Resilience in the context of dementia family caregiver mental health: A concept analysis

Poe, Abigail; Vance, David E.; Patrician, Patricia A.; Dick, Tracey K.; Puga, Frank

doi:10.1016/j.apnu.2023.06.015

Cited by 3 publications

(1 citation statement)

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“…Psychological resilience refers to the process to adapt well and grow with stress, adversity, and trauma by the American psychological association [ 29 ]. Many studies have also illustrated that strong psychological resilience of family caregivers is directly associated with high caregiver preparedness, mild caregiver burden, as well as good mental health and sleep quality [ 30 – 33 ], so it is almost seen as a positive psychological element to resist the negative effects of illness-related stress [ 34 ]. Furthermore, there is some research illustrating that psychological resilience can also exert a certain effect on regulating the relationship among acute procedure anxiety, coping styles, post-traumatic growth and illness uncertainty in individuals [ 35 – 37 ], and these are beneficial for shedding novel lights on illness uncertainty management among family members.…”

Section: Introductionmentioning

confidence: 99%

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

Yu,

Zhang,

et al. 2024

BMC Psychiatry

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Background Severe trauma accounts for a main factor inducing mortality for individuals aged < 45 years in China, which requires admission to intensive care unit (ICU) to receive comprehensive treatment. Family members of patients with unanticipated and life-threatening trauma during their ICU stays often experience psychosocial distress due to illness uncertainty. Previous research has shown that family function and psychological resilience are associated with illness uncertainty, respectively. However, little is known about the current situation and interacting mechanism between family function, psychological resilience, and illness uncertainty of family members for ICU trauma patients. Therefore, this study focused on exploring the current situation and relationships between these three factors in family members for ICU trauma patients. Methods The convenience sampling approach was adopted in the present cross-sectional survey, which involved 230 family members for ICU trauma patients from 34 hospitals in Chongqing, China. Related data were extracted with self-reporting questionnaires, which included sociodemographic characteristic questionnaire, the Family Adaptability, Partnership, Growth, Affection and Resolve Scale (APGAR), the 10-item Connor-Davidson Resilience Scale (10-CD-RISC) and the Mishel’s Illness Uncertainty Scale for Family Members (MUIS-FM). Pearson correlation analysis was conducted to examine the correlations between various variables. Additionally, a structural equation model was adopted to assess the mediating effect of psychological resilience on family function and illness uncertainty. Results According to our results, family members for ICU trauma patients experienced high illness uncertainty with moderate family dysfunction and low psychological resilience. Family function directly affected illness uncertainty and indirectly affected illness uncertainty through psychological resilience in family members of ICU trauma patients. Conclusions Family function and psychological resilience are the protective factors for reducing illness uncertainty. Healthcare providers should take effective measures, including family-functioning improvement and resilience-focused interventions, for alleviating illness uncertainty in family members of ICU trauma patients.

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Section: Introductionmentioning

confidence: 99%

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

Yu,

Zhang,

et al. 2024

BMC Psychiatry

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Resilience in family caregivers of Asian older people with dementia: An integrative review

Duangjina,

Hershberger,

Gruss

et al. 2024

Journal of Advanced Nursing

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AimTo identify factors associated with resilience in family caregivers of Asian older people with dementia based on Luthar and Cicchetti's definition of resilience.DesignIntegrative review of resilience in family caregivers of Asian older people with dementia reported by studies with quantitative and qualitative research designs.Data SourcesDatabases used for the literature search included CINAHL, PubMed, EMBASE, PsycINFO and Google Scholar.Review MethodsA total of 565 potentially relevant studies published between January 1985 and March 2024 were screened, and 27 articles met the inclusion criteria.ResultsFamily caregivers were most commonly adult children of care recipients, female and providing care in their home. Two themes emerged from the review: factors associated with adversity (dementia severity, caregiver role strain, stigma, family stress, female gender, low income and low education) and factors associated with positive adaptational outcomes (positive aspect of caregiving, social support and religiosity/spirituality).ConclusionIn our review of Asian research, four new factors—caregiver role strain, stigma, family stress and positive aspects of caregiving—emerged alongside those previously identified in Western studies. A paradigm shift was observed from a focus on factors associated with adversity to factors associated with positive adaptational outcomes, particularly after the issuance of the WHO's 2017 global action plan for dementia. However, a gap remains between WHO policy recommendations and actual research, with studies often neglecting to address gender and socioeconomic factors.ImpactThe review findings will broaden healthcare providers' understanding of resilience in dementia caregivers and use them to develop comprehensive programmes aimed at reducing factors associated with adversity and enhancing those associated with positive adaptational outcomes. This approach can be customized to incorporate Asian cultural values, empowering caregivers to navigate challenges more effectively.No Patient or Public ContributionThis paper is an integrative review and does not include patient or public contributions.

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“It Isn’t What I Had to Do, It’s What I Get to Do”: The Experiences of Black Family Caregivers Managing Dementia

Robinson-Lane,

Johnson,

Tuyisenge

et al. 2024

J Fam Nurs

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Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers ( n = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health.

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Resilience in the context of dementia family caregiver mental health: A concept analysis

Cited by 3 publications

References 70 publications

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

Psychological resilience in the relationship between family function and illness uncertainty among family members of trauma patients in the intensive care unit

Resilience in family caregivers of Asian older people with dementia: An integrative review

“It Isn’t What I Had to Do, It’s What I Get to Do”: The Experiences of Black Family Caregivers Managing Dementia

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