Research and practice hand in hand: the experience of promoting research of benefit to people with learning disabilities from within the NHS

McBrien, Judith

doi:10.1177/1744987108089624

Cited by 2 publications

(2 citation statements)

References 6 publications

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“…The findings are promising, and offer potentially improved cut-off scores (Merwood et al, in preparation). Further research professionals have banded together and sought partners in the local universities to foster research with adults and children with developmental disabilities (McBrien, 2008) and this provides valuable support.…”

Section: Discussionmentioning

confidence: 99%

Screening Adults with Down's Syndrome for Early Signs of Dementia

McBrien

2009

Journal of Integrated Care

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If you would like to write for this, or any other Emerald publication, then please use our Emerald for Authors service information about how to choose which publication to write for and submission guidelines are available for all. Please visit www.emeraldinsight.com/authors for more information. About Emerald www.emeraldinsight.comEmerald is a global publisher linking research and practice to the benefit of society. The company manages a portfolio of more than 290 journals and over 2,350 books and book series volumes, as well as providing an extensive range of online products and additional customer resources and services.Emerald is both COUNTER 4 and TRANSFER compliant. The organization is a partner of the Committee on Publication Ethics (COPE) and also works with Portico and the LOCKSS initiative for digital archive preservation.

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Section: Discussionmentioning

confidence: 99%

Screening Adults with Down's Syndrome for Early Signs of Dementia

McBrien

2009

Journal of Integrated Care

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“…The Adult Down Syndrome Center in Chicago, Illinois, reported that 79% of adults presenting with a decline in mental function had treatable, reversible disorders that have been attributed to Alzheimer's disease (Chicoine & McGuire, ). McBrien () reported that adults with DS will be diagnosed with Alzheimer's disease at younger age, because of rapid aging.…”

Section: Alzheimer's Diseasementioning

confidence: 99%

Females with Down syndrome: Lost opportunities in primary care

Toler

2015

Journal of the American Association of Nurse Practitioners

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Purpose Nurse practitioners (NPs) need to be aware of the health disparities that exist between adult females with and without Down syndrome (DS). It is essential that necessary primary and preventive healthcare services are available to women with DS to maintain adequate health and quality of life, and reduce the occurrence of misdiagnosed or underdiagnosed treatable diseases. Data sources Review of published literature, DS society reports, and U.S. government reports. Conclusions A lack of agreed guidelines for the screening of adult females with DS contributes to unmet health needs in primary care for this population. Adequate promotion of health in all persons with disabilities, including the specific needs of women with DS, will help prevent the development of preventable secondary disabilities. Research shows that health promotion, screenings, and preventive care are overlooked or ignored in the female population with DS. Barriers to this care were consistent with misconceived attitudes and beliefs about adults with DS and a lack of training for primary care providers in caring for persons with disabilities. Implications for practice Although much research is needed, there are some resources for NPs who provide care for this vulnerable population. Screening for preventable conditions, such as obesity, sexually transmitted infections, and sexual exploitation, can improve the quality of life for adult women with DS.

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Research and practice hand in hand: the experience of promoting research of benefit to people with learning disabilities from within the NHS

Cited by 2 publications

References 6 publications

Screening Adults with Down's Syndrome for Early Signs of Dementia

Screening Adults with Down's Syndrome for Early Signs of Dementia

Females with Down syndrome: Lost opportunities in primary care

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