Reproductive Knowledge and Preferences of Adolescents and Adults with Cystic Fibrosis: A Web-Based Assessment

Tuchman, Lisa; Kalogiros, Ioanna D.; Forke, Christine M.; Schwarz, Donald F.; Kinsman, Sara B.

doi:10.1080/19317610903458960

Cited by 11 publications

(12 citation statements)

References 42 publications

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“…In these studies, gender was not significantly associated with confidence in medications and side effects in adolescents with inflammatory bowel disease in patients 16-18 years old, nor was it statistically significantly associated with self-reported medication adherence in HIV infected youth (Fishman et al, 2010;Navarra et al, 2013). There was also no gender difference between males and females with Cystic Fibrosis in knowledge of most areas of reproductive health (Tuchman et al, 2010).…”

Section: Gendermentioning

confidence: 65%

“…shows that both male and female patients have similar knowledge on most areas of reproductive health and have similar deficiencies in knowledge (Tuchman, Kalogiros, Forke, Schwarz, & Kinsman, 2010). While the information regarding the influence of gender in health literacy in adolescents is sparse, there is more information available in the adult literature.…”

Section: Gendermentioning

confidence: 99%

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Health Literacy in Adolescents With Sickle Cell Disease

Perry

Carter

Becker

et al. 2017

Journal of Pediatric Nursing

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Section: Gendermentioning

confidence: 65%

Section: Gendermentioning

confidence: 99%

Health Literacy in Adolescents With Sickle Cell Disease

Perry

Carter

Becker

et al. 2017

Journal of Pediatric Nursing

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“…[37][38][39] Thus, pregnancy planning should include a detailed discussion between the patient, the multi-disciplinary CF team and the multi-disciplinary obstetrics team. 40 Opportunity should be provided for the patient and partner, and where relevant other support persons, to meet with and discuss the various aspects of obstetric and post-natal care with the CF team and the obstetric team.…”

Section: Impact Of Cf On Maternal Outcomesmentioning

confidence: 99%

Pregnancy and cystic fibrosis: Approach to contemporary management

et al. 2014

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Over the previous 50 years survival of patients with cystic fibrosis has progressively increased. As a result of improvements in health care, increasing numbers of patients with cystic fibrosis are now considering starting families of their own. For the health care professionals who look after these patients, the assessment of the potential risks, and the process of guiding prospective parents through pregnancy and beyond can be both challenging and rewarding. To facilitate appropriate discussions about pregnancy, health care workers must have a detailed understanding of the various important issues that will ultimately need to be considered for any patient with cystic fibrosis considering parenthood. This review will address these issues. In particular, it will outline pregnancy outcomes for mothers with cystic fibrosis, issues that need to be taken into account when planning a pregnancy and the management of pregnancy for mothers with cystic fibrosis or mothers who have undergone organ transplantation as a result of cystic fibrosis.

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“…18 Available data suggest that women with CF lack important SRH information critical to health promotion and quality of life 6,19,20 and feel the timing and content of SRH discussions in current CF care are inadequate. 21 In addition to patient dissatisfaction, suboptimal SRH care may result in serious health implications, such as exposure to teratogenic drugs, unintended pregnancies, or hypercoagulability risks.…”

mentioning

confidence: 99%

“…4 In particular, young women with cystic fibrosis (CF) face important disease-specific SRH concerns, including pubertal and menstrual delay, increased risk of vulvovaginal candidiasis, higher incidence of urinary incontinence, problems with sexual functioning, concerns regarding contraceptive choice, potentially decreased fertility, and adverse effects of pregnancy. [5][6][7][8][9][10][11][12][13][14][15][16] As the median life expectancy for patients with CF is now in the fourth decade of life, 17 an increasing number of patients require access to preventive services and care relevant to adolescence and the transition to adulthood, including SRH.…”

mentioning

confidence: 99%

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

et al. 2016

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OBJECTIVE: To explore the attitudes, preferences, and experiences of patients with cystic fibrosis (CF) and CF providers toward sexual and reproductive health (SRH) care for young women with CF. METHODS:Young women with CF aged 18 to 30 years from a US CF care center and pediatric and adult CF program directors from a national sample participated in qualitative interviews investigating their experiences regarding SRH care and their attitudes and preferences toward SRH care provision in the CF setting. Interviews were audio-recorded, transcribed, and coded by using a thematic analysis approach.RESULTS: Twenty-two patient participants and 16 CF program directors were interviewed. Themes shared by both groups included the importance of SRH discussion in the CF care setting, patient and provider discomfort as a barrier to SRH care, and the need for SRH educational resources and provider training to improve SRH care. Providers highlighted the lack of standardization around SRH care in the current CF care model. Patients desired SRH educational resources coupled with early SRH discussions initiated by their CF provider. CONCLUSIONS:Both CF providers and patients agree that the CF provider has a fundamental role in providing CF-specific SRH care. Educational resources coupled with individualized SRH discussions may facilitate improved SRH care for young women with CF. Investigation into the implementation of SRH education and services into pediatric-onset chronic disease care models is needed.

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Reproductive Knowledge and Preferences of Adolescents and Adults with Cystic Fibrosis: A Web-Based Assessment

Cited by 11 publications

References 42 publications

Health Literacy in Adolescents With Sickle Cell Disease

Health Literacy in Adolescents With Sickle Cell Disease

Pregnancy and cystic fibrosis: Approach to contemporary management

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

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