Reversal of the British trends in place of death

Gomes, Bárbara; Calanzani, Natália; Higginson, IJ

doi:10.1136/bmjspcare-2012-000264.18

Cited by 10 publications

(15 citation statements)

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“…9 The proportion of deaths at home increased slowly but steadily-from 18.3% in 2004 to 20.8% in 2010. 5 This is a welcome reversal of the previous trend towards a decrease in home deaths, which in 2008 had been predicted to fall to 10% by 2030. 11 This latest trend mirrors that reported in the US, where hospital deaths have decreased to 36%.…”

Section: Where Do People Die?mentioning

confidence: 95%

“…National and local policies now focus on facilitating home deaths, and recently there has been a small increase in the proportion and absolute number of people dying at home. 5 The demographics of deaths across Europe are changing with the ageing population, with deaths from dementia, cancer, and chronic diseases becoming more common. 6 7 Caring for such patients in hospital will probably become unsustainable in terms of capacity, cost, and patient satisfaction.…”

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confidence: 99%

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Care of the dying patient in the community

Collis

Al-Qurainy

2013

BMJ

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Section: Where Do People Die?mentioning

confidence: 95%

mentioning

confidence: 99%

Care of the dying patient in the community

Collis

Al-Qurainy

2013

BMJ

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“…There is increasing medicalization of dying, and the trend is for increasing numbers of deaths to occur in hospitals Sarmento, (2016). Despite efforts to develop policies that enable more people to die at home, only a minority of deaths do take place at home: only 17% in Norway in 2008, 21% in England in 2010, 23% in Belgium in 2007, 30% in Canada in 2004, 33% in Portugal in 2005, 34% in Italy in 2002, and 34% in the Netherlands in 2003(Gomes and Higginson, 2006Cohen et al, 2010;Houttekier et al, 2011;Gomes, 2012). Slovenia's National Institute of Public Health statistics show that 51.2% of people died in hospitals in 2013.…”

Section: How Many People Are Dying At Home?mentioning

confidence: 99%

“…Good interprofessional collaboration between specialized palliative care teams and primary health teams (PHTs) often leads to workplace learning, in which both parties can absorb each other's expertise and experience. New home palliative care interventions must respond to the challenges ahead, posed by rapidly aging populations with increased medical complexity and a growing need for home palliative care; these are international challenges (Gomes et al, 2012;2013).…”

Section: Call For Action For Policy and Practice On Local National mentioning

confidence: 99%

Palliative care in primary care: European Forum for Primary Care position paper

Pavlič

Aarendonk²,

Wens

et al. 2019

Prim Health Care Res Dev

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Aim:The aim of this position paper is to assist primary health care (PHC) providers, policymakers, and researchers by discussing the current context in which palliative health care functions within PHC in Europe. The position paper gives examples for improvements to palliative care models from studies and international discussions at European Forum for Primary Care (EFPC) workshops and conferences.Background:Palliative care is a holistic approach that improves the quality of life of patients and their families facing problems associated with terminal illness, through the prevention and relief of suffering by means of early identification and diligent assessment and treatment of pain and other problems, whether physical, psychosocial, or spiritual. Unfortunately, some Europeans, unless they have cancer, still do not have access to generalist or specialist palliative care.Methods:A draft of this position paper was distributed electronically through the EFPC network in 2015, 2016, and 2017. Active collaboration with the representatives of the International Primary Palliative Care Network was established from the very beginning and more recently with the EAPC Primary Care Reference Group. Barriers, opportunities, and examples of good and bad practices were discussed at workshops focusing on palliative care at the international conferences of Southeastern European countries in Ljubljana (2015) and Budva (2017), at regular conferences in Amsterdam (2015) and Riga (2016), at the WONCA Europe conferences in Istanbul (2015), Copenhagen (2016), and Prague (2017), and at the EAPC conference in Madrid (2017).Findings:There is great diversity in the extent and type of palliative care provided in primary care by European countries. Primary care teams (PCTs) are well placed to encourage timely palliative care. We collected examples from different countries. We found numerous barriers influencing PCTs in preparing care plans with patients. We identified many facilitators to improve the organization of palliative care.

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“…In the UK, approximately 49 000 children and young people have life-limiting or life-threatening conditions 1. Place of death (POD) is considered a key quality indicator in end-of-life care according to the Department of Health,2 and though home is considered the preferred POD for adults,3 paediatric evidence is limited 4 5. Even less is known about what influences this decision, as much research predates widespread access to paediatric hospices.…”

Section: Introductionmentioning

confidence: 99%

Factors associated with place of death for children in South Yorkshire: a retrospective cohort study

Renton

Mayer

Alison

et al. 2018

BMJ Support Palliat Care

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ObjectivesPlace of death (POD) is considered a key quality indicator for adult end of-life care, but paediatric evidence is limited. Data from Child Death Overview Panel (CDOP) databases provides an opportunity to describe trends in POD as regional paediatric palliative medicine (PPM) options have increased. Aims were to identify and describe trends in POD for children in South Yorkshire.MethodsRetrospective cohort study. Anonymised data extracted from five CDOP databases 2008–2015. Data included age, gender, ethnicity, postcode (outward code only), POD, classification and category of death. Descriptive statistical analysis using χ2 test was used to assess intergroup differences.Results748 deaths were notified from 2008 to 2015. Neonatal deaths were excluded, 46% (n=345). Of non-neonatal deaths (n=403), 58% (n=232) were ‘expected’. Of expected deaths (n=232), 19% (n=45) died in home, 19% (n=45) died in hospice and 61% (n=141) died in hospital. This was significantly different from comparable national data which showed considerably more hospital deaths. There was no significant change in POD over time.ConclusionHospital remains the POD for most children, whether deaths are ‘expected’ or not, suggesting specialised PPM should be expanded into the hospital setting. More research is needed regarding preference for POD. This study may help inform future service planning for PPM and hospice development.

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Reversal of the British trends in place of death

Abstract: Introduction Increased attention is being paid to the place where people die in order to provide choice and adequate care for terminally ill patients. Secular trends towards institutionalised dying have been reported in Britain and other developed world regions. Aims and Methods

Cited by 10 publications

References 0 publications

Care of the dying patient in the community

Care of the dying patient in the community

Palliative care in primary care: European Forum for Primary Care position paper

Factors associated with place of death for children in South Yorkshire: a retrospective cohort study

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