Role of disability-case manager for chronic diseases: Using the ICF as a practical background

Albanesi, Francesca; Invernizzi, Veronica; Meucci, Paolo; Leonardi, Matilde; Caspani, Giuseppina; Pessina, Adriano; Brayda-Bruno, Marco

doi:10.3109/09638280903317799

Cited by 4 publications

(7 citation statements)

References 17 publications

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“…Sixteen papers reviewed discussed the range of tasks and activities intended to be undertaken by care coordinators: two quantitative studies [4142], two qualitative studies [443], three literature reviews [363744], three guidelines [124546], four mixed methods studies [16193847] and two case studies [1532]. Although the models of health systems differ internationally the core expectations of the activities carried out by care coordinators are consistent.…”

Section: Resultsmentioning

confidence: 99%

“…Findings from these papers highlight the intended role of care coordinator as being one which encompasses tasks under four key headings: coordination of care needs, planning and assessment, information and specialist support, and emotional and practical support [12]. Coordination of care needs can include improving access, navigating the complexities of multiple service providers, and/or establishing service provision links [3238444849] as well as functioning in a problem solving capacity as required [32]. Planning and assessment includes the coordination of future visits, studies or referrals [444749], ensuring treatment plans are carried out [4749], and the initial and ongoing identification of needs [15363749].…”

Section: Resultsmentioning

confidence: 99%

“…Information and specialist support involves the knowledge and provision of clinical and local information [394548], acting as a point of reference for all enquiries related to the client [36] and sharing information with professionals and families [49]. Emotional and practical support refers to the provision of support in a crisis [48], making travel and education arrangements, accompaniment and support during hospital visits [32] and speaking on behalf of families in an advocacy capacity as required [4548]. …”

Section: Resultsmentioning

confidence: 99%

“…Although aspects of the children’s illnesses were examined, no study set out to capture the views of children with complex care needs. Sample sizes varied from single case studies [1532] to studies with over 200 respondents where quantitative data collection techniques were used.…”

Section: Theory and Methodsmentioning

confidence: 99%

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The Role of Care Coordinator for Children with Complex Care Needs: A Systematic Review

Hillis¹,

Brenner²,

Larkin

et al. 2016

International Journal of Integrated Care

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Introduction:This systematic review seeks to identify the intended components of the role of care coordinator for children with complex care needs and the factors that determine its composition in practice.Theory and methods:The initial search identified 1,157 articles, of which 37 met the inclusion criteria. They were quality assessed using the SIGN hierarchy of evidence structure.Results:Core components of the role include: coordination of care needs, planning and assessment, specialist support, emotional support, administration and logistics and continuing professional development. Influencing factors on the role include the external environment (political and socio-economic), the internal environment (organisational structure and funding protocols), the skills, qualifications and experience of the coordinator, the family circumstances and the nature of the interaction between the care coordinator and the family.Discussion:The lack of consistent terminology creates challenges and there is a need for greater consensus on this issue. Organisations and healthcare professionals need to recognise the extent to which contextual factors influence the role of a care coordinator in practice and plan accordingly. Despite evidence that suggests that the role is pivotal in ensuring that care needs are sustained, there remains great variability in the understanding of the role of a care coordinator for this population.Conclusions:As the provision of care increasingly moves closer to home there is a need for greater understanding of the nature and composition of the interaction between care coordinators and families to determine the extent to which appropriate services are being provided. Further work in this area should take into consideration any potential variance in service provision, for example any potential inequity arising due to geographic location. It is also imperative, where appropriate, to seek the views of children with complex care needs and their siblings about their experiences.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Theory and Methodsmentioning

confidence: 99%

See 2 more Smart Citations

The Role of Care Coordinator for Children with Complex Care Needs: A Systematic Review

Hillis¹,

Brenner²,

Larkin

et al. 2016

International Journal of Integrated Care

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“…Descriptive statistics for subcategories are reported in Table IV A total of 32 papers described practical applications of the ICF in clinical contexts but not in specific health conditions. They include the development of methodologies and application of tools for health professionals [409,413,425,428,434], and the description of disability of diverse groups of patients from different clinical settings [338,405,419,423,[427][428][429][430][431], and the identification of relevant categories of ICF [407,410,411,414,417,418,420,422,424].…”

Section: Clinical Contextsmentioning

confidence: 99%

Systematic literature review on ICF from 2001 to 2009: its use, implementation and operationalisation

Černiauskaitė

Quintas

Boldt

et al. 2010

Disability and Rehabilitation

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243

161

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Conclusions. The ICF contributed to the development of research on functioning and on disability in clinical, rehabilitation as well as in several other contexts, such as disability eligibility and employment. Diffusion of ICF research and use in a great variety of fields and scientific journals is a proof that a cultural change and a new conceptualisation of functioning and disability is happening.

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Enhancing care of children with complex healthcare needs: an improvement project in a community health organisation in Ireland

et al. 2021

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BackgroundIntegration of care for children with complex care needs is developing slowly internationally. There remains wide variation in the governance of, and access to, care for these children and their families.Local problemThere was a need to develop a service that would have a specific remit for organising the overall management and governance of the care of these children in the community.MethodA bespoke model was established specifically to support the needs of children with complex healthcare needs (CHNs). The sole focus of the team is to provide the highest standard of care to these children and their families, and to enable families to remain central to decision-making.InterventionThe service for children with CHNs was established in August 2017 with the appointment of a service manager and case managers. A comprehensive training and education programme was put in place to support care to the children and their families.ResultsThe service is viewed as delivering high-quality care. Parents and stakeholders highlighted the value placed within the service on individualised care, specialist knowledge and the importance of advocacy.ConclusionsThe model recognises the exceptional lives these children and families live, given the complexities and challenges they have to overcome on a daily basis. The team have built a specialist knowledge and skill set in supporting families and others involved in the care of the child, as they are solely employed and dedicated to the provision of care to children with CHNs. The corporate governance structures seem strong and stand up to scrutiny very well in terms of parents’ and stakeholders’ perspectives and in the context of published international best practice.

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Role of disability-case manager for chronic diseases: Using the ICF as a practical background

Cited by 4 publications

References 17 publications

The Role of Care Coordinator for Children with Complex Care Needs: A Systematic Review

The Role of Care Coordinator for Children with Complex Care Needs: A Systematic Review

Systematic literature review on ICF from 2001 to 2009: its use, implementation and operationalisation

Enhancing care of children with complex healthcare needs: an improvement project in a community health organisation in Ireland

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