Reliability and validity of a self-efficacy instrument specific to sickle cell disease

Edwards, Robert; Telfair, Joseph; Cecil, Heather; Lenoci, Jennifer M.

doi:10.1016/s0005-7967(99)00140-0

Cited by 69 publications

(85 citation statements)

References 53 publications

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“…Disease-specific self-efficacy is the belief that one has control over the course and outcome of a particular disorder which, in this study, is sickle cell disease (SCD). Diseasespecific self-efficacy was operationalized by total score on the 9-item Sickle Cell Self-Efficacy Scale (Edwards, Telfair, Cecil, & Lenoci, 2000).…”

Section: Self-efficacy and Painmentioning

confidence: 99%

“…On the other hand, it has been demonstrated that high levels of selfefficacy in the presence of a chronic illness may act as an adaptational process in adjusting to symptoms and coping for children, adolescents, and adults (Edwards et al, 2000;Patterson & Blum, 1996;Rutter, 1993). Connections made by Bandura (1975) between self-efficacy and control have been used to explain the effectiveness of strategies used by holistic nurse practitioners for pain management including a range of both active (relaxation, imagery, biofeedback) and more passive (aromatherapy, massage) complementary, non-pharmacologic methods (Mattelaino, 2003).…”

Section: Chronic Illness Self-efficacy and The Conceptual Basis Of mentioning

confidence: 99%

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Outcome results of self-efficacy in children with sickle disease pain who were trained to use guided imagery

Dobson

2015

Applied Nursing Research

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Section: Self-efficacy and Painmentioning

confidence: 99%

Section: Chronic Illness Self-efficacy and The Conceptual Basis Of mentioning

confidence: 99%

Outcome results of self-efficacy in children with sickle disease pain who were trained to use guided imagery

Dobson

2015

Applied Nursing Research

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“…Questions of the "IBD-yourself" were generated from the available literature of general and diseasespecific self-efficacy measures. [11][12][13] A pre-test of the questionnaire was completed by four adolescent IBD patients to determine whether the questionnaire was comprehensible and consistent.…”

Section: Measurementsmentioning

confidence: 99%

Self-efficacy in adolescents with inflammatory bowel disease: A pilot study of the “IBD-yourself”, a disease-specific questionnaire

Zijlstra

Bie

Breij

et al. 2013

Journal of Crohn's and Colitis

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Background and aims: Successful transfer of adolescent IBD patients to an adult gastroenterologist requires anticipation of a changing role for patients and their parents. Self-efficacy has been demonstrated to be important for transfer readiness. We therefore developed an IBD-specific questionnaire (the "IBD-yourself") to assess self-efficacy in adolescent IBD patients visiting a transition clinic. Our aim was to evaluate the reliability of this questionnaire, and to describe the self-efficacy level of adolescent IBD patients, and the perceived self-efficacy level according to their parents. Methods: In a cross-sectional design, 50 IBD patients (aged 14-18 years) and 40 parents completed the "IBD-yourself" questionnaire. Internal reliability was assessed by standardised Cronbach's α. Median self-efficacy scores per domain were calculated. Results: The domains of the questionnaire for adolescents showed good to excellent internal consistency, with Cronbach's α ranging from 0.64 to 0.93. The domains of the parental questionnaire had Cronbach's α ranging from 0.47 to 0.93. Median self-efficacy scores of adolescents varied from 70 to 100%. In comparison with patient's self-assessment, parents thought that their child was more A v a i l a b l e o n l i n e a t w w w . s c i e n c e d i r e c t . c o m ScienceDirectJournal of Crohn's and Colitis (2013) 7, e375-e385 Downloaded from https://academic.oup.com/ecco-jcc/article-abstract/7/9/e375/427279 by guest on 07 June 2019 self-efficacious in knowledge of IBD and diagnostic tests, self-management of medication use, and transfer readiness. Length of time since first visit to the transition clinic was positively correlated with several domains of the questionnaire, such as independent behaviour at the outpatient clinic, and transfer readiness. Conclusion: The "IBD-yourself" questionnaire is a first step toward evaluating quality and efficacy of IBD transition programmes. Paediatric gastroenterologists should be aware that parents do not always accurately assess the self-efficacy of their child.

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“…Validated instruments measuring self-efficacy in adolescents with a variety of chronic conditions were not available. Instead, items from available selfefficacy instruments for diabetes [29], arthritis, [30] and sickle cell disease were selected [31]. These items were supplemented with items from readiness assessments available on the Internet in 2006, such as the California Healthy and Ready To Work (CHRTW) Transition Assessment Tool [32].…”

Section: Ability For Self-managementmentioning

confidence: 99%

Readiness to Transfer to Adult Care of Adolescents with Chronic Conditions: Exploration of Associated Factors

Staa¹,

Stege²,

Jedeloo³

et al. 2011

Journal of Adolescent Health

138

112

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Reliability and validity of a self-efficacy instrument specific to sickle cell disease

Cited by 69 publications

References 53 publications

Outcome results of self-efficacy in children with sickle disease pain who were trained to use guided imagery

Outcome results of self-efficacy in children with sickle disease pain who were trained to use guided imagery

Self-efficacy in adolescents with inflammatory bowel disease: A pilot study of the “IBD-yourself”, a disease-specific questionnaire

Readiness to Transfer to Adult Care of Adolescents with Chronic Conditions: Exploration of Associated Factors

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