Abstract:Over the last two decades, there has been a greater readiness to view children as competent contributors to our understanding of children's lives and experiences. As a consequence of this, we have witnessed an increased focus on including children in research. When research aims at revealing children's perspectives, experiences, and emotions, we need to employ methods that are easy-touse means for obtaining their stories. In this paper, we argue that Q methodology is particularly suitable for facilitating chil… Show more
“…This is a well-known advantage of Q methodology [36,37] where respondents may have strong views about a subject but find it difficult or embarrassing to articulate them.…”
Purpose-This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services.Methods-Q methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts).Results-Four distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition."Conclusions-Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, * Address correspondence to: Jenni Hislop, M.Sc., Newcastle University, Institute of Health and Society, Newcastle upon Tyne, United Kingdom. jenni.hislop@newcastle.ac.uk (J. Hislop).
Conflicts of Interest:The authors have no conflicts of interest or financial disclosures to report.
Disclaimer:The views expressed in this article are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health.
Europe PMC Funders GroupAuthor Manuscript J Adolesc Health. Author manuscript; available in PMC 2017 January 19.
Europe PMC Funders Author ManuscriptsEurope PMC Funders Author Manuscripts and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
KeywordsTransition; Q methodology; Chronic conditions; Shared viewpointsTransition is defined as "the purposeful, planned process that addresses the medical, psychosocial, educational, and vocational needs of adolescents and young adults with chronic medical and physical conditions as they move from child-centred to adult-oriented health care systems" [1]. Transfer is the event when responsibility for health care is passed from a pediatric to an adult provider. Some young people find transition difficult [2]. Suboptimal or needs-inappropriate transition are well documented nationally and internationally [3][4][5][6][7] and include poorer long-term health, social, and educational outcomes [8][9][10][11]. To improve services, policy-makers, and clinicians need to understand young people's approaches to their transitional care and what they view as important. Much of the evidence about young people's views on transition is specialty or co...
“…This is a well-known advantage of Q methodology [36,37] where respondents may have strong views about a subject but find it difficult or embarrassing to articulate them.…”
Purpose-This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services.Methods-Q methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts).Results-Four distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition."Conclusions-Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, * Address correspondence to: Jenni Hislop, M.Sc., Newcastle University, Institute of Health and Society, Newcastle upon Tyne, United Kingdom. jenni.hislop@newcastle.ac.uk (J. Hislop).
Conflicts of Interest:The authors have no conflicts of interest or financial disclosures to report.
Disclaimer:The views expressed in this article are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health.
Europe PMC Funders GroupAuthor Manuscript J Adolesc Health. Author manuscript; available in PMC 2017 January 19.
Europe PMC Funders Author ManuscriptsEurope PMC Funders Author Manuscripts and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
KeywordsTransition; Q methodology; Chronic conditions; Shared viewpointsTransition is defined as "the purposeful, planned process that addresses the medical, psychosocial, educational, and vocational needs of adolescents and young adults with chronic medical and physical conditions as they move from child-centred to adult-oriented health care systems" [1]. Transfer is the event when responsibility for health care is passed from a pediatric to an adult provider. Some young people find transition difficult [2]. Suboptimal or needs-inappropriate transition are well documented nationally and internationally [3][4][5][6][7] and include poorer long-term health, social, and educational outcomes [8][9][10][11]. To improve services, policy-makers, and clinicians need to understand young people's approaches to their transitional care and what they view as important. Much of the evidence about young people's views on transition is specialty or co...
“…The qualitative materials obtained through the interviews are used to verify the interpretation of the quantitative findings and to deepen and enrich the interpretations of the views. Previous studies have established that Q studies are appropriate in research contexts that involve young children (Ellingsen, Thorsen, & Størksen, 2014;Kelly, 2007). The playful sorting procedure, which is part of a Q study, makes it easier for children to express their views and experiences (Ellingsen, Størksen, & Stephens, 2010;Ellingsen et al, 2014).…”
Section: Methodsmentioning
confidence: 99%
“…Previous studies have established that Q studies are appropriate in research contexts that involve young children (Ellingsen, Thorsen, & Størksen, 2014;Kelly, 2007). The playful sorting procedure, which is part of a Q study, makes it easier for children to express their views and experiences (Ellingsen, Størksen, & Stephens, 2010;Ellingsen et al, 2014). In addition, the materials used in a Q study can be adapted for use among the study population, for example, by using images, short phrases or single words, thus enabling a more inclusive approach for participants who may require support in communicating their preferences (Ellingsen et al, 2014;Taylor, Delprato, & Knapp, 1994), such as the children in this study.…”
“…However, studies that have described childhood burn injury occurrence essential for targeted prevention strategies have largely relied on parent, caregiver, and burn expert accounts of children's vulnerabilities and related exposure to injury risks (Munro, Van Niekerk, & Seedat, 2006;Van Niekerk, 2007). This is despite an emerging accumulation of social science research that has increasingly recognized children as individuals who have the capacity to consider the health and social threats that face them and the appropriate responses to these (Driesnack, 2005;Epstein, Stevens, McKeever, & Baruchel, 2006).…”
mentioning
confidence: 99%
“…Although there are descriptions of child burn occurrence and prevention information from low-and middle-income contexts (WHO, 2011), child accounts to complement adult and expert perspectives are virtually absent, especially in paediatric burns research (see McDowell, Hyland, Harvey, et al, 2015), with little if any representation of the voices of children from marginalized contexts (see Coyne, Mathúna, Gibson, Shields, & Sheaf, 2013;Ellingsen, Thorsen, & Størksen, 2014;Feenstra et al, 2014). Researchers and practitioners may, therefore, through greater use of children's meaning-making capacities and experiences, be better placed to understand the risk exposures experienced by children and thereby develop more effective, child-centred burn prevention and psychosocial support for vulnerable children and families (McIntosh, Stephens, & Lyons, 2012;Reisenberg, 2008).…”
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.