Role of Self-Stigma in Pathways from HIV-Related Stigma to Quality of Life Among People Living with HIV

Kooij, Yvonne L. van der; Kupková, Alžběta; Daas, Chantal den; Berk, Guido E.L. van den; Kleene, M. J. T.; Jansen, Hannah S E; Elsenburg, Loek J M; Schenk, Leo G; Verboon, Peter; Brinkman, Kees; Bos, Arjan E. R.; Stutterheim, Sarah E.

doi:10.1089/apc.2020.0236

Cited by 37 publications

(39 citation statements)

References 61 publications

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“…For internal consistency, all the studies, except a 4-item scale in one study [ 127 ] and some subscales in ten studies [ 23 , 52 , 68 , 69 , 91 , 111 , 170 , 172 , 176 , 189 ], reported Cronbach’s alphas of above the recommended acceptable threshold of 0.70 [ 191 ]. Two studies [ 34 , 95 ] reported the internal consistency of the HSS using McDonald’s omega instead of Cronbach’s alpha and reported good reliability ( Table 1 and Supplementary Table S2 ).…”

Section: Resultsmentioning

confidence: 99%

Psychometric Properties of the Berger HIV Stigma Scale: A Systematic Review

Wanjala

Too

Luchters

et al. 2021

IJERPH

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Addressing HIV-related stigma requires the use of psychometrically sound measures. However, despite the Berger HIV stigma scale (HSS) being among the most widely used measures for assessing HIV-related stigma, no study has systematically summarised its psychometric properties. This review investigated the psychometric properties of the HSS. A systematic review of articles published between 2001 and August 2021 was undertaken (CRD42020220305) following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Additionally, we searched the grey literature and screened the reference lists of the included studies. Of the total 1241 studies that were screened, 166 were included in the review, of which 24 were development and/or validation studies. The rest were observational or experimental studies. All the studies except two reported some aspect of the scale’s reliability. The reported internal consistency ranged from acceptable to excellent (Cronbach’s alpha ≥ 0.70) in 93.2% of the studies. Only eight studies reported test–retest reliability, and the reported reliability was adequate, except for one study. Only 36 studies assessed and established the HSS’s validity. The HSS appears to be a reliable and valid measure of HIV-related stigma. However, the validity evidence came from only 36 studies, most of which were conducted in North America and Europe. Consequently, more validation work is necessary for more precise insights.

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Section: Resultsmentioning

confidence: 99%

Psychometric Properties of the Berger HIV Stigma Scale: A Systematic Review

Wanjala

Too

Luchters

et al. 2021

IJERPH

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“… 36 A cross-sectional study in the Netherlands demonstrated the mediating effect of self-stigma on both perceived public stigma and experienced stigma on quality-of-life outcomes. 37 This is probable that “perceived beliefs” are potentially more likely to initiate feelings or fear of being stigmatized rather than the actual stigma experiences. 37 …”

Section: Discussionmentioning

confidence: 99%

“… 37 This is probable that “perceived beliefs” are potentially more likely to initiate feelings or fear of being stigmatized rather than the actual stigma experiences. 37 …”

Section: Discussionmentioning

confidence: 99%

Predictors of Stigma and Health-Related Quality of Life Among People Living with HIV in Northern Thailand

Rayanakorn

Ong-Artborirak

Ademi

et al. 2022

AIDS Patient Care and STDs

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HIV-related stigma and discrimination have been a significant barrier to accessing health care, hence contributing to poor health outcomes. This study aimed to investigate factors associated with HIV-related stigma and discrimination and health-related quality of life (HRQoL) among people living with HIV in rural Thailand setting. A cross-sectional convenience sample of 161 HIV-positive Thai patients was recruited from a single rural district hospital using a self-administered questionnaire entailing sociodemographic information, the 12-item stigma scale, the Medical Outcomes Study HIV Health Survey (MOS-HIV), and the EuroQoL 5-Dimension 5-Level (EQ-5D-5L). Linear regression and the multi-variable analyses were used to investigate factors associated with stigma and HRQoL, whereas the correlations between stigma and quality of life variables were tested by Pearson correlations. Being married and duration of antiretroviral therapy were negatively correlated with HIV stigma, while increased age was inversely associated with HRQoL. Being employed and having sufficient money for living contributed positively to predict HRQoL. HIV stigma was negatively associated with mental health summary (MHS) and visual analog scale (VAS) score, whereas duration diagnosed with HIV and the use of two nucleoside reverse transcriptase inhibitors in combination with protease inhibitor regimen were negative factors associated with VAS and health utility, respectively. The findings confirm complex and inseparable associations of factors relating to HIV-related stigma and HRQoL. The development of effective interventions tailored at individual level is warranted to address this gap.

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“…We also have experience with a convergent parallel mixed methods approach, where qualitative and quantitative data are used in parallel to better understand a phenomenon. We are currently doing this in the context of a needs assessment for a self-stigma reduction intervention for PLHIV in the Netherlands (van der Kooij et al, submitted; van der Kooij et al, in preparation). Strictly speaking, data collection in these studies was not entirely parallel but data analyses were.…”

Section: Furthering Scientific Inquirymentioning

confidence: 99%

Understanding and addressing stigma through qualitative research: Four reasons why we need qualitative studies.

Stutterheim¹,

Ratcliffe²

2021

Stigma and Health

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Role of Self-Stigma in Pathways from HIV-Related Stigma to Quality of Life Among People Living with HIV

Cited by 37 publications

References 61 publications

Psychometric Properties of the Berger HIV Stigma Scale: A Systematic Review

Psychometric Properties of the Berger HIV Stigma Scale: A Systematic Review

Predictors of Stigma and Health-Related Quality of Life Among People Living with HIV in Northern Thailand

Understanding and addressing stigma through qualitative research: Four reasons why we need qualitative studies.

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