Researching people with long term conditions

Letherby, Gayle

doi:10.1007/978-1-137-02125-0_4

Cited by 3 publications

(6 citation statements)

References 24 publications

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“…The aim was not to start with a theory and attempt to prove it, but to allow theories to emerge from the data. However, no study can be completely inductive as researchers may be influenced by their own political and theoretical assumptions and the fieldwork experience itself is likely to have an impact on analysis (Letherby, , ).…”

Section: The Studymentioning

confidence: 99%

The diagnosis and lived experience of polycystic ovary syndrome: A qualitative study

Tomlinson

Pinkney

Adams

et al. 2017

Journal of Advanced Nursing

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Section: The Studymentioning

confidence: 99%

The diagnosis and lived experience of polycystic ovary syndrome: A qualitative study

Tomlinson

Pinkney

Adams

et al. 2017

Journal of Advanced Nursing

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“…However,… whilst acknowledging the political aspects of the research process within which power, emotion, involvement, detachment are all implicit it is important not to define the research process itself as political activity … The political motivations of both researchers and the researched should be subject to critical scrutiny, not least in terms of the imagined or potential connection between respondents and researchers. (Letherby, 2009)…”

Section: Discussionmentioning

confidence: 99%

“…Story telling has engaged researcher attention as a method of accessing the personal world of illness … For the purpose of our inquiries, verbal accounts are more than vehicles for collecting personal information; they are the very processes of identity construction. (Koch and Krakik, 2001: 34) We were concerned to employ participatory methods to engage service user respondents, not least in an attempt to challenge the researcher/respondent balance of power (Koch et al, 1999, Letherby, 2009. Participatory action research (PAR) is defined as a 'systematic inquiry, with the participation of those affected by the problem, for the purposes of education and action or affecting social change' (Green et al, 1995: 2, cited in Minkler, 2010.…”

Section: Methods For Engagement: Approach and Representation/participmentioning

confidence: 99%

“…We were concerned to employ participatory methods to engage service user respondents, not least in an attempt to challenge the researcher/respondent balance of power (Koch et al, 1999, Letherby, 2009). Participatory action research (PAR) is defined as a ‘systematic inquiry, with the participation of those affected by the problem, for the purposes of education and action or affecting social change’ (Green et al, 1995: 2, cited in Minkler, 2010: S81).…”

Section: Methods For Engagement: Approach and Representation/participmentioning

confidence: 99%

“…But, it is essential to acknowledge that as researchers we are in a privileged position, not only in terms of access to multiple accounts, but also in terms of discipline training which enables us to engage in 'second order theorising' or what Giddens (1984) has called the 'double hermeneutic'. This involves 'interpretation', not just 'description' of respondents' as well as the researchers' analytical processes (Letherby, 2009).…”

Section: Analysing and Representingmentioning

confidence: 99%

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Employing participatory methods to engage an under-researched group: Opportunities and challenges

Pettinger

Letherby

Parsons

et al. 2018

Methodological Innovations

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In this article, we report on our experience of working on an exploratory project where the primary objective was to involve homeless service users with food-based participatory qualitative approaches. The project FLM aimed to explore food experiences and behaviours in a sample of users of homelessness services in a south west UK coastal city, in order to create solutions to improve their wellbeing. A mixture of qualitative methods was used, including observations, photo-elicitation and focus group discussions. We aimed to be participatory and 'creative' in our approach and in our analysis. Here, we focus on detailing and critiquing our approach to the collection and analysis of data.

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Participatory food events as collaborative public engagement opportunities

Pettinger

Parsons

Letherby

et al. 2019

Methodological Innovations

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There is an urgent need to ‘get creative’ with the way we tackle social and nutritional inequalities. The Food as a Lifestyle Motivator (FLM) project has explored the use of creative participatory approaches to engage ‘harder to reach’ communities in dialogues to improve their well-being and life skills. Preliminary findings have confirmed that food can be a powerful catalyst for social inclusion with the potential to empower ‘marginalised’ individuals. Part of this exploratory study has involved two participatory food events (November 2015 and November 2016) run in a local day centre for drug and alcohol rehabilitation. The aim of these events was to bring together key stakeholders (from the service user and provider communities) to exchange food-based knowledge, using collaborative and co-creative participatory approaches. Following ethical clearance, a range of data were collected at the events to assess their ‘social impact’. These consisted of (1) audio interviews (service providers and users), (2) oral surveys (service users and key workers) and (3) observations of social cooking and eating engagement, and creative visual arts (photography, collage, food games and quizzes). In this article, we detail how the range of creative approaches used has successfully engaged individuals (average attendance: n = 80, service users: n = 32) to participate in these food-themed events. We reflect on the overarching themes from data capture of the social and therapeutic aspects of food (activities). We also reflect on the collation (and curation) of findings, systematically critiquing the approaches used, including consideration of ethics, and drivers for engagement. Finally, we consider how the utility of such creative approaches can optimise public engagement activities, not only to enhance research impact but also to inform collaborative developments with and between service users, service providers and other stakeholders, with the potential to lead to transformative food-related changes.

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Researching people with long term conditions

Cited by 3 publications

References 24 publications

The diagnosis and lived experience of polycystic ovary syndrome: A qualitative study

The diagnosis and lived experience of polycystic ovary syndrome: A qualitative study

Employing participatory methods to engage an under-researched group: Opportunities and challenges

Participatory food events as collaborative public engagement opportunities

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