Revisiting Photovoice: Perceptions of Dementia Among Researchers With Intellectual Disability

Abstract

There is limited global evidence exploring perceptions of dementia among people with intellectual disabilities. This article presents findings from the first known study where an inclusive research team, including members with intellectual disability, used photovoice methodology to visually represent views of people with intellectual disabilities and dementia. Drawing on Freire’s empowerment pedagogy, the study aims were consistent with global photovoice aims: enabling people to visually record critical dialogue about dementia through photography and social change. We investigated the benefits and challenges of photovoice methodology with this population and sought to identify perspectives of dementia from people with intellectual disabilities. Data collected identified issues such as peers “disappearing” and the importance of maintaining friendship as dementia progressed. Although reaching policymakers is a key aim of photovoice, this may not always be achievable, suggesting that revisiting Freire’s original methodological aims may lead to improved outcomes in co-produced research with marginalized groups.

A person‐centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia—A participatory action study

“…Photovoice methodology has led to new learning about dementia from the perspective of people with intellectual disabilities, findings that are already influencing practice (Watchman, Mattheys, Doyle, Boustead, & Rincones, 2020). New findings include co‐researcher's reflection on their own perceptions of dementia including impact on relationships and the fear of a return to institutional care.…”

“…Photovoice methodology has led to new learning about dementia from the perspective of people with intellectual disabilities, findings that are already influencing practice (Watchman, Mattheys, Doyle, Boustead, & Rincones, 2020). 1.…”

Understanding the Wellbeing Effects of a Community Music Program for People With Disabilities: A Mixed Methods, Person-Centered Study

“…In taking a person-centered approach, the rights and views of the participants were prioritized throughout this study. This is in line with demands for a commitment and focus among non-disabled researchers toward genuine engagement, rethinking research relationships, inclusive design, and an empowered voice for people with intellectual disabilities (Watchman et al, 2020). It has benefited the research through development of methodological tools and integration of analysis.…”

Is a Picture Worth a Thousand Words? Using Photo-Elicitation to Study Body Image in Middle-to-Older Age Women With and Without Multiple Sclerosis

“…The total data set used for analysis included seven interviews which ranged from 44 to 110 minutes with a total of 70 accompanying photographs. We deemed this to be sufficient data for our purpose as it provided a rich analysis with which to answer our research question (Braun & Clarke, 2019) and is consistent with similarly conducted studies (e.g., Fleury et al, 2009;Kantrowitz-Gordon & Vandermause, 2016;Watchman et al, 2020;Wheeler & Early, 2018). Analysis was conducted inductively, both independently and collectively through weekly meetings and discussions.…”