Role captivity: A concept of constraining dimensions in dementia care

Abstract

Aim/Background: The aim of this paper is to explore the appropriateness of applying the constraining aspects of the concept of "role captivity" to the experience of the caregiver of a person with dementia. Background literature was explored using the definitions of captivity in general along with an overview of zoo animals and humans involuntarily incarcerated or in kidnap/hostage situations. Methods: Defining attributes, a general definition based on the literature review, antecedents and consequences, and empirical referents are presented using the Walker and Avant concept analysis method. A model, related, and contrary case are presented to further elucidate the concept of role captivity related to caregivers.Results: Two conclusions are proffered supporting the use of this concept to describe persons in specific roles and the benefit of using the idea of role captivity to describe caregivers of persons with disruptive behaviors due to physical and mental illnesses.Recommendations: Recommendations include decreasing psychological distress and depression by moving toward a more positive view of the caregiver experience and studying socialization and technology innovations to decrease the feelings of inevitability, isolation, and loss of control in caregivers of person with dementia.

Tourists as Caged Birds: Elaborating Travel Thoughts and Craving When Feeling Captive

“…Lockdown captivity was modeled as a construct following Pearlin (1975) and Parkman (2020). The concept of role captivity is well-established in clinical psychology (Parkman 2020;Pearlin 1975) and has recently been adapted to tourism . Convergent and discriminant validity were assessed during the scale-adaptation process.…”

“…Feeling trapped, finding oneself in an unwanted situation, causes distress (Parkman 2020). Research shows that when freedom of behavior is eliminated or threated by an uncontrolled event, people experience unpleasant states (Miron and Brehm 2006; Steindl et al 2015).…”

Caregiving for Patients With Frontotemporal Dementia in Latin America

“…These women oftentimes have low education and live in multigenerational households where taking care of the patient is not their main role ( 21 , 22 ). Female caregivers have to play multiple roles such as wives, daughters, mothers, or employees, and more often than is the case with men, women's caregiving roles interfere with other life activities, which may ultimately lead to “role-captivity” (caregiver feelings of being “trapped” in their role) ( 24 ). Caregivers frequently take care of patients at home, setting an example for their children about family obligation and intergenerational reciprocity ( 25 ).…”

Efficacy of yoga for caregivers of persons with dementia: An integrative review

“…Perhaps one of the most emotionally difficult aspects for the caregiver is the changing relationship with the person they once knew. A shared lifetime of memories and experiences are often threatened as the disease progresses to the point the person with dementia may not even recognise the caregiver [7, 9]. The roles and responsibilities of family caregivers are significant.…”