Rethinking disability: the social model of disability and chronic disease

Goering, Sara

doi:10.1007/s12178-015-9273-z

Cited by 268 publications

(157 citation statements)

References 10 publications

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“…Dependence on family, friends and the community is presented as a central yet frequently under-acknowledged barrier to health care access which is especially pertinent for people with disabilities. With the social model of disability definitions in mind [14], our study shows that how the prominent access barriers faced by our participants causes their impairments to become disabilities.…”

Section: Discussionmentioning

confidence: 86%

Access to health care for people with disabilities in rural Malawi: what are the barriers?

Harrison

Thomson

Banda

et al. 2020

Preprint

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Background People with disabilities experience significant health inequalities. In Malawi, where most individuals live in low-income rural settings, many of these inequalities are exacerbated by restricted access to health care services. This qualitative study explores the barriers to health care access experienced by individuals with a mobility or sensory impairment, or both, living in rural villages in Dowa district, central Malawi. In addition, the impact of a chronic lung condition, alongside a mobility or sensory impairment, on health care accessibility is explored. Methods Using data from survey responses obtained through the Research for Equity And CommunityHealth (REACH) Trust's randomised control trial in Malawi, 12 adult participants, with scores of either 3 or 4 in the Washington Group Short Set (WGSS) questions, were recruited. The WGSS questions concern a person's ability in core functional domains (including seeing, hearing and moving), and a score of 3 indicates 'a lot of difficulty' whilst 4 means 'cannot do at all'. People with cognitive impairments were not included in this study. All who were selected for the study participated in an individual in-depth interview and full recordings of these were then transcribed and translated.Results Through thematic analysis of the transcripts, three main barriers to timely and adequate health care were identified: 1) Cost of transport, drugs and services, 2) Insufficient health care resources, and 3) Dependence on others. Attitudinal factors were explored and, whilst unfavourable health seeking behaviour was found to act as an access barrier for some participants, community and health care workers' attitudes towards disability were not reported to influence health care accessibility in this study.Conclusions This study finds that health care access for people with disabilities in rural Malawi is hindered by closely interconnected financial, practical and social barriers. There is a clear requirement for policy makers to consider the challenges identified here, and in similar studies, and to address them through improved social security systems and health system infrastructure, including outreach services, in a drive for equitable health care access and provision.health and lack of it may be both an indicator and "contributory cause" [1] of a population's healthinequalities. An array of diverse barriers, occurring at various points along the pathways to care, restricts health care accessibility for many individuals and groups globally. Especially disproportionate though, is the extent and impact of the barriers encountered by the world's largest minority group:It is estimated that over one billion of the global population are disabled in some way and, with this figure on the rise, the World Health Organisation (WHO) has declared a need for more qualitative research in order to better understand the "lived experiences of people with disabilities" [2]. A recent systematic review [3] highlights an especially "urgent" requirement for research in low-and middlein...

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Section: Discussionmentioning

confidence: 86%

Access to health care for people with disabilities in rural Malawi: what are the barriers?

Harrison

Thomson

Banda

et al. 2020

Preprint

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“…Under the social model, disability is a 'social creation' (Shakespeare 2013) resulting from the 'lack of fit between a body and its social environment' (Goering 2015). Essentially, disability is reimagined as a form of social oppression (Oliver 1996;Finkelstein 1980;Abberley 1987), analogous to the exclusion of other minority groups (Hahn 1988).…”

Section: The Social Modelmentioning

confidence: 99%

“…Under the medical model, the concept of impairment is yoked to the concept of disability by virtue of the fact that disability is defined as the possession of an impairment (Sutherland 1981;Shakespeare 2002). In contrast, the social model severs these two terms: while the former is a 'private reality', the latter is a societal construct (Goering 2015). This idea is encapsulated in UPIAS' (1974) definition of disability as ' [t]he disadvantage or restriction of activity caused by a contemporary social organisation which takes little or no account of people who have physical impairments'.…”

Section: The Social Modelmentioning

confidence: 99%

Some Parents Are More Equal than Others: Discrimination against People with Disabilities under Adoption Law

Connell

2017

Laws

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Article 23 of the Convention on the Rights of Persons with Disabilities (CRPD) explicitly includes 'the adoption of children' as a right to which people with disabilities are equally entitled. Despite the CRPD having been in force for over nine years, research is yet to consider whether CRPD signatory states have brought their respective adoption regimes in line with their obligations under art 23 of the CRPD. Using the laws of the Australian state of Victoria by way of case study, this article aims to shed light on the difficulties people with disabilities still face when attempting to adopt children. In terms of methodology, this article conducts an interpretive critique of Victoria's adoption law against art 23 of the CRPD, which it interprets mainly through the lens of the social model of disability. Ultimately, this article finds that Victoria's adoption framework closely resembles the adoption regimes of many other CRPD signatories, yet it clearly fails to uphold Australia's obligations under the CRPD. This is both as a result of the words of the legislation as well as their implementation in practice. This article proposes a suite of changes, both legislative and cultural, to bring Victoria's adoption framework in line with art 23, which it hopes will serve as a catalyst for change in other CRPD signatory states.

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“…The social model of disability suggests that disability is largely socially situated or constructed, rather than caused by the individual's attributes [8]. This model separates impairment from disability; the term "impairment" is used to describe the body, such as the lack of a limb or the dysfunction of a particular organ or system, and the term "disability" to refer to the disadvantage caused by social structures rather than the impairment itself [9].…”

mentioning

confidence: 99%

Disability, Medicine, and Ethics

Johnson¹

2016

AMA Journal of Ethics

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Rethinking disability: the social model of disability and chronic disease

Cited by 268 publications

References 10 publications

Access to health care for people with disabilities in rural Malawi: what are the barriers?

Access to health care for people with disabilities in rural Malawi: what are the barriers?

Some Parents Are More Equal than Others: Discrimination against People with Disabilities under Adoption Law

Disability, Medicine, and Ethics

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