Reproductive (In)Justice and Inequality in the Lives of Women with Intellectual Disabilities in Scotland

Wiseman, Phillippa; Ferrie, Joanna

doi:10.16993/sjdr.677

Cited by 20 publications

(32 citation statements)

References 39 publications

(47 reference statements)

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“…The most frequently reported outcomes of RSE by students with intellectual disability were understanding of contraception and what sexually transmitted diseases are, both reported in four studies (Löfgren‐Mårtenson 2012; Williams et al . 2014; Phasha and Runo 2017; Wiseman and Ferrie 2020). However, students with intellectual disability reported different outcomes as meaningful which were not mentioned by other stakeholders in the studies.…”

Section: Resultsmentioning

confidence: 99%

“…Students with intellectual disability reported 52 individual outcomes of RSE that they perceive as important. The most frequently reported outcomes of RSE by students with intellectual disability were understanding of contraception and what sexually transmitted diseases are, both reported in four studies (Löfgren-Mårtenson 2012; Williams et al 2014;Phasha and Runo 2017;Wiseman and Ferrie 2020). However, students with intellectual disability reported different outcomes as meaningful which Garwood and McCabe (2000) Measured by researchers Improvement in attitudes towards dating and intimacy 1 study: Garwood and McCabe (2000) Measured by researchers Improvement in attitudes towards sexual interaction 1 study: Garwood and McCabe (2000) Measured by researchers Improvement in attitudes towards masturbation 1 study: Garwood and McCabe (2000) Measured by researchers Improvement in attitudes towards homosexuality 1 study: Garwood and McCabe (2000) Measured by researchers STDs, sexually transmitted diseases; ID, intellectual disability.…”

Section: Outcomes Reported By Parents Teachers and Students In Furthe...mentioning

confidence: 98%

“…Nelson et al (2020);Phasha and Runo (2017);Wiseman and Ferrie (2020); Graff et al contraception is (including different options of contraception, its side effects, that sometimes contraception does not work, e.g. condoms can break, how to use it and how it fits in with family planning for the future)…”

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confidence: 99%

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A systematic review of relationships and sex education outcomes for students with intellectual disability reported in the international literature

Paulauskaite

Rivas

Paris

et al. 2022

J intellect Disabil Res

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Background Little is known about how to evaluate relationships and sex education (RSE) delivered to students with intellectual disability and what stakeholders perceive are important outcomes. The present study aimed to systematically review existing studies on outcomes of RSE, as the first step in the development of a core outcome set (COS) for students with intellectual disability. Method A systematic literature process included two stages: (1) searching for studies reporting on RSE outcomes for students with intellectual disability and (2) studies reporting on measurement properties (e.g. validity, reliability and responsiveness) of standardised instruments identified in stage 1. Results A total of 135 RSE outcomes were extracted from 42 studies: 43 outcomes for students in secondary education and 92 outcomes for students in further education. No RSE outcomes were reported for primary education. Outcomes referred to the human body, hygiene, relationships, sexuality, sex and its consequences, inappropriate and appropriate social and sexual behaviour, keeping safe, emotional vocabulary and positive self-esteem. Outcomes were predominantly knowledge-based, rather than relating to skills and attitudes development. Students with intellectual disability, parents and teachers perceive different RSE outcomes meaningful. Five instruments were used to measure the outcomes, but none have established psychometric properties with this population. Conclusions The comprehensive list of RSE outcomes for students with intellectual disability will be used to inform the next steps of a Core Outcome Set needed for RSE evaluations in research and education settings. There is an urgent need to develop standardised instruments validated for students with intellectual disability.

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Section: Resultsmentioning

confidence: 99%

Section: Outcomes Reported By Parents Teachers and Students In Furthe...mentioning

confidence: 98%

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A systematic review of relationships and sex education outcomes for students with intellectual disability reported in the international literature

Paulauskaite

Rivas

Paris

et al. 2022

J intellect Disabil Res

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“…7. However, a similar card method was used by Wiseman and Ferrie (2020) when researching reproductive rights and health with women who self-identified as having a learning disability. 8.…”

Section: Fundingmentioning

confidence: 99%

Researching relationality: Reflections on the use of concept cards during in-depth interviews

Saunders

2021

Methodological Innovations

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This article reflects on the use of concept cards during in-depth interviews when researching reproductive decision-making in the context of neoliberalism and postfeminism. As existing literature has shown, card methods are valuable in centring participants’ individual experiences through increased control and inclusion during data collection, and attention has been drawn to their use as an ethically attentive method that can elicit richer, more complex narratives than interviews alone. While these strengths initially led me to consider the cards as an appropriate ‘fit’ with my feminist methodological approach, on reflection, the cards also illuminated the relationality of experiences that my research was concerned with. I view this as occurring in two ways. First, participants’ use of the cards helped to uncover the intertwining of their reproductive decisions with the social and political world, therefore complicating the neoliberal prioritization of the individual. Second, the cards brought the relation between myself and the participants, and between the participants, to the forefront. The reflections in this article therefore offer new insights into what concept cards can achieve, as not only validating individual accounts, but as enhancing the relationality of knowledge production.

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“…"Professionals must regard each parent as an individual rather than as a member of a category" International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID SIRG) on Parents and Parenting (2008) Parents with ID are likely to be psychologically, socially, and financially disadvantaged, compared to their non-ID peers (Emerson & Brigham, 2013;Swift, Johnson, Mason, Shiyyab, & Porter, 2013;Wiseman & Ferrie, 2020). They are reported to have higher levels of depression, stress, and other psychological issues (Darbyshire & Stenfert Kroese, 2012; International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID SIRG) on Parents and Parenting, 2008).…”

Section: Introductionmentioning

confidence: 99%

How do Fathers With ID Experience Their Children Being Removed from Their Care Through the English Court System?

Pytlowana

Kroese

2021

Policy Practice Intel Disabi

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Background: Fathers with ID are likely to face many disadvantages when compared with non-ID parents, such as social and financial challenges and emotional trauma, including trauma due to having their children removed from their care. Services are required to support fathers with ID and tailor their practices to be accessible to this group of parents. Despite recommendations, many services continue to struggle to provide this.Aims: There are very few studies exploring the experiences of fathers with ID whose children have been removed by English courts.The aim of this study was to provide insights into the experiences of these fathers in order to inform practice guidelines on how fathers with ID can be best supported.Methods: Interpretative phenomenological analysis (IPA) was used to analyze interviews with five fathers. Results: IPA produced the following themes: The Court as Lion's Den, Fighting for my Role as a Father, and The Personal Cost of it All. Conclusions:The findings highlight that fathers with ID find the experience of their children being taken into care overwhelmingly painful. The processes by which these decisions are made are seen as unfair. Recommendations for practice improvement are offered.

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Reproductive (In)Justice and Inequality in the Lives of Women with Intellectual Disabilities in Scotland

Cited by 20 publications

References 39 publications

A systematic review of relationships and sex education outcomes for students with intellectual disability reported in the international literature

A systematic review of relationships and sex education outcomes for students with intellectual disability reported in the international literature

Researching relationality: Reflections on the use of concept cards during in-depth interviews

How do Fathers With ID Experience Their Children Being Removed from Their Care Through the English Court System?

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