Respite Care Needs of Parents of Children with Developmental Disabilities

Abelson, A. Geoffrey

doi:10.1177/108835769901400204

Cited by 29 publications

(21 citation statements)

References 13 publications

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“…Families with children with disability were found to have troubles such as psychological and economical issues, future concerns, anxiety about child's possible accident or injury, breaking up the relationships between family and social environment, difficulty in treatment and education period, neglecting the other children, disappointment, feeling of guilt, communication with other members of the family and problems in sexual life [4][5][6][7][8][9][10].…”

Section: Introductionmentioning

confidence: 99%

Sexual Lives and Family Function of Women with Family Member with Disability: Educational Status and Income Level

et al. 2011

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This study was conducted to determine how sexual lives and family functions of women with low educational and income status who had family members with disability were influenced. The study included subjects with disability comprising 12.29% of Turkish population who have disabilities. Using the sampling formula in which the size of universe was known, the sample included the families with 183 children with disability and women. Study was conducted in the center of the province Kayseri with children with disability in families with low socio-economic status, attending a school and with the families living in a neighborhood with low socio-economic status. Low income level determined unhealthiness and 56.8% of the participants reported to have problems in sexual relation. Sexual lives and family functions of women with low educational status and income level were determined to be negatively more affected because of an additional problem; having a member with disability in the family.

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Section: Introductionmentioning

confidence: 99%

Sexual Lives and Family Function of Women with Family Member with Disability: Educational Status and Income Level

et al. 2011

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“…As a result of the study carried out by Yavuz and Çimen, 14 children with cerebral palsy are lacking in self care in areas including sleep-restinghaving fun, cleaning, oral care, toilet and eating. Abelson 15 determined that families need help related with issues such as preparing the food for the children, giving medications, bathing, oral care, feeding, putting on diapers, going to toilet, putting on clothes, protecting the child from danger and self-injuries inflicted by the children. The results of our study are in accordance with this literature.…”

Section: Discussionmentioning

confidence: 99%

“…A meeting at CYCD was carried out during January [1][2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17][18][19][20]2012 to present information about the study to the parents, to receive written and verbal consents and to enable them to meet with the researcher following the determination of the addresses of the disabled children registered in the home care service of CYCD. All home visits were made by a single researcher.…”

Section: Interventionmentioning

confidence: 99%

Investigation of the Effect of Level of Family Needs Coverage that Nursing Care Given to Family with Disabled Children

Bılsın¹,

Başbakkal²

2017

Turkish Journal of Family Medicine and Primary Care

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ÖZETAmaç: Bu araştırma, engelli çocukların ailesine verilen hemşirelik bakımının aile gereksinimini karşılama düzeyine etkisini incelemek amacıyla yapılmıştır. Yöntem: Yarı deneysel olarak planlanmıştır. Araştırmanın evrenini Ocak-Nisan 2012 tarihleri arasında Gaziantep ilinde bulunan Sosyal Hizmet ve Rehabilitasyon Merkezinin evde bakım hizmetine kayıtlı 0-18 yaş arasındaki engelli çocuklar ve aileleri oluşturmuştur. Araştırmanın örneklemini ise basit rastgele örnekleme yöntemiyle seçilen 30 zihinsel/fiziksel/işitme/görme engelli çocuk ve aileleri oluşturmuştur. Çalışmada ailelerin gereksinimlerini belirlemek ve belirlenen gereksinimlere göre hemşirelik girişimleri planlamak, uygulamak ve değerlendirmek için her aileye ziyaretler arasında en az bir ay süre bırakılarak, en az üç kez ev ziyaretleri yapılmıştır. Araştırmada "Çocuk Tanıtım Formu", "Aile Tanıtım Formu", "Aile Gereksinimlerini Belirleme Aracı (AGBA)" ve "Hasta Çocuk Tanılama Formu" kullanılmıştır. Bulgular: Hemşirelik bakımı öncesi ailelerin AGBA toplam puan ortalaması 64.13±9.79 iken hemşirelik bakımı sonrası 51.23±7.27 olduğu saptanmıştır. Sonuç: Bu sonuçlar, engelli çocuklar ve ailelerine ev ziyaretleri ile verilen hemşirelik bakımının ailelerin gereksinimlerini azaltmada etkili olduğunu göstermektedir.Anahtar kelimeler: Engelli çocuklar, hemşirelik bakımı, aile gereksinimi ABSTRACT Objective: The purposes of this study are to evaluate disabled children and their parents in an integrated manner, to determine the needs and to examine the effect of nursing care services on meeting the family needs. Method: The study was planned as quasi-experimental. The target population of the study consisted of disabled children between 0 and 18 years of age and their parents who have been registered to the homecare service provided by the Child and Youth Center Directorate in Gaziantep during January to April 2012. The sample group of the study consists of 30 mentally/physically/hearing/visually disabled children who were selected by the simple random sampling method. At least three home visits were made to each family during the study in order to determine the needs of the family and to determine the nursing needs related with these needs, to plan the approaches, apply and evaluate them with at least one month between each visit. Child Description Form, Caregiver and Family Description Form, Family Needs Assessment Tool (FNAT) and Child Diagnosis Form were used during the study. Results: The FNAT total mean score of family was found to be 64.13 ± 9.79 before nursing care and 51.23±7.27 after nursing care. Conclusion: These results demonstrate the effect of nursing care with home visit in reducing the needs of families with disabled children.

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“…Though the impact of services on children has received little scrutiny (Gerard, 1990;Preece, 2002), research has identified their positive impact upon parents of children with ASD. Stress levels are reduced in the majority of families where short breaks services are available (Chan & Sigafoos, 2001;Factor, Perry, & Freeman, 1990;Gray, 1994) and it is generally acknowledged that appropriate short breaks can help prevent family breakdown (Abelson, 1999;Boyd, 2002). The literature is too extensive to review fully in a paper of this length; however, Sigafoos (2000, 2001) comprehensively review research undertaken in this field.…”

mentioning

confidence: 95%

Short Breaks Services for Children with Autistic Spectrum Disorders: Factors Associated with Service Use and Non-use

Preece

Jordan

2006

J Autism Dev Disord

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Short break services in a UK county were studied using a postal survey of 256 families with a child with an autistic spectrum disorder (ASD). Results confirmed high degrees of stress and low levels of informal support for all families, but no significant difference in the informal support available to non-users as compared to users of short break services. Robinson & Stalker's (1990) 10-point dependency scale showed a significant difference in dependence and more difficult behaviors between children of users and non-users. However, a large number of non-users had children with high dependence (scoring >7 points). Access was denied by the age of the child (under 11) diagnosis (Asperger syndrome), educational placement (mainstream) and lack of social worker referral.

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Respite Care Needs of Parents of Children with Developmental Disabilities

Cited by 29 publications

References 13 publications

Sexual Lives and Family Function of Women with Family Member with Disability: Educational Status and Income Level

Sexual Lives and Family Function of Women with Family Member with Disability: Educational Status and Income Level

Investigation of the Effect of Level of Family Needs Coverage that Nursing Care Given to Family with Disabled Children

Short Breaks Services for Children with Autistic Spectrum Disorders: Factors Associated with Service Use and Non-use

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