Revisiting caregiver burden among family carers of people with dementia

Penteado, Camila T.; Ribeiro, O. G.; Forlenza, Orestes Vicente

doi:10.1017/s1041610220001271

Cited by 1 publication

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References 17 publications

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“…These findings are consistent with previous studies that have noted more negative effects on sleep and psychological well-being in dementia caregivers that in other groups of family caregivers [ 7 , 23 , 24 ], probably because certain clinical aspects of the dementia syndrome (such as nighttime awakenings, misidentification of close relatives, agitation and so on) may increase the vulnerability of the female caregivers and make them particularly prone to psychological distress [ 25 ]. In fact, the high prevalence of poor sleep quality found in our study (86.5%) is very similar to that detected by other authors.…”

Section: Discussionsupporting

confidence: 92%

Sleep Disturbance, Psychological Distress and Perceived Burden in Female Family Caregivers of Dependent Patients with Dementia: A Case-Control Study

et al. 2022

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This case-control study analyzed the sleep disturbance, psychological distress and perceived burden in female family caregivers of dependent people with dementia (n = 74) compared with female family caregivers of dependent people without dementia (n = 74) and with age-matched non-caregiver control females (n = 74). Participants completed the Pittsburgh Sleep Quality Index (PSQI), the 12-item General Health Questionnaire (GHQ-12), the Caregiver Burden Inventory (CBI) and an ad hoc questionnaire to collect sociodemographic data. There were significant differences between the groups in PSQI total (F = 24.93; p < 0.001), psychological distress (F = 26.71; p < 0.001) and in all sleep domains assessed: subjective sleep quality (F = 16.19; p < 0.001), sleep latency (F = 9.5; p< 0.001), sleep duration (F = 18.57; p < 0.001), habitual sleep efficiency (F= 19.77; p < 0.001), sleep disturbances (F = 9.22; p < 0.001), use of sleep medications (F= 4.24; p< 0.01) and daytime dysfunction (F = 5.57; p < 0.01). In all measures, the female family caregivers of dependent people with dementia showed the significantly higher mean scores. Regarding the two groups of female caregivers, statistically significant differences were found in daily hours of care (t = −2.45; p < 0.05) and perceived burden (t = −3.65; p < 0.001), as well as in the following dimensions of caregiver burden: time-dependence burden (t = −5.09; p < 0.001), developmental burden (t = −2.42; p < 0.05) and physical burden (t = −2.89; p < 0.01). These findings suggest that female family caregivers of dependent patients with dementia should be subject to psychopathological screening and preventive cognitive-behavioral interventions in clinical practice in primary health care.

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