Abstract:One of the assumptions that underpins the literature on spirituality is the belief that facing a terminal illness is a life crisis that intensifies the search for meaning, leaving individuals predisposed to embrace religion. To date, however, there is scant empirical research on the topic. This article seeks to make a contribution to this topic by reporting findings from a qualitative study that address the question of whether individuals embrace religious beliefs when faced with the challenge of a serious ill… Show more
“…They strove to maintain roles, as found by McGrath (2003). They perceived themselves foremost within roles they always held, rather than as patients.…”
Healthcare professionals need to recognize the subjectivity of the dying process. Dying individuals require support and options to maintain their personhood.
“…They strove to maintain roles, as found by McGrath (2003). They perceived themselves foremost within roles they always held, rather than as patients.…”
Healthcare professionals need to recognize the subjectivity of the dying process. Dying individuals require support and options to maintain their personhood.
“…She believes that her findings highlight the importance of maintaining a clear distinction between religion and a more generalized notion of spirituality, that is, finding meaning. 54,55 Palliative care researchers may make this distinction more frequently than other researchers who typically have measured spirituality and religiosity in terms of religious affiliation. Of 1117 empirical studies published in five palliative medicine/hospice journals, researchers assessed spirituality using variables such as spiritual well-being, meaning or transcendence (32%), followed by religious affiliation (29%), and spiritual/religious services provided (19%).…”
In recent years, medical and allied health publications have begun to address various topics on spirituality. Scholars have posited numerous definitions of spirituality and wrestled with the notion of spiritual pain and suffering. Researchers have examined the relationship between spirituality and health and explored, among other topics, patients' perceptions of their spiritual needs, particularly at the end of life. This paper summarizes salient evidence pertaining to spirituality, dying patients, their health care providers, and family or informal caregivers. We examine the challenging issue of how to define spirituality, and provide a brief overview of the state of evidence addressing interventions that may enhance or bolster spiritual aspects of dying. There are many pressing questions that need to be addressed within the context of spiritual issues and end-of-life care. Efforts to understand more fully the constructs of spiritual well-being, transcendence, hope, meaning, and dignity, and to correlate them with variables and outcomes such as quality of life, pain control, coping with loss, and acceptance are warranted. Researchers should also frame these issues from both faith-based and secular perspectives, differing professional viewpoints, and in diverse cultural settings. In addition, longitudinal studies will enable patients' changing experiences and needs to be assessed over time. Research addressing spiritual dimensions of personhood offers an opportunity to expand the horizons of contemporary palliative care, thereby decreasing suffering and enhancing the quality of time remaining to those who are nearing death.
“…She found that most did not seek explicitly religious comfort in response to their illness and that there was a degree of eclecticism in the religiospiritual concepts expressed by participants. 32 In a comparative study of cancer survivors and hospice patients, McGrath concluded that maintaining an intimate connection with life through family, friends, leisure, home, and work was just as important to individuals as transcendent meaning-making, religious or otherwise. 33 Palliative care researchers have increasingly recognized the importance of examining spiritual dimensions of end-of-life experience.…”
Section: Spirituality and Existentialismmentioning
Palliative care practitioners are now better able than ever before to ameliorate endof-life symptom distress. What remains less developed, however, is the knowledgebase and skill set necessary to recognize, assess, and compassionately address the psychosocial, existential, and spiritual aspects of the patient's dying experience. This review provides an overview of these areas, focusing primarily on empirical data that has examined these issues. A brief overview of psychiatric challenges in end-of-life care is complemented with a list of resources for readers wishing to explore this area more extensively. The experience of spiritual or existential suffering toward the end of life is explored, with an examination of the conceptual correlates of suffering. These correlates include:hopelessness, burden to others, loss of sense of dignity, and desire for death or loss of will to live. An empirically-derived model of dignity is described in some detail, with practical examples of diagnostic questions and therapeutic interventions to preserve dignity. Other interventions to reduce existential or spiritual suffering are described and evidence of their efficacy is presented. The author concludes that palliative care must continue to develop compassionate, individually tailored, and effective responses to the mounting vulnerability and increasingly difficult physical, psychosocial, and spiritual challenges facing persons nearing the end of life.
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