Research participants' perspectives about the return of uninformative genomic test results in a clinical research setting
Leila Jamal,
Makenna May,
Michael R. Setzer
et al.
Abstract:The majority of genomic sequencing and microarray results are clinically uninformative, meaning that they do not suggest a need for any behavioral action or medical intervention. Prior studies have shown that recipients of uninformative genomic testing results (“uninformative results” hereafter) may incorrectly interpret them to imply a lowered risk of disease or false reassurance about future health risks. Few studies have examined how patients understand uninformative results when they are returned in a rese… Show more
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