Report: Parent-mediated Social Communication Therapy for Young Children with Autism

Pickles, Andrew; Couteur, Ann Le; Leadbitter, Kathy; Salomone, Erica; Cole-Fletcher, Rachel; Tobin, Hannah; Gammer, Isobel; Lowry, Jessica; Vamvakas, George; Byford, Sarah; Aldred, Catherine; Slonims, Vicky; Howlin, Patricia; Parr, Jeremy; Charman, Tony; Green, Jonathan

doi:10.12968/cypn.2016.24.33

Cited by 3 publications

(4 citation statements)

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“…In addition, the findings regarding the importance that parents see in providing security can guide interventions to support this aspect of parenting. Taken together, the results of the study provide a deeper understanding of the parenting experience of young children with autism and can help provide support for parents, particularly because they are increasingly appreciated as crucial agents of change in early interventions with young children with autism (Pickles et al, 2016;Rogers et al, 2021;Siller & Morgan, 2018).…”

Section: Discussionmentioning

confidence: 87%

Positive and challenging themes in parents’ perceptions of their relationships with their child with autism: Comparison between mothers and fathers

Moshe

Oppenheim

Slonim

et al. 2023

Autism

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Most studies of how parents of children with autism view the parent–child relationship used self-report questionnaires and focused on challenges. This study broadened the lens by interviewing parents using open-ended questions that provide an opportunity to raise challenging but also positive experiences. Seventy-five mother–father dyads were interviewed individually about their own and their spouses’ relationships with their preschooler, and content analyses of their responses revealed nine relationship themes. In descending order, the themes mentioned most frequently by mothers were “Security and Closeness,” “Love,” and “Tenderness and Sensitivity,” and by fathers were “Pleasure in Joint Activities,” “Security and Closeness,” and “Guidance.” Positive themes were more common than challenging themes. Finally, more mothers mentioned the themes “Love,” “Tenderness and Sensitivity,” “High Involvement and Care,” and “Difficulties” than did fathers, whereas more fathers mentioned the themes “Guidance,” “Pleasure in Joint Activities,” and “Limited Time with Child” than did mothers. The findings portray a nuanced view of the parenting experience of mothers and fathers of preschoolers with autism. Lay Abstract Most studies of how parents of children with autism see the parent–child relationship used questionnaires completed by the parents and focused on challenges. This study broadened the lens by interviewing parents using open-ended questions that provide an opportunity to raise challenging but also positive experiences. Seventy-five mother-father dyads were interviewed individually about their own and their spouses’ relationships with their preschooler, and we found nine relationship themes. In descending order, the themes mentioned most frequently by mothers were “Security and Closeness,” “Love,” and “Tenderness and Sensitivity,” and by fathers were “Pleasure in Joint Activities,” “Security and Closeness,” and “Guidance.” Positive themes were more common than challenging themes. Finally, more mothers mentioned the themes “Love,” “Tenderness and Sensitivity,” “High Involvement and Care,” and “Difficulties” than did fathers, whereas more fathers mentioned the themes “Guidance” and “Pleasure in Joint Activities” than did mothers. The findings portray a nuanced view of the parenting experience of mothers and fathers of preschoolers with autism.

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Section: Discussionmentioning

confidence: 87%

Positive and challenging themes in parents’ perceptions of their relationships with their child with autism: Comparison between mothers and fathers

Moshe

Oppenheim

Slonim

et al. 2023

Autism

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“…Capitalizing on neuroplasticity, there is clear evidence indicating the considerable positive impact of EI (Dawson et al, 2010). Long-term follow-up studies have shown that in a randomized clinical trial, 12 months of EI given by parents produced a measurable decrease in ASD symptom severity 6 years later (Pickles et al, 2016), including sustained improvements in social skills and communication with parents. There is growing evidence that early intensive intervention for ASD, including Part C EI services, improves performance on measures of cognitive abilities and enhances language and behavior (Dawson et al, 2010;Pickles et al, 2016;Wetherby et al, 2014).…”

