Review of Literature Related to the Social, Emotional, and Behavioral Adjustment of Siblings of Individuals with Autism Spectrum Disorder

Meadan, Hedda; Stoner, Julia B.; Angell, Maureen E.

doi:10.1007/s10882-009-9171-7

Cited by 114 publications

(92 citation statements)

References 34 publications

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“…They spoke with pride about their academic and professional successes as well as the positive impact of having a sibling with a disability, such as increased sensitivity to differences. These findings are consistent with existing literature pertaining to social, emotional, and behavioral adjustment on the typically developing sibling of a child with Autism Spectrum Disorder in White American families (see Meadan et al 2009 for a review) suggesting that siblings experienced a more positive impact or were not negatively impacted. With respect to impact on marital relationship, parents discussed taking a team approach and spoke of this positively.…”

Section: Discussionsupporting

confidence: 89%

Parenting Children with Intellectual and Developmental Disabilities in Asian Indian Families in the United States

Zechella

Raval

2015

J Child Fam Stud

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Asian Indian immigrant parents of children with intellectual and developmental disabilities (IDD) have unique experiences and challenges grounded within their cultural contexts and migration to United States. This study sought to describe these experiences using qualitative method. Open-ended interviews were individually conducted with 15 Asian Indian parents (8 mothers, 7 fathers) whose children were diagnosed with Down Syndrome, Autistic Disorder, or Pervasive Developmental DisorderNot Otherwise Specified. Qualitative analysis generated 16 themes that were grouped into five domains: Cultural explanations, community response, and migration; impact on the self and family; sources of stress and support; a unique parenting approach; and hopes and fears for the future. In particular, parents described their local community's initial struggles with acceptance of IDD grounded within religious explanations of the disability. Similar to parents of children with IDD from other cultural groups, these parents described family support, broader social awareness and acceptance, and access to resources as sources of support and the lack of these factors as contributing to stress. A unique parenting approach emerged in reference to the child with IDD that included adjusting academic aspirations for the child, taking a practical, ''1 day at a time'' approach, and efforts to pass on cultural heritage. Parents voiced concerns about the future care of their child when they would not be around, as well as their hopes. These findings suggest the importance of attending to cultural meanings and local contexts when understanding parenting experiences.

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Section: Discussionsupporting

confidence: 89%

Parenting Children with Intellectual and Developmental Disabilities in Asian Indian Families in the United States

Zechella

Raval

2015

J Child Fam Stud

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“…The presentation of a mixed impact upon siblings' lives is upheld within existing literature (McGraw & Walker 2007;Atkin & Tozer 2011) as is concern about the future (Benderix & Sivberg 2007;Rawson 2009). Previous studies similarly present a wide range of sibling roles and relationships with the disabled person that change over time (Rigney 2009;Meadan et al 2010). Prior research has identified the presence of tangible benefits through association with intellectual disability in childhood (Moyson & Roeyers 2012), however, the presence of tangible benefit in adulthood is rarely reported.…”

Section: Discussionmentioning

confidence: 99%

Adult Siblings Consider the Future: Emergent Themes

Davys

Mitchell

Haigh

2015

Research Intellect Disabil

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“…By focusing on sibling perspectives it addressed an imperative to include the voice of siblings in research on their experiences (Arnold et al, 2012;Heller et al, 2008;Meadan et al, 2010). As in previous studies focusing on sibling perspectives and experiences, the participants provided valuable insight into their relationships and needs (Holl & Morano, 2014;Moyson & Roeyers, 2011Petalas, Hastings, Nash, Dowey, & Reilly, 2009;Rawson, 2009) The study fills several gaps in in the extant research on siblings by focusing on adult (as opposed to child or adolescent) sibling relationships and on those involving brothers and sisters with severe (as opposed to moderate) disabilities (Rossiter & Sharp, 2001).…”

Section: Discussionmentioning

confidence: 99%

“…This research has shown mixed but generally neutral or positive results (Heller & Arnold, 2010;Heller et al, 2008;Meadan, Stoner, & Angell, 2010). In their meta-analysis of 25 published studies from 1972-1999, Rossiter and Sharpe (2001 found a small negative effect on sibling psychological development as a result of having a brother or sister with intellectual disability (ID).…”

Section: Adult Sibling Relationships With Brothers and Sisters With Smentioning

confidence: 99%

“…Findings from the current study will provide more information on the dynamics of sibling relationships that may be useful in supporting individuals with severe disabilities, their siblings, and their families. Meadan et al (2010) raised the importance of hearing from siblings themselves about their experiences and needs. We collected adult siblings' perspectives to examine their views on these relationships and the contextual components that impacted relationship quality.…”

Section: Adult Sibling Relationships With Brothers and Sisters With Smentioning

confidence: 99%

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Adult Sibling Relationships With Brothers and Sisters With Severe Disabilities

Rossetti

Hall

2015

Research and Practice for Persons with Severe Disabilities

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The purpose of this qualitative study was to examine perceptions of adult sibling relationships with a brother or sister with severe disabilities and the contexts affecting the relationships. Adult siblings without disabilities (N = 79) from 19 to 72 years of age completed an online survey with four open-ended questions about their relationship with their brother or sister with intellectual and developmental disabilities (IDD) and extensive or pervasive support needs. Inductive analysis yielded findings related to perceptions of the sibling relationship and contexts that influence the sibling relationship. Over half of the relationships were described as being close.The emotional impact of the relationships included feelings of guilt and joy, as well as frustration and stress that were often related to current caregiving and future planning responsibilities. The contextual factors influencing relationship development included several characteristics of their brother or sister with IDD related to his or her disability, as well as sibling proximity.Implications for research and practice related to sibling relationships are provided for professionals, families, and the siblings themselves.

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Review of Literature Related to the Social, Emotional, and Behavioral Adjustment of Siblings of Individuals with Autism Spectrum Disorder

Cited by 114 publications

References 34 publications

Parenting Children with Intellectual and Developmental Disabilities in Asian Indian Families in the United States

Parenting Children with Intellectual and Developmental Disabilities in Asian Indian Families in the United States

Adult Siblings Consider the Future: Emergent Themes

Adult Sibling Relationships With Brothers and Sisters With Severe Disabilities

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