Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics

Lee, Sandra Soo‐Jin

doi:10.1080/15265161.2021.1905102

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Relational Ethics and Public Values1

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Cited by 2 publications

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“…Approaching genetic research as a form of gift-giving frames research in terms of relationships guided by moral responsibility. To accept a gift and to acknowledge it as such is to enter into commitments of a moral relationship that depends on fulfilling ethical principles of autonomy, beneficence, and justice (96,97). Greater transparency that enables inspection of research uses and actors must be part of a larger public conversation about what constitutes fairness and equity.…”

Section: Relational Ethics and Public Valuesmentioning

confidence: 99%

The Ethics of Consent in a Shifting Genomic Ecosystem

Lee

2021

Annu. Rev. Biomed. Data Sci.

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The collection and use of human genetic data raise important ethical questions about how to balance individual autonomy and privacy with the potential for public good. The proliferation of local, national, and international efforts to collect genetic data and create linkages to support large-scale initiatives in precision medicine and the learning health system creates new demands for broad data sharing that involve managing competing interests and careful consideration of what constitutes appropriate ethical trade-offs. This review describes these emerging ethical issues with a focus on approaches to consent and issues related to justice in the shifting genomic research ecosystem.

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Section: Relational Ethics and Public Valuesmentioning

confidence: 99%