Section: Benefits Of Part C Ei For Children With Asdmentioning

confidence: 99%

“…Long-term follow-up studies have shown that in a randomized clinical trial, 12 months of EI given by parents produced a measurable decrease in ASD symptom severity 6 years later (Pickles et al, 2016), including sustained improvements in social skills and communication with parents. There is growing evidence that early intensive intervention for ASD, including Part C EI services, improves performance on measures of cognitive abilities and enhances language and behavior (Dawson et al, 2010;Pickles et al, 2016;Wetherby et al, 2014). Evidence-based interventions are increasingly available that can be meaningfully embedded within natural learning environments (Wetherby et al, 2014(Wetherby et al, , 2018.…”

Section: Benefits Of Part C Ei For Children With Asdmentioning

confidence: 99%

Investigating a “Wait and See” Mindset Among Pediatric Health Care Providers

Edwards¹,

Kaiser²,

Stapel-Wax³

2021

Infants &Amp; Young Children

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In the United States, there is a widespread concern with not referring more infants and toddlers with a risk of or identified autism spectrum disorder (ASD) to Early Intervention (EI) under Part C of the Individuals with Disabilities Education Act (IDEA, 2004). Despite early signs and screening initiatives, most children with ASD are not referred for services covered by IDEA until after the age of 4 years. To explore the prevalence of and factors correlated with a potential "wait and see" mindset among one group of stakeholders influencing referral decisions, we disseminated an expert-reviewed survey to pediatric health care providers in a southeastern metro area (n = 99). They self-reported views on waiting to refer, perceived roadblocks to screening and referral, and viable recommendations. Most participants reported using a "wait and evaluate further" approach instead of "wait and see," and the large majority were not very comfortable discussing suspected ASD with parents of young children (birth to 5 years of age). Those with more years of experience reported being less likely to wait to refer an infant/toddler and more comfortable speaking with parents about suspected signs of ASD. We discuss findings and implications for a comprehensive, multisector approach to outreach and referral.

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“…Research on intervention within the first year of life is very limited, so far only a handful of studies have evaluated the feasibility and the efficacy of parent-mediated intervention for symptomatic infants before 15 months of age. Both Rogers et al (8) (11)], showed that symptomatic infants starting intervention before 15 months of age were significantly less likely to have a diagnosis of ASD at 3 years of age and showed more developmental gains in comparison to matched control groups of children who did not receive the intervention. These data are promising as they suggest that by providing intervention during the first phases of life, disability can be reduced and in a portion of individuals the full-blown diagnosis may perhaps even be prevented.…”

Section: Introductionmentioning

confidence: 99%

Case report: Preemptive intervention for an infant with early signs of autism spectrum disorder during the first year of life

et al. 2023

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Autism spectrum disorder (ASD) includes neurodevelopmental conditions traditionally considered to bring life long disabilities, severely impacting individuals and their families. Very early identification and intervention during the very first phases of life have shown to significantly diminish symptom severity and disability, and improve developmental trajectories. Here we report the case of a young child showing early behavioral signs of ASD during the first months of life, including diminished eye contact, reduced social reciprocity, repetitive movements. The child received a pre-emptive parent mediated intervention based on the Infant Start, an adaptation of the Early Start Denver Model (ESDM), specifically developed for children with ASD signs during the first year of life. The child here described received intervention from 6 to 32 months of age, in combination with educational services. Diagnostic evaluations performed at several time points (8, 14, 19, and 32 months) showed progressive improvements in his developmental level and ASD symptoms. Our case study supports the possibility of identifying ASD symptoms and providing services as soon as concerns emerge even during the first year of life. Our report, in combination with recent infant identification and intervention studies, suggests the need for very early screening and preemptive intervention to promote optimal outcomes.

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Report: Parent-mediated Social Communication Therapy for Young Children with Autism

Cited by 3 publications

References 0 publications

Positive and challenging themes in parents’ perceptions of their relationships with their child with autism: Comparison between mothers and fathers

Positive and challenging themes in parents’ perceptions of their relationships with their child with autism: Comparison between mothers and fathers

Investigating a “Wait and See” Mindset Among Pediatric Health Care Providers

Case report: Preemptive intervention for an infant with early signs of autism spectrum disorder during the first year of life

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