliative care approach would enhance an enhanced quality of life, experienced in terms of meaningful and valuable occupation. Disruption to participation in occupation caused them distress and frustration, suggesting that access to occupation-focused therapy would significantly improve quality of life for people with PD. As there is a strong link between the ethos of occupational therapy and palliative care, it is proposed that there is a valuable role for occupational therapy intervention to play within palliative care.

Physical therapy and occupational therapy in Parkinson's disease

“…In addition, for actual participation, not only the capacity to plan and perform activities is important, but also the motivation and coping style [38,46]. Moreover, to maintain participation, adequate social support is essential [47]. Changing and maintaining body position (d410-d429), carrying, moving and handling objects (d430-d449), walking and moving (d450-d469), moving around using transportation (d470-d489) d5 Self-care…”

Mapping Nursing language terms of Parkinson's disease

“…The term Caregiver stress overload, quoted from the domain Coping/Stress Tolerance, is directly related to these factors. Socioeconomic changes, arising from the reversal of roles in the family structure should be taken into account in the rehabilitation program for that patient/family (4) . In this context, the multidisciplinary approach to rehabilitation aimed at family guidance for the management and the medical setting in order to minimize the manifested symptoms is extremely important (2) .…”

“…In this context, the multidisciplinary approach to rehabilitation aimed at family guidance for the management and the medical setting in order to minimize the manifested symptoms is extremely important (2) . Similarly, family orientation for the search of legal resources and public policy in support of patients with PD and disabilities can provide ways of organizing the family system (4) . For the diagnosis Social isolation, this discussion highlights those of motor complications and even other non-motor symptoms of DP such as urinary incontinence, gastrointestinal dysfunction, orthostatic hypotension and cognitive impairment may negatively interfere in the social function of patients, thus creating social isolation (4) .…”

“…Similarly, family orientation for the search of legal resources and public policy in support of patients with PD and disabilities can provide ways of organizing the family system (4) . For the diagnosis Social isolation, this discussion highlights those of motor complications and even other non-motor symptoms of DP such as urinary incontinence, gastrointestinal dysfunction, orthostatic hypotension and cognitive impairment may negatively interfere in the social function of patients, thus creating social isolation (4) . Another important variable related to social isolation is depression, which in PD patients may be related to an imbalance of neurotransmitters and the finding of functional and cognitive limitations imposed by the disease (1) .…”

“…Their actions are focused on the affected individual in a broader, familiar, sociocultural and psycho-spiritual context, in order to contribute to the existing scientific knowledge for the multidisciplinary team in rehabilitation (2) . However, nursing research on this topic is still incipient and regionalized in countries like USA, Canada and the UK (2,(4)(5) . In Brazil, the scientific production that deals with nursing care in the rehabilitation of patients with Parkinson's disease is still scarce.…”