Risk factors associated with home care safety for older people with dementia: family caregivers’ perspectives

Yin, Guo; Lin, Siting; Chen, Linghui

doi:10.1186/s12877-023-03893-3

Cited by 3 publications

(1 citation statement)

References 62 publications

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“…However, there are greater challenges for people living with dementia (Hadjri, Mawhorter, Wilkie & Ailshire, 2023) who face difficulties with remaining safe in their own home as symptoms progress (Yin, Lin & Chen, 2023).…”

Section: Introductionmentioning

confidence: 99%

Benefits and challenges of living in extra care housing: perspectives of people living with dementia

Atkinson,

Oatley

2023

WWOP

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Purpose The purpose of this paper is to present the views of people living with dementia in extra care housing (ECH). This is a model of housing with care and support aiming to support older people, including those with dementia, to live independently. Previous research identifies benefits but is predominantly derived from third-party accounts, with the voices of those living with dementia in ECH significantly absent. Design/methodology/approach This study adopted a qualitative approach conducting 100 interviews across 8 ECH schemes in England. Over half of the interviews were conducted with people living with dementia and their families with the remainder involving staff and commissioners. Findings Findings suggest there are a range of benefits including owning your own home, having a safe, age friendly location with flexible support, social interaction and continuing to live as a couple. Challenges included availability of staff, flexible resourcing, loneliness and the advancing symptoms of dementia. Research limitations/implications Despite efforts to create an inclusive, diverse sample, the participants were all White British. Participants involved were identified by gatekeepers, which may present some bias in the selection. Practical implications Whilst ECH offers benefits to people living with dementia, addressing the challenges is essential for effective dementia care. Improving staff training, promoting person-centred care and fostering an inclusive community are critical for enhancing residents’ well-being and quality of life. Originality/value This paper explored the lived experiences of residents and family members, providing new insight into the advantages and disadvantages of ECH for people living with dementia.

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Section: Introductionmentioning

confidence: 99%

Benefits and challenges of living in extra care housing: perspectives of people living with dementia

Atkinson,

Oatley

2023

WWOP

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Exploring Healthcare Providers’ Difficulties and Strategies when Caring for Community-Dwelling People With Dementia Who are at Risk of Getting Lost

Hu,

Chang,

et al. 2024

J Appl Gerontol

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Caring for patients with dementia at risk of getting lost is challenging for community healthcare providers. Through semi-structured interviews with 25 participants, we examined the challenges faced by these providers and the strategies they employed. We identified the following themes of challenging parts: (a) the disturbance caused by behavioral and psychological symptoms in dementia; (b) difficulty in helping older family caregivers to keep the patient from going out; (c) difficulty in changing the attitudes of the family members; families’ unawareness of the risk of getting lost. We also identified the following strategies to mitigate these themes: (a) detecting the risk of getting lost through early assessment; (b) encouraging the family to use resources or devices to prevent the patient from getting lost; (c) educating the family to manage behavior and psychological symptoms of dementia; (d) strengthening the patient’s crisis awareness.

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Does assistive technology contribute to safety among home-dwelling older adults?

Bikova,

Ambugo,

Tjerbo

et al. 2024

BMC Health Serv Res

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Background Assistive technology carries the promise of alleviating public expenditure on long-term care, while at the same time enabling older adults to live more safely at home for as long as possible. Home-dwelling older people receiving reablement and dementia care at their homes are two important target groups for assistive technology. However, the need for help, the type of help and the progression of their needs differ. These two groups are seldom compared even though they are two large groups of service users in Norway and their care needs constitute considerable costs to Norwegian municipalities. The study explores how assistive technology impacts the feeling of safety among these two groups and their family caregivers. Methods Face-to-face, semi-structured interviews lasting between 17 and 61 min were conducted between November 2018 and August 2019 with home-dwelling older adults receiving reablement (N = 15) and dementia care (N = 10) and the family caregivers (N = 9) of these users in seven municipalities in Norway. All interviews were audio-recorded, fully transcribed, thematically coded and inductively analyzed following Clarke and Braun’s principles for thematic analysis. Results Service users in both groups felt safe when knowing how to use assistive technology. However, the knowledge of how to use assistive technology was not enough to create a feeling of safety. In fact, for some users, this knowledge was a source of anxiety or frustration, especially when the user had experienced the limitations of the technology. For the service users with dementia, assistive technology was experienced as disturbing when they were unable to understand how to handle it, but at the same time, it also enabled some of them to continue living at home. For reablement users, overreliance on technology could undermine the progress of their functional improvement and thus their independence. Conclusion For users in both service groups, assistive technology may promote a sense of safety but has also disadvantages. However, technology alone does not seem to create a sense of safety. Rather, it is the appropriate use of assistive technology within the context of interactions between service users, their family caregivers and the healthcare staff that contributes to the feeling of safety.

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Risk factors associated with home care safety for older people with dementia: family caregivers’ perspectives

Cited by 3 publications

References 62 publications

Benefits and challenges of living in extra care housing: perspectives of people living with dementia

Benefits and challenges of living in extra care housing: perspectives of people living with dementia

Exploring Healthcare Providers’ Difficulties and Strategies when Caring for Community-Dwelling People With Dementia Who are at Risk of Getting Lost

Does assistive technology contribute to safety among home-dwelling older adults?

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