Rewards and gratifications among family caregivers: towards a refined model of caring and coping

Grant, Gordon; Ramcharan, Paul; McGrath, Morag; Nolan, Mike; Keady, John

doi:10.1046/j.1365-2788.1998.00079.x

Cited by 133 publications

(125 citation statements)

References 9 publications

Supporting

Mentioning

114

Contrasting

Unclassified

Order By: Relevance

“…Previous studies on parents with children with special needs have often concentrated on the child's disability, looking at it from a crisis perspective. At the same time, however, there is also research suggesting that care giving might in itself be something rewarding (Grant et al 1998;Atkin and Ahmad 2000). Capturing the affected mothers' perspectives could thus raise important new knowledge and perspectives about living with and raising children with special needs, inspiring further study.…”

Section: Discussionmentioning

confidence: 99%

“…Fyhr 2006). Yet, also other aspects have been brought up in research, such as that the needs of the child have contributed to the parents' own development or to a change in their perspective (Grant et al 1998;Atkin and Ahmad 2000). Recognizing this possibility may thus be considered as one of the resources of the mothers who took part in the present study.…”

Section: Children's Needs and Parental Responsibilitymentioning

confidence: 96%

See 1 more Smart Citation

Descriptions of children's needs and parenthood among mothers with intellectual disability

Starke

2011

Scandinavian Journal of Disability Research

View full text Add to dashboard Cite

This study looks at how mothers with an intellectual disability describe their children's needs, their own parenting and parenthood, and their encounters with professionals providing them with help and support. The analysis draws upon a relational perspective on disability, theories of modern parenthood, and the concept of the sense of coherence in examining the strategies used by the interviewed mothers in their everyday lives, such as consulting people they trust. Having a child and being entrusted with the role of parenthood were described by the interviewed mothers as creating meaningfulness in their lives, while the comprehensibility of their everyday lives was often found to be lacking and the information given them by professionals not always understandable. Better information and communication thus seem to be necessary to render these mothers' parenthood and its context more comprehensible.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Children's Needs and Parental Responsibilitymentioning

confidence: 96%

Descriptions of children's needs and parenthood among mothers with intellectual disability

Starke

2011

Scandinavian Journal of Disability Research

View full text Add to dashboard Cite

show abstract

“…This early body of work incorporated the positive feelings related to caregiving and the potential negative association with caregiver depression. This early research suggested that burden should not only be measured in terms of negative costs but in terms of positive benefits as well (Grant et al, 1998;Kramer, 1997).…”

Section: Discussionmentioning

confidence: 99%

Concepts of Burden in Giving Care to Older Relatives: A Study of Female Caregivers in a Mexico City Neighborhood

Mendez-Luck

Kennedy

Wallace

2008

J Cross Cult Gerontol

View full text Add to dashboard Cite

Objectives-This study examined how women in a Mexico City suburb conceptualized the construct of burden within the context of giving care to older relatives.Methods-Data were collected on forty-one women through semi-structured interviews regarding their caregiving experiences to elderly relatives. Phenomenological principles were used to analyze meanings and understandings of caregiving experiences.Results-Burden was a multi-dimensional construct that referred to specific situations that made caregivers feel emotionally or physical "heavy." Burden also referred to "being a burden" by being in the way, making things difficult, or being a 'weight' on caregivers' shoulders. However, women in this study also viewed burden as a positive sacrifice that involved love, initiative, and good will.Discussion-This study is an important first step in defining the ways in which caregiving is positively and negatively meaningful for Mexican caregivers and their families. Our findings offer an additional dimension of caregiver burden to broaden our understanding and measurement of the construct. The development of culturally appropriate instruments to measure caregiving burden in Mexico is necessary to provide an empirical foundation for policy recommendations that address the growing need for institutional support of caregivers. Moreover, our findings suggest that researchers studying caregiving in Mexico should think about how burden is measured on existing instruments before adapting them for widespread use.

show abstract

“…Conversely, parenting a child with an intellectual disability may also be experienced positively (Grant, Ramcharan, McGrath, Nolan and Keady, 1998;Scorgie and Sobsey, 2000). Possible explanations for these contrasting experiences could include some parents having more effective coping strategies than others (Cummins, 2001).…”

Section: Parents' Viewsmentioning

confidence: 99%

The transition into adulthood for children with a severe intellectual disability: parents’ views

Biswas

Tickle

Moghaddam

et al. 2016

International Journal of Developmental Disabilities

View full text Add to dashboard Cite

Objectives: This study used the grounded theory to explore parents’ views of the transition into adulthood of their\ud child with a severe intellectual disability. The study also sought to explore the processes that parents engage in\ud for making psychological adjustments, to appreciate their role during this transition. This study is imperative for\ud developing a psychologically informed theory that can be understood by both parents and clinicians.\ud Methods: Twelve parents of 11 children with a severe intellectual disability were recruited for interview from\ud charitable organizations accessed by parents (e.g. Mencap). Data collection used a combination of open-ended\ud structured questions and non-directed probing. NVivo 10 software was used to assist the grounded theory\ud coding and analysis process.\ud Results: The analysis developed five processes that parents engaged in during their child’s transition into\ud adulthood: ‘defining adulthood’, ‘noticing adult development’, ‘perceiving barriers to adulthood’, ‘worrying,’ and\ud ‘making psychological adjustments’. Common to these was seen to be a core process of ‘making comparisons\ud with perceived “norms”’. Contrasting findings are critically discussed alongside extant literature. Additionally, a\ud transition model of parents’ views and adjustments is proposed, grounded in the study findings.\ud Conclusions: Parents engage in a series of interactional processes throughout the transition trajectory, which are\ud likely to influence how they make adjustments. Clinical interventions could challenge parent perceptions; encourage\ud peer support; embrace systemic ways of working with parents through their child’s transition into adulthood; and\ud use the presented model to help parents understand their experiences and any adjustment-related problems

show abstract

Rewards and gratifications among family caregivers: towards a refined model of caring and coping

Cited by 133 publications

References 9 publications

Descriptions of children's needs and parenthood among mothers with intellectual disability

Descriptions of children's needs and parenthood among mothers with intellectual disability

Concepts of Burden in Giving Care to Older Relatives: A Study of Female Caregivers in a Mexico City Neighborhood

The transition into adulthood for children with a severe intellectual disability: parents’ views

Contact Info

Product

Resources

About