Relevance of Norm Values as Part of the Documentation of Quality of Life Instruments for Use in Upper Gastrointestinal Disease

Dimenäs, E; Carlsson, Gunilla; Glise, Hans; Israelsson, Bo; Wiklund, Ingela

doi:10.3109/00365529609095544

Cited by 323 publications

(294 citation statements)

References 11 publications

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“…The items are divided into six dimensions representing Anxiety (five items), Depressed mood (three items), Positive well-being (four items), Self-control (three items), General health (three items) and Vitality (four items). Norm values for healthy, gender-matched population is available, see above [21].…”

Section: Psychological General Well-being Index (Pgwb)mentioning

confidence: 99%

Diarrhoea is not the only symptom that needs to be treated in patients with microscopic colitis

Roth¹,

Bengtsson²,

Ohlsson³

2013

European Journal of Internal Medicine

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Diarrhoea is not the only symptom that needs to be treated in patients with microscopic colitis. Link to publication Citation for published version (APA): Roth, B., Bengtsson, M., & Ohlsson, B. (2013). Diarrhoea is not the only symptom that needs to be treated in patients with microscopic colitis. European Journal of Internal Medicine, 24(6), 573-578. DOI: 10.1016573-578. DOI: 10. /j.ejim.2013 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal

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Section: Psychological General Well-being Index (Pgwb)mentioning

confidence: 99%

Diarrhoea is not the only symptom that needs to be treated in patients with microscopic colitis

Roth¹,

Bengtsson²,

Ohlsson³

2013

European Journal of Internal Medicine

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“…Correlations with stressful life events and the use of health services were lower. Norms for the PSGWB index have been described for the Swedish population [25]. When used in a trial of patients with reflux disease, estimates of internal consistency were above 0.92 and decreased symptoms corresponded to an increase in PGWB scores [91].…”

Section: Psychological General Well-being (Psgwb) Indexmentioning

confidence: 99%

Evaluation of quality of life after laparoscopic surgery: evidence-based guidelines of the European Association for Endoscopic Surgery

et al. 2004

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Background: Measuring health-related quality of life (QoL) after surgery is essential for decision making by patients, surgeons, and payers. The aim of this consensus conference was twofold. First, it was to determine for which diseases endoscopic surgery results in better postoperative QoL than open surgery. Second, it was to recommend QoL instruments for clinical research. Methods: An expert panel selected 12 conditions in which QoL and endoscopic surgery are important. For each condition, studies comparing endoscopic and open surgery in terms of QoL were identified. The expert panel reached consensus on the relative benefits of endoscopic surgery and recommended generic and disease-specific QoL instruments for use in clinical research. Results: Randomized trials indicate that QoL improves earlier after endoscopic than open surgery for gastroesophageal reflux disease (GERD), cholecystolithiasis, colorectal cancer, inguinal hernia, obesity (gastric bypass), and uterine disorders that require hysterectomy. For spleen, prostate, malignant kidney, benign colorectal, and benign non-GERD esophageal diseases, evidence from nonrandomized trials supports the use of laparoscopic surgery. However, many studies failed to collect long-term results, used nonvalidated questionnaires, or measured QoL components only incompletely.

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“…The frequency of other self-reported diseases was not significantly different in the three groups (41% in ST patients, 44% in BT patients and 29% in controls, P=0.058, overall test). For example, pulmonary disease occurred in eight ST patients, six BT patients and three controls (n.s., P=0.18, overall test), coronary heart disease in five subjects in each group (n.s., P=0.82, overall test) and neo- Study-specific questionnaire c (Table 7) 13 Stigmata caused by the treatment WHO questionnaire [40] 5 Smoking, alcohol intake, psychological stress, physical activity during work and leisure time a Norm values for PGWB: 98-104 [15] b MODEM'S was the only questionnaire not previously used in Sweden. The questions intended for use were modified for Sweden by using the guidelines for the cross-cultural adaptation process proposed by Guillemin [28] c Previous studies at our clinic had shown a negative impact of the treatment on the patients [19].…”

Section: Demographic and Clinical Background Datamentioning

confidence: 99%

Health-related quality of life in patients with adolescent idiopathic scoliosis: a matched follow-up at least 20 years after treatment with brace or surgery

et al. 2001

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No results on long-term outcome in terms of health-related quality of life (HRQL) have previously been presented for patients treated for adolescent idiopathic scoliosis. A consecutive series of patients with adolescent idiopathic scoliosis, treated between 1968 and 1977 before the age of 21, either with distraction and fusion using Harrington rods [surgical treatment group (ST), n=156; 145 females and 11 males] or with a brace [brace treatment group (BT), n=127; 122 females and 5 males] were followed at least 20 years after completion of the treatment. Ninety-four percent of ST and 91% of BT patients filled in a questionnaire comprising the SF-36, Psychological General Well-Being Index (PGWB), Oswestry Disability Back Pain Questionnaire, parts of SRS/MODEM'S questionnaire and study-specific questions concerning the treatment, as a part of an unbiased personal follow-up examination including radiography and clinical examination. An age-and sex-matched control group of 100 persons was randomly selected and subjected to the same examinations. The results showed no differences in terms of sociodemