Replacing home visits with telephone calls to support parents implementing a sleep management intervention: findings from a pilot study and implications for future research

Stuttard, Lucy; Clarke, Susan E.; Thomas, Megan; Beresford, Bryony

doi:10.1111/cch.12250

Cited by 11 publications

(8 citation statements)

References 20 publications

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“…Our findings show that, despite developments in the content and delivery of SMIs, barriers to compliance and sustained engagement with an SMI remain and are wide ranging. Many were consistent with those identified by Tse and Hall (2008) and also align with professionals’ views (e.g., Stuttard, Clarke, et al, 2015). Implementing changes in bedtime routines, or how night wakings are managed, can be very demanding on parents’ emotional and physical resources.…”

Section: Discussionsupporting

confidence: 79%

“…Each intervention was subject to an outcomes and process evaluation. Findings of the outcomes evaluations are reported elsewhere (Stuttard, Beresford, et al, 2015; Stuttard, Clarke, Thomas, & Beresford, 2015). The process evaluation element investigated the experiences of delivering, or receiving and implementing, an SMI and comprised interviews with practitioners and parents.…”

Section: Methodsmentioning

confidence: 99%

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Parents’ experiences of psychoeducational sleep management interventions: A qualitative study of parents of children with neurodevelopmental disabilities.

Beresford

Stuttard

Clarke

et al. 2016

Clinical Practice in Pediatric Psychology

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Psychoeducational approaches to managing behavioural sleep problems in children with neurodisabilities are directed at the parent, increasing their knowledge and understanding of sleep and requiring them to change the way they manage sleep disturbance. Given parental engagement with and adherence to an intervention are critical to its success, it is important we understand parents' experiences of participating in interventions of this nature. It is surprising therefore that, to date, research in this area is extremely limited. This paper reports the findings from a qualitative study of 35 parents who had received a psychoeducational sleep management intervention delivered through one of the following modes: a half-day workshop (n=8); a four session group-delivered intervention (n=15); one-to-one work with a specialist sleep practitioner (n=12). The study was part of a larger programme of work evaluating sleep management interventions for children with developmental disorders and/or autistic spectrum conditions. Purposeful sampling was used to represent: intervention outcome, child's diagnosis, parents' education, and partner involvement in the intervention. Focus groups and individual interviews were used to gather data. The data were subject to a thematic analysis in relation to: a) parents' descriptions of the processes by which a sleep management intervention (SMI) leads to improvements in their child's sleep; b) parents' views of the factors which hinder the achievement of positive intervention outcomes; and c) parents' views on intervention intensity and mode of delivery. The implications of the findings in terms the design, content and delivery of such interventions are discussed.

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Section: Discussionsupporting

confidence: 79%

Section: Methodsmentioning

confidence: 99%

Parents’ experiences of psychoeducational sleep management interventions: A qualitative study of parents of children with neurodevelopmental disabilities.

Beresford

Stuttard

Clarke

et al. 2016

Clinical Practice in Pediatric Psychology

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show abstract

“…Behavioural sleep interventions (BSIs), seek to provide parents with strategies they can implement to encourage desired sleep behaviours by manipulating their child’s learned associations with sleep. BSIs can be delivered in a variety of modes including face-to-face ( Hiscock et al, 2015 ), telephone ( Stuttard et al, 2015 ), paper-based ( Gringras et al, 2012 ), and online/app based ( Mindell et al, 2006 ; Espie et al, 2012 ), making for the possibility of flexible and cost-effective interventions with wide-reach. BSIs have well demonstrated efficacy in randomised controlled trials for younger TD children, and older (up to 12 years of age) autism and attention-deficit hyperactivity disorder (ADHD) populations ( Mindell et al, 2006 ; Johnson et al, 2013 ; Hiscock et al, 2015 ).…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Investigation Into What Parents Want From an Online Behavioural Sleep Intervention for Children With Epilepsy

et al. 2021

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Many of the same sleep problems seen in typically developing (TD) children are frequently experienced by children with epilepsy (CWE). Behavioural sleep interventions (BSIs) are commonly and successfully used to treat these sleep problems in TD children and in some neurodevelopmental disorder populations. Therefore, BSIs should be effective in CWE, however, there are special seizure-related considerations for CWE and their parents which may be salient to consider in any future BSI development for this group. The current study sought to identify, from parents, if there were special considerations for the content and delivery of an online BSI for parents of CWE. Semi-structured interviews were conducted with nine mothers of CWE and thematic analysis was conducted on the interview data. Ten themes were apparent which represented what parents wanted from any online BSI for CWE. Parents wanted (i) other parents’ views and real-life experiences to be included, (ii) recognition of how changes over time may influence the appropriateness of using various sleep-management options, (iii) to be presented with a range of sleep management options from which they could select, (iv) personalised information and suggestions for behaviour-change options, (v) help to address child anxiety around sleep, (vi) for the advice and behaviour-change options to be practical, (vii) general educational information about sleep and the relationship between sleep and epilepsy, (viii) for parental worries and concerns to be acknowledged, (ix) to receive help, support, and reassurance around children’s sleep; and (x) to include the child in the intervention. It was clear that any online BSI would require specific adaptations and additions (to content and delivery format) to best meet the needs of parents of CWE. It is hoped that having identified what parents want from on online BSI for CWE will allow these factors to be acknowledged in future intervention development, with the intention to optimise parental engagement and intervention effectiveness. Practical suggestions for how these aspects could be integrated into any online BSI are suggested.

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“…Delivery of psychotherapy through synchronous digital or other communication technology, referred to here as telehealth (TH), has been used for some decades to enhance access to care. This delivery format overcomes obstacles to receiving therapy such as geographic distance (Kuulasmaa et al 2004 ), lack of access to resources due to financial constraints (Doss et al 2020 ; Stuttard et al 2015 ), and transport barriers (Syed et al 2013 ). In recent months, with the advent of the COVID-19 pandemic, TH use has risen in response to public health restrictions on in-person contact (Aafjes et al 2020 ).…”

mentioning

confidence: 99%

Exploring the Efficacy of Telehealth for Family Therapy Through Systematic, Meta-analytic, and Qualitative Evidence

McLean

Booth

Schnabel

et al. 2021

Clin Child Fam Psychol Rev

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Replacing home visits with telephone calls to support parents implementing a sleep management intervention: findings from a pilot study and implications for future research

Abstract: Background Resource constraints may inhibit the provision of appropriate interventions for children

Cited by 11 publications

References 20 publications

Parents’ experiences of psychoeducational sleep management interventions: A qualitative study of parents of children with neurodevelopmental disabilities.

Parents’ experiences of psychoeducational sleep management interventions: A qualitative study of parents of children with neurodevelopmental disabilities.

A Qualitative Investigation Into What Parents Want From an Online Behavioural Sleep Intervention for Children With Epilepsy

Exploring the Efficacy of Telehealth for Family Therapy Through Systematic, Meta-analytic, and Qualitative Evidence

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