2012
DOI: 10.1080/10508422.2012.729995
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Rethinking Research Ethics for Latinos: The Policy Paradox of Health Reform and the Role of Social Justice

Abstract: This article discusses the paradox of exclusion/inclusion: U.S. health policy prohibits Latinos who fall under certain classifications from accessing health services and insurance yet permits them to be "human subjects" in health research. We aim to advance the discussion of health research ethics post the Tuskegee syphilis experiment in Latinos by (a) tracing the impacts of policy exclusion and the social context of anti-Latino sentiment on Latinos' low participation rates in health research and inequitable a… Show more

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Cited by 13 publications
(9 citation statements)
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References 25 publications
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“…Estrada (2009) cites sources that illustrate the mistreatment of IMA-US by social and health agencies, which was expressed in the forms of race-based profiling, housing discrimination, educational neglect, inadequate health treatments. Related research supports findings indicating that, when conditions of inequality and injustice are found in the service delivery polices of welfare institutions, such services become iatrogenic, worsening health outcomes for the affected populations and compromising their trust in welfare organizations (Battiste 2011;Cacari-Stone and Avila 2012;Suleman et al 2018).…”
Section: Historical Trauma Frameworksupporting
confidence: 64%
“…Estrada (2009) cites sources that illustrate the mistreatment of IMA-US by social and health agencies, which was expressed in the forms of race-based profiling, housing discrimination, educational neglect, inadequate health treatments. Related research supports findings indicating that, when conditions of inequality and injustice are found in the service delivery polices of welfare institutions, such services become iatrogenic, worsening health outcomes for the affected populations and compromising their trust in welfare organizations (Battiste 2011;Cacari-Stone and Avila 2012;Suleman et al 2018).…”
Section: Historical Trauma Frameworksupporting
confidence: 64%
“…In sum, while data and evaluation have historically been used against AI/AN communities with much documentation of research abuse (Burhansstipanov, Bemis, & Petereit, 2008;Cacari-Stone & Avila, 2012;Reverby, 2009;Walters, Beltran, Huh, & Evans-Campbell, 2011), the HNCF leadership program demonstrates a highly integrated participatory evaluation listening approach that is congruent with fellowship values and educational methodologies. Moreover, it works to strengthen the capacity of the program to make a difference across Indian Country.…”
Section: Discussionmentioning
confidence: 99%
“…In the 1960s, public health discourse regarding Latina sexuality, fertility, and reproduction culminated in a systematic public health policy and practice aimed at controlling population growth through normative sterilization and abortion as a common birth control method among Latina women living in Puerto Rico. The outcome of these policies made women of childbearing age in Puerto Rico more than 10 times more likely to be sterilized than were women from the United States (Cacari- Stone & Avila, 2012). Today, Latina refugees and immigrants who have been taken into ICE custody at the detention camps (i.e., Irwin County Detention Center, Georgia) are the recent victims of forced sterilization (National Public Radio, 2020).…”
Section: Practice and Policy Implicationsmentioning
confidence: 99%