Restricted Eating in Preschoolers with Autism: Mother Stressors and Solutions

Burkett, Karen; Haggard, Marissa-Li; Rafelghem, Dawn Van; Harpster, Karen

doi:10.1007/s10803-021-05078-6

Cited by 6 publications

(6 citation statements)

References 31 publications

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“…Especially the difference in the sense of touch is effective in the emergence of nutritional problems such as food selectivity, difficulty in chewing, being obsessed with certain foods, and always eating that particular food (Şahan et al , 2021). These problems lead to various health problems in children; however, they also adversely affect their communication with their parents, cause stress and anxiety for the family and adversely affect the social and physical development of the child (Burkett et al , 2021).…”

Section: Introductionmentioning

confidence: 99%

Nutritional problems and body mass index of Turkish children with autism

Asil

Uçar

Tunay³

et al. 2022

NFS

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Purpose This study aims to evaluate the nutritional habits, eating behavior and nutritional status of children with autism. Design/methodology/approach This study was conducted with 60 boys and 16 girls diagnosed with autism (mean age: 8.3 ± 4.9 years). Research data were collected from parents of children with autism using a questionnaire form developed by researchers after literature searching. The height and body weight of the children were recorded, and body mass index (BMI) was calculated. Findings Almost half of the children except the 13–18 age group were overweight/obese according to BMI. Difficulty in giving new food was 73.1% in the 2–5 age group, 70% in the 6–12 age group and 40% in the 13–18 age group (p = 0.04). It was determined that the children refused to consume a median of 3 (1–8) types of food (p = 0.04) and were obsessed with consuming 2 (1–4) types of food and 1 (1–4) type of beverages. Additionally, milk and dairy products were refused significantly higher between 2–5 and 6–12 years than 13–18 years (p = 0.02). Also, it was found that age had an inverse effect on refusal food number (β = 0.38, 95% CI = −0.30 − −0.08, p = 0.01). In conclusion, obesity and nutritional problems such as food selectivity, food refusal and obsessive eating behavior are encountered in children with autism which affect children socially and physically and should not be ignored when planning the treatment of children with autism. Research limitations/implications The lack of a control group to compare the results of children with autism is an important limitation of the study. Originality/value This study fulfills a defined need to examine and evaluate Turkish children’s nutritional status, nutritional habits and eating behavior with autism.

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Section: Introductionmentioning

confidence: 99%

Nutritional problems and body mass index of Turkish children with autism

Asil

Uçar

Tunay³

et al. 2022

NFS

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“…Twenty-three papers were identified for synthesis from this search and are listed here alphabetically (Burkett et al, 2021 ; Burrows et al, 2008 ; Columna et al, 2020 ; DeGrace, 2004 ; DeGrace et al, 2014 ; Dickie et al, 2009 ; Epstein et al, 2019 ; Galbraith and Lancaster, 2020 ; Harwood et al, 2019 ; Keller et al, 2014 ; Kim et al, 2018 ; Kirkpatrick et al, 2019 ; Larson, 2006 , 2010 ; Marquenie et al, 2011 ; Naik and Vajaratkar, 2019 ; Potter, 2017 ; Redquest et al, 2020 ; Rios and Scharoun Benson, 2020 ; Schaaf et al, 2011 ; Shannon et al, 2021 ; Suarez et al, 2014 ; Tokatly Latzer et al, 2021 ) (see text footnote 2).…”

Section: Resultsmentioning

confidence: 99%

“…Most studies used interviews to collect data (DeGrace, 2004 ; Larson, 2006 , 2010 ; Dickie et al, 2009 ; Marquenie et al, 2011 ; Schaaf et al, 2011 ; DeGrace et al, 2014 ; Keller et al, 2014 ; Suarez et al, 2014 ; Potter, 2017 ; Kim et al, 2018 ; Epstein et al, 2019 ; Harwood et al, 2019 ; Naik and Vajaratkar, 2019 ; Columna et al, 2020 ; Redquest et al, 2020 ; Rios and Scharoun Benson, 2020 ; Shannon et al, 2021 ; Tokatly Latzer et al, 2021 ). The remaining studies used focus groups (Kirkpatrick et al, 2019 ; Burkett et al, 2021 ); Qualitative ethology (Burrows et al, 2008 ); and photovoice (Galbraith and Lancaster, 2020 ). A combined total of 301 parents/caregivers/families of autistic children aged between (3–18 years) were included across the studies, with study sample sizes ranging from three to 37 parents/caregivers.…”

