Review of Cross-Cultural Issues Related to Quality of Life After Spinal Cord Injury

Tate, Denise G.; Forchheimer, Martin

doi:10.1310/sci2003-181

Cited by 20 publications

(27 citation statements)

References 50 publications

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“…Study participants scored their QoL as rather satisfying. This is in accordance with previous studies (12,34). Overall, the associations between SHCs and QoL were surprisingly weak.…”

Section: Secondary Health Conditions and Quality Of Lifesupporting

confidence: 92%

Secondary health conditions and quality of life in persons living with spinal cord injury for at least ten years

Adriaansen¹,

Ruijs²,

Koppenhagen³

et al. 2016

J Rehabil Med

154

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Secondary health conditions are common among persons with long-term spinal cord injury and the following secondary health conditions were independently associated with lower quality of life: musculoskeletal pain, pressure ulcers, problematic spasticity, and constipation. Minimizing the impact of secondary health conditions should be a priority in the long-term care of persons with spinal cord injury.

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“…Study participants scored their QoL as rather satisfying. This is in accordance with previous studies (12,34). Overall, the associations between SHCs and QoL were surprisingly weak.…”

Section: Secondary Health Conditions and Quality Of Lifesupporting

confidence: 92%

Secondary health conditions and quality of life in persons living with spinal cord injury for at least ten years

Adriaansen¹,

Ruijs²,

Koppenhagen³

et al. 2016

J Rehabil Med

154

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“…[H1] Quality of life QOL in patients with SCI is most often defined by the ability of patients to be independent of assisted-care and hold meaningful employment. 155 The most frequently used subjective measure of QOL is the Satisfaction with Life Scale (SWLS) and the most commonly used objective measure is the Short-form 36 (SF-36). 156 A new scale to assess QOL in patients with SCI is the SCI-QOL, a patient-reported outcome measure consisting of 18 domains, including metrics for physical, emotional and social aspects 157 .…”

Section: [H2] Prehospital Transport and Hospital Care Settingmentioning

confidence: 99%

Traumatic spinal cord injury

Ahuja

Wilson

Nori

et al. 2017

Nat Rev Dis Primers

1,378

1,166

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Traumatic spinal cord injury (SCI) has devastating consequences for the physical, social and vocational well-being of patients. The demographic of SCIs is shifting such that an increasing proportion of older individuals are being affected. Pathophysiologically, the initial mechanical trauma (the primary injury) permeabilizes neurons and glia and initiates a secondary injury cascade that leads to progressive cell death and spinal cord damage over the subsequent weeks. Over time, the lesion remodels and is composed of cystic cavitations and a glial scar, both of which potently inhibit regeneration. Several animal models and complementary behavioural tests of SCI have been developed to mimic this pathological process and form the basis for the development of preclinical and translational neuroprotective and neuroregenerative strategies. Diagnosis requires a thorough patient history, standardized neurological physical examination and radiographic imaging of the spinal cord. Following diagnosis, several interventions need to be rapidly applied, including haemodynamic monitoring in the intensive care unit, early surgical decompression, blood pressure augmentation and, potentially, the administration of methylprednisolone. Managing the complications of SCI, such as bowel and bladder dysfunction, the formation of pressure sores and infections, is key to address all facets of the patient's injury experience.

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“…10 QoL has been found to be diminished following SCI and may be affected by personal factors, such as sociodemographic and psychological factors, or cultural factors such as race and ethnicity. 11–13 QoL may also be affected by economic and environmental factors, such as accessibility to healthcare, quality of education, adequacy of housing and opportunities for employment. 11 14 Specifically, paid employment and time since injury has previously emerged as important cross-cultural predictors of QoL after SCI.…”

Section: Introductionmentioning

confidence: 99%

“… 11–13 QoL may also be affected by economic and environmental factors, such as accessibility to healthcare, quality of education, adequacy of housing and opportunities for employment. 11 14 Specifically, paid employment and time since injury has previously emerged as important cross-cultural predictors of QoL after SCI. 15 Additionally, participation in home, social and leisure activities have been shown to have a positive effect on QoL.…”

Section: Introductionmentioning

confidence: 99%

Quality of life among individuals with rugby-related spinal cord injuries in South Africa: a descriptive cross-sectional study

et al. 2018

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ObjectivesRugby-related spinal cord injuries (SCIs) are rare but life altering and traumatic events. Little is known about the long-term consequences and outcomes of players who have sustained these injuries. This study investigated current quality of life (QoL) and factors associated with QoL, among individuals with rugby-related SCI in South Africa, by using the International Classification of Functioning, Disability and Health (ICF) framework.DesignDescriptive cross-sectional study.SettingRugby-related SCI population of South Africa, as captured in the BokSmart/Chris Burger Petro Jackson Players’ Fund database.ParticipantsNinety (n=90) of the 102 eligible players on the database agreed to participate in the study.Main outcome measureThe relationship between QoL, as measured with the WHO Quality of Life questionnaire (WHOQOL-BREF) and specific independent variables (demographic information, level of independence and participation in various activities and life roles) was investigated. Variables that were significantly associated with QoL in bivariate analyses were included in multiple linear regression analyses.ResultsThe mean score and SD of the WHOQOL-BREF was 15.1±2.3 arbitrary units. Participation (an ICF framework construct) and income were significantly associated with overall QoL (p<0.001). Participation was the only variable significantly associated with all QoL subdomains (p<0.001). Additionally, number of health concerns, type of healthcare (public vs private) and level of education were significantly associated with various QoL domains (p<0.001).ConclusionsOn average, these individuals with rugby-related SCI presented with higher QoL scores than other comparable SCI studies. However, lower levels of participation and income, certain levels of education, increased health concerns and use of public healthcare were associated with lower levels of QoL. Sporting bodies have a responsibility to optimise player welfare, by acting on the modifiable factors associated with QoL.

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Review of Cross-Cultural Issues Related to Quality of Life After Spinal Cord Injury

Cited by 20 publications

References 50 publications

Secondary health conditions and quality of life in persons living with spinal cord injury for at least ten years

Secondary health conditions and quality of life in persons living with spinal cord injury for at least ten years

Traumatic spinal cord injury

Quality of life among individuals with rugby-related spinal cord injuries in South Africa: a descriptive cross-sectional study

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