Risk and Resilience: Living with a Neurological Condition with a Focus on Health Care Communications

Roger, Kerstin; Penner, Leslie

doi:10.5772/30406

Cited by 1 publication

(1 citation statement)

References 35 publications

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“…A few recent Canadian studies have made an effort to study the Canadian experience of living with Parkinson's disease, including investigating the patient response to a Parkinson's diagnosis (Gofton and Jog 2008), patients' satisfaction with health services (Burns and Jensen 2012) and their ‘everyday experience of living with and managing a neurological condition’ (the LINC Study; Versnel et al 2013). In addition, Roger and colleagues identified a need to conduct research with a local and regional focus, examining patients' perceptions of communication with informal and formal care providers (Penner and Roger 2012; Roger and Medved 2010; Roger, Medved and Mary-Quigley 2010; Roger and Penner 2012; Roger et al 2014).…”

Section: Introductionmentioning

confidence: 99%

Living with Parkinson's disease – perceptions of invisibility in a photovoice study

Roger

Wetzel

Penner³

2017

Ageing and Society

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Based on previous community research, we prioritise the need to understand better how experiences and feelings of invisibility could be shaped by relational dynamics, interfacing with service provision, and social forces, with the overarching view of understanding better the experiences of participants living with Parkinson's disease. A photovoice methodology was employed. A discussion of one case study of Bindy and Volta leads to a better understanding of how strong spousal support can significantly alter how one individual experiences and defines living with Parkinson's.

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