Section: Resultsmentioning

confidence: 99%

“… 2 Note the following numbers are used to represent the 23 articles included as eligible for this meta-ethnographic synthesis: 1, Burkett et al, 2021 , 2, Burrows et al, 2008 , 3, Columna et al, 2020 , 4, DeGrace, 2004 , 5, DeGrace et al, 2014 , 6, Dickie et al, 2009 , 7, Epstein et al, 2019 , 8, Galbraith and Lancaster, 2020 , 9, Harwood et al, 2019 , 10, Keller et al, 2014 , 11, Kim et al, 2018 , 12, Kirkpatrick et al, 2019 , 13, Larson, 2006 , 14, Larson, 2010 , 15, Marquenie et al, 2011 , 16, Naik and Vajaratkar, 2019 , 17, Potter, 2017 , 18, Redquest et al, 2020 , 19, Rios and Scharoun Benson, 2020 , 20, Schaaf et al, 2011 , 21, Shannon et al, 2021 , 22, Suarez et al, 2014 , 23, Tokatly Latzer et al, 2021 . …”

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confidence: 99%

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Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation

Daly

Jackson²,

Lynch³

2022

Front. Psychol.

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Autistic children with sensory processing differences successfully navigate and engage in meaningful family daily occupations within home and community environments through the support of their family. To date however, much of the research on autistic children with sensory processing differences, has primarily been deficit focused, while much of the caregiver research has focused on issues of distress, burden, effort, and emotional trauma in coping with their child's diagnosis. This study aimed to conduct a qualitative evidence synthesis, using a meta-ethnographic approach to explore the gap identified in understanding successful occupational experiences of family participation and daily family routines when supporting an autistic child with sensory processing differences and to offer an alternative strengths-based perspective. Inclusion criteria were studies which were peer-reviewed qualitative design, published from 2000 to 2021, and that concerned parents/caregivers' perspectives of family occupations of children diagnosed with autism spectrum disorder. Studies were electronically searched in eight databases from October to December 2021 and 23 studies were identified which met the inclusion criteria. Noblit and Hare's seven step approach for conducting analysis in meta-ethnography was used, and three themes identified: (1) sensory processing differences in daily life, (2) what is hard about hard, and (3) orchestrating family life. Results identified the centrality of sensory experiences in understanding family life. Living with unpredictability while orchestrating certainty through routines was core to successful participation. This review provides insights into how parents negotiate the complexities of constructing family life when living with an autistic child. The results can inform the design of future interventions that specifically address the relationship between meaningful participation in family occupations and daily routines and sensory processing in autistic children.Systematic review registrationhttps://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42022298938, identifier CRD42022298938.

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“…where ARFID can co-occur [4,10,16,40,41]. Still, the support for the person with ARFID and co-occurring IDD is perceived as minimal by families, which could perhaps complicate the receipt of support for children with IDD exhibiting ARFID-like behaviours.…”

Section: Encountering the Arfid Diagnosismentioning

confidence: 99%

Obtaining an Avoidant Restrictive Food Intake Disorder diagnosis in The UK for Individuals with Intellectual and Developmental Disabilities: A Qualitative Study of Families’ Experiences

Desalesa,

Mejía-Buenaño

2024

Preprint

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Background The prevalence of Avoidant Restrictive Food Intake Disorder (ARFID) is generally low among the eating and feeding disorders population. The complexity of the diagnosis, along with its potential comorbidities (e.g., Intellectual and Developmental Disabilities), had led to difficulties in diagnosing ARFID, with limited support and treatment available. This study therefore asked families with lived experience of the ARFID diagnostic process and their access to support for diagnostic evaluation and understandings of available support. Method Data was collected through a qualitative approach using online semi-structured interviews investigating eight participants’ experiences of their children undergoing the ARFID diagnostic process and their access to support. Responses were subjected to thematic analysis. Results From thematic analysis, three major themes were identified: the ups and downs of diagnosis, pushing for support, and looking into the future. Conclusions Participants’ experiences surrounded the ‘lucky’ encounters with the ARFID diagnosis, where the limited support was emphasised. The findings highlighted the need for an improved ARFID diagnostic process for better awareness and support availability for families living with ARFID. Recommendations from study findings were provided for readers and researchers.

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Restricted Eating in Preschoolers with Autism: Mother Stressors and Solutions

Cited by 6 publications

References 31 publications

Nutritional problems and body mass index of Turkish children with autism

Nutritional problems and body mass index of Turkish children with autism

Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation

Obtaining an Avoidant Restrictive Food Intake Disorder diagnosis in The UK for Individuals with Intellectual and Developmental Disabilities: A Qualitative Study of Families’ Experiences

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