Routinisation of informed consent in online health care systems

Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data

“…22 In a recent study on consent behaviour in relation to the use of webportal containing personal health data, we have provided evidence of routinization. 23 The users of the portal are required to consent to the terms and conditions of use and the data protection policy of the site before use on the basis of being informed about these. Taking a low degree of reading of relevant information material to be indicative of routinization, the study finds that 79% of respondents read half or less of the relevant information materials before using the portal, indicating a significant degree of routinization among the users.…”

Pharmacy customers’ experiences with the national online service for viewing electronic prescriptions in Finland

“…eHealth aims to improve the quality and availability of healthcare services [1,2]. Electronic storing of medical data has also enabled patients to access their personal records via online portals [4][5][6][7][8]. Patient portals are rarely nationwide [7] but rather administered by single organizations or regions [4][5][6][9][10][11].…”

“…Electronic storing of medical data has also enabled patients to access their personal records via online portals [4][5][6][7][8]. Patient portals are rarely nationwide [7] but rather administered by single organizations or regions [4][5][6][9][10][11]. In pursuit of patient-centered care, portals offer the possibility to communicate with the provider by secure messaging, to book appointments or request prescription renewals [5][6][7][8][9][10][11].…”

“…Patient portals are rarely nationwide [7] but rather administered by single organizations or regions [4][5][6][9][10][11]. In pursuit of patient-centered care, portals offer the possibility to communicate with the provider by secure messaging, to book appointments or request prescription renewals [5][6][7][8][9][10][11]. Electronic exchange of information between the healthcare provider and the patient may benefit the patient's medication adherence and satisfaction with the quality of care [4,8,12,13].…”

Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research

“…It is also likely that participants would receive a high volume of consent requests and that repeated requests would lead to the routinisation of consent or to "consent fatigue." [18][19][20][21] In other words, giving or withholding consent may become an unreflective, habitual act based on little or no knowledge of the potential use of data or tissue.…”