Reproductive health in males with cystic fibrosis: knowledge, attitudes, and experiences of patients and parents

Development, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients

“…Other studies have conflicting data regarding this topic, with reports of between 25-90% of men being aware of CF's effect on their fertility and between 32-65% of women being aware of CF's potential effect on their fertility [3][4][5]17,20,22,23]. Despite these variations, it is clear that a complete understanding of how CF affects fertility is lacking in most populations.…”

“…Young or newly-transitioned adults may lack even basic knowledge because prior education was generally directed at a parent, despite the maturation and growing intellect of an aging pediatric patient. There are few studies that address parental knowledge of CF, and many of these specifically assess knowledge of sexual and reproductive health; results indicate varying levels of knowledge regarding these topics [3,4]. Since parents are an information source for their children and their knowledge level is varied, it is likely that some important information about CF may not be conveyed to a young patient [5,6].…”

Paternity in men with cystic fibrosis: a retrospective survey in France

“…They reported no more stress and accepted it as ''part of CF,'' but only 1/3 had had semen analysis to establish their fertility status. Only 50% of the parents knew that CF males may be infertile, but only 1/10 thought they had enough knowledge to talk about it with their child [28]. Patients also reported that they were told too late about the link between CF and reduced fertility.…”

Communication of information about reproductive and sexual health in cystic fibrosis. Patients, parents and caregivers' experience

“…Sexual development, puberty delay [2,3,[16][17][18][19][20] Semen analysis, small volume ejaculation [2,15,20] Infertility [2,3,14,15,[19][20][21][22] Menstrual cycle [3,8,17,19,20,23] Condom use-prevention of STDs-birth control [3,12,14,15,[23][24][25] Reproductive treatment options [2,3,14,16,[20][21][22][24][25][26][27][28] Antibiotic use and vulvovaginal candidiadis [14,25,26,29] Pregnancy and CF [3,14,[22][23]…”