Représentations par les médecins généralistes du rôle de l'entourage accompagnant le patient

Abstract

The aim of this study is to describe, from the perspective of general practitioners, the role of relatives and caregivers who accompany a patient in their consultation and treatment processes. 435 general practitioners filled out two questionnaires: the first was self administered and the second described specific clinical situations and the possible role of the family caregiver in the case of a patient with Alzheimer's diseases, Parkinson's disease, depression, epilepsy, asthma, cardiovascular disease, or type II diabetes. General practitioners think that overall they offer satisfactory responses to relatives' requests and concerns regarding the disease itself and its treatment. However, they do not feel skilled or qualified enough to answer them with regard to administrative or social questions. The relative's role is for the most part, perceived as positive, and seems to contribute to the efficacy of the care provided. This description corresponds to a new trend in modern medical practice, dominated by the burden of chronic and disabling diseases which implies, and in some cases requires, the need to involve a relative's presence and on-going support.

Development, validation, and administration of a treatment-satisfaction questionnaire for caregivers of dependent type 2 diabetic patients

“… 16 Implicit in the satisfaction is the degree of caregiver involvement, adherence to treatment, and lastly better care of these patients. 17 …”

General practitioner’s clinical practices, difficulties and educational needs to manage Alzheimer’s disease in France: analysis of national telephone-inquiry data

“…At more advanced stages, communication difficulties limit exchanges during consultations and the patient’s participation in his/her own care [5]. In addition, more than in other chronic diseases, health professionals insist on the importance of aiding families [6]. Often perceived as ‘incapable’ of being actors in their own health because of their cognitive deficits, AD patients frequently have the feeling of being excluded from their care, in favor of the principal caregiver, even at an early disease stage [7].…”

Proposition d’un outil d’aide à la négociation d’objectifs éducatifs pour le patient et son entourage : intérêts et limites pédagogiques

“…Il n'est jamais définitif et peut changer. Ainsi, de par l'importance de l'entourage dans la réalisation du partenariat soignant/soigné [10], les différents rôles et attitudes sont à considérer et les besoins éducatifs à prendre en compte au début de l'éducation thérapeutique et au cours du suivi éducatif. Bien entendu, il ne s'agit pas de réduire la relation de soin entre patient et entourage à la seule expression de besoins éducatifs.…”