Respite services for older people

Evans, David; Lee, Emmanuel

doi:10.1111/ijn.12096

Cited by 6 publications

(21 citation statements)

References 21 publications

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“…This review, in coherence with the literature, highlights that respite services generally lack exibility: This is in fact the conclusion of several studies on respite (7,61,79). A pattern seems to emerge in the countries represented in the review: Community organizations specialized in homecare (public and/or privately funded) offer respite on predetermined time slots, usually prescribed between traditional o ce hours (9 AM to 6 PM) (47). This lack of exibility could be explained in part by the rigidity of the structure of homecare services and the fact that its funding does not allow for customizable and punctual services (17,59,70).…”

Section: Discussionsupporting

confidence: 56%

“…4. Predictability (17,47,51,62,75) The level of predictability of services according to their needs.…”

Section: Duration (414247)mentioning

confidence: 99%

“…The last feature of the WHEN dimension is exibility in predictability; the respite service can be planned* or not. A study on respite services in South Australia found that most providers (93%) planned the respite care with the dyad, but that emergency or crisis services were still offered by 35% of them (47).…”

Section: Whenmentioning

confidence: 99%

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WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

Viens

Éthier

Provencher

et al. 2023

Preprint

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Background: As the world population is aging, considerable efforts need to be put towards developing and maintaining evidenced based care for older adults. Respite services are part of the selection of home care offered to informal caregivers. Although current best practices around respite are rooted in person centeredness, no integrated synthesis of its flexible components exists. Such a synthesis could offer a better understanding of key characteristics of flexible respite and, as such, support its implementation and use. Methods: To map the literature around the characteristics of flexible at-home respite for informal caregivers of older adults, a scoping study was conducted. Qualitative data from the review was analyzed using content analysis. The characterisation of flexible at-home respite was built on three dimensions: WHO, WHEN and HOW. To triangulate the scoping results, an online questionnaire was distributed to home care providers and informal caregivers of older adults. Results: A total of 42 documents were included in the review. The questionnaire was completed by 105 participants. The results summarize the characteristics of flexible at-home respite found in the literature. Flexibility in respite can be understood through three dimensions: 1) WHOis tendering it, 2) WHEN it is tendered and 3) HOW it is tendered. Firstly, human resources (WHO) must be compatible with the homecare sector as well as being trained and qualified to offer respite to informal caregivers of older adults. Secondly, flexible respite includes considerations of time, duration, frequency, and predictability (WHEN). Lastly, flexible at-home respite exhibits approachability, appropriateness, affordability, availability, and acceptability (HOW). Overall, flexible at-home respite adjusts to the needs of the informal caregiver and care recipient in terms of WHO, WHEN, and HOW. Conclusion: This review is a step towards defining more precisely flexible at-home respite. Flexibility of home care, in particular respite, as to be taken into account when designing, implementing and evaluating services.

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Section: Discussionsupporting

confidence: 56%

“…4. Predictability (17,47,51,62,75) The level of predictability of services according to their needs.…”

Section: Duration (414247)mentioning

confidence: 99%

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WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

Viens

Éthier

Provencher

et al. 2023

Preprint

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“…Definitions of respite also vary and this lack of consistency has been noted as problematic by researchers and policy makers (Evans & Lee, 2013;Rose, Noelker, & Kagan, 2015). Chappell, Reid, and Dow (2001, p. 202) define respite as a pause, a temporary cessation, or an interval of rest.…”

Section: What This Paper Addsmentioning

confidence: 99%

Exploring employment as a space of respite and resistance for family caregivers

Joseph¹,

Joseph

2019

Health Soc Care Community

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This paper challenges traditional definitions of work and leisure as separate concepts by suggesting that a space where individuals engage in employment (paid work) can, at the same time, be a space of respite (leisure) for employees who are also family caregivers. The research aims to better understand what caregivers perceive as ideal respite space, what that space means to them, how the space where employment takes place fits that ideal and what forces restrict caregivers’ ability to engage with employment as a space of respite. The term space is used because a caregiver's presence in a particular space (inside or outside of a place) gives it meaning that is simultaneously social, political and emotional. We report on a qualitative intrinsic case study of primary caregivers who are both employed and providing care to relatives with dementia. Using a reflective iterative process, 12 participants were recruited and interviewed from two Canadian provinces in 2013/14. Using a non‐temporal view of respite facilitated the identification of employment as an important space for caregivers to experience effective respite. Although this connection has been noted by other scholars, our research goes beyond this to identify four forces that create challenges for caregivers who want to maintain engagement with employment as a space of respite. These forces are internalised socialisation, family and organisational pressures and government policy. In addition, this research is one of the first to suggest ways that caregivers resist these forces. In concluding remarks, we reflect on the limitations of the study and offer suggestions for further research aimed at elucidating the spatiality of caregiver respite and the complex and dynamic aspects of resistance.

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“…It is a form of social service provided primarily to older couples in order for the spousal caregiver to have a temporary rest from caregiver's work and to reduce the probability of developing their own health issues . The client can stay at the residential respite care facility occasionally or regularly and is supported by a variety of professionals . However, using the service can involve feelings of guilt in the spousal caregiver , concerns as to whether the partner is receiving proper care , and worries about negative outcomes for the partner .…”

Section: Introductionmentioning

confidence: 99%

Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

Riekkola

Rutberg

Lilja

et al. 2018

Scandinavian Caring Sciences

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Aims The aim is to describe healthcare professionals’ perspectives on how they understand and promote older couples’ participation in everyday life when using residential respite care. Design and Methods Eighteen healthcare professionals with varying degrees of competence and from one residential respite care facility participated in four focus group interviews. Data were analysed through qualitative latent content analysis. Findings The findings revealed a broad, multifaceted view of participation and ways in which participation in everyday life is promoted by these professionals. Trustworthy relationships between professionals, spousal caregivers and clients were implicated. Promoting participation also necessitated that clients have access to meaningful activities. In addition, participation entailed an environment that supported various needs. Conclusion Promoting participation for older couples that are using respite care involves multifaceted perspectives that consider social–relational aspects including both the client and their spouse. Furthermore, attention is needed to the meaning a change of context between home and the respite care facility has on relationships, environments and activities in everyday life. Such an approach could benefit the couples’ shared everyday life situation and in a wider perspective, also influence their health and well‐being when ageing in place together.

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Respite services for older people

Cited by 6 publications

References 21 publications

WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

Exploring employment as a space of respite and resistance for family caregivers

Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

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