Reshaping understandings of disability associated with age-related vision loss (ARVL): incorporating critical disability perspectives into research and practice

McGrath, Colleen; Rudman, Debbie Laliberté; Trentham, Barry; Polgar, Jan Miller; Spafford, Marlee M.

doi:10.1080/09638288.2016.1212116

Cited by 12 publications

(22 citation statements)

References 67 publications

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“…In other words, disability was socially constructed partly through the integration of ableist and ageist attitudes into practices, systems, and societal structures, such as the design of buses and streets in ways that assume a normative level of vision and mobility. 37 In our study, community workers sometimes expressed that AT was neither relevant nor possible for persons with MCI/D. The comments from the participants seemed to imply that advanced age, combined with cognitive impairment, meant that citizens would have decreased motivation, interest, or capability to use advanced technologies.…”

Section: Discussionmentioning

confidence: 76%

<p>Community Health Care Workers’ Experiences on Enacting Policy on Technology with Citizens with Mild Cognitive Impairment and Dementia</p>

Holthe¹,

Halvorsrud²,

Thorstensen³

et al. 2020

JMDH

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Purpose: Assistive technologies and digitalization of services are promoted through health policy as key means to manage community care obligations efficiently, and to enable older community care recipients with mild cognitive impairment (MCI) and dementia (D) to remain at home for longer. The overall aim of this paper is to explore how community health care workers enacted current policy on technology with home-dwelling citizens with MCI/D. Participants and Methods: Twenty-four community health care workers participated in one of five focus group discussions that explored their experiences and current practices with technologies for citizens with MCI/D. Five researchers took part in the focus groups, while six researchers collaboratively conducted an inductive, thematic analysis according to Braun & Clarke. Results: Two main themes with sub-themes were identified: 1) Current and future potentials of technology; i) frequently used technology, ii) cost-effectiveness and iii) "be there" for social contact and 2) Barriers to implement technologies; i) unsystematic approaches and contested responsibility, ii) knowledge and training and iii) technology in relation to userfriendliness and citizen capacities. Conclusion: This study revealed the complexity of implementing policy aims regarding technology provision for citizens with MCI/D. By use of Lipsky's theory on street-level bureaucracy, we shed light on how community health care workers were situated between policies and the everyday lives of citizens with MCI/D, and how their perceived lack of knowledge and practical experiences influenced their exercise of professional discretion in enacting policy on technology in community health care services. Overall, addressing systematic technology approaches was not part of routine care, which may contribute to inequities in provision of technologies to enhance occupational possibilities and meaningful activities in everyday lives of citizens with MCI/D. Trial registration: NSD project number 47996.

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Section: Discussionmentioning

confidence: 76%

<p>Community Health Care Workers’ Experiences on Enacting Policy on Technology with Citizens with Mild Cognitive Impairment and Dementia</p>

Holthe¹,

Halvorsrud²,

Thorstensen³

et al. 2020

JMDH

View full text Add to dashboard Cite

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“…But these are also considered to be limited in practice, with significant barriers to communication and informationsharing (Salvador-Carulla et al, 2009). Closer links between scholarship in gerontology and disability studies have also been called for (see Grenier, Griffin, & McGrath, 2016;Kennedy, 2000;McGrath, Rudman, Trentham, Polgar, & Spafford, 2017;Naidoo, Putnam, & Spindel, 2012;Oldman, 2002;Putnam, 2007). Kennedy (2000) highlights policy as an area where scholars on disability and ageing could collaborate on issues of vital interest to younger and older disabled people.…”

Section: Introductionmentioning

confidence: 99%

Too many ‘false dichotomies’? Investigating the division between ageing and disability in social care services in Ireland: A study with statutory and non-statutory organisations

Leahy

2018

Journal of Aging Studies

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Initiatives that bridge the fields of ageing and disability are considered critical internationally but to be limited in practice. Taking Ireland as a case, and focusing on social care, this article reports on a study investigating the separate organization of older people's and disability services as perceived by those working in policy-making, service provision and advocacy. In Ireland, as in many countries, social care is administered separately for disabled people and older people. Perceptions of those working in social care are thought to play a role in successful boundary-crossing initiatives. This study suggests that while participants often perceived the administrative and funding boundary between the fields of ageing and disability as illogical, inflexible, and not delivering person-centred care or support, the divide between the two sectors is underpinned by conceptual issues, including the lack of a concept of disability with ageing. The article argues that ways are needed of articulating what it is to experience disability in older age that are shared between older people's and disability sectors. It discusses bio-psychosocial models of disability as a means of doing so, one that avoids a return to an equation between older age and impairment, disability or decline. It concludes that more interrogation is needed of the separate philosophical underpinnings of disability and older people's sectors, argues for greater linkages between the two fields and for more exploration of social constructions of the experience of disability in later life.

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“…A common experience for the participants was difficulty with the urban physical environment. The environmental production of disability is a key area for occupational therapy intervention through advocating for physical and social changes at a societal level, not focusing solely on individual remedial approaches to intervention (McGrath et al., 2016). For example, footpath maintenance and design improvements can mitigate the physical access issues listed in Table 3 and, when employed with universal design principles, improve access for a wide range of people, not just IVI who use scooters.…”

Section: Discussionmentioning

confidence: 99%

Self-regulation when using a mobility scooter: The experiences of older adults with visual impairments

McMullan

Butler

2019

British Journal of Occupational Therapy

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Introduction: Individuals with visual impairment may choose to use a mobility scooter for meaningful community mobility. This study investigated what self-regulation strategies older adults with visual impairment employed to ensure effective mobility scooter use. Method: This interpretive description study used multiple methods, including participant observation and semi-structured interviews. Among the 15 participants, a variety of visual impairments was represented. Results: Participants described the various reasons for getting a scooter. They also detailed risks and barriers that warranted self-regulation strategies including the environment, the visual impairment and the attitudinal approaches. Conclusion: Barriers to community participation are common for people with visual impairment. This study adds detailed accounts of strategies for the competent management of such barriers using self-regulation practices. These practices can be applied in the community to maintain/improve infrastructure accessibility, address public understanding of scooter use and educate individuals with visual impairment of strategies to improve their scooter use.

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Reshaping understandings of disability associated with age-related vision loss (ARVL): incorporating critical disability perspectives into research and practice

Cited by 12 publications

References 67 publications

<p>Community Health Care Workers’ Experiences on Enacting Policy on Technology with Citizens with Mild Cognitive Impairment and Dementia</p>

<p>Community Health Care Workers’ Experiences on Enacting Policy on Technology with Citizens with Mild Cognitive Impairment and Dementia</p>

Too many ‘false dichotomies’? Investigating the division between ageing and disability in social care services in Ireland: A study with statutory and non-statutory organisations

Self-regulation when using a mobility scooter: The experiences of older adults with visual impairments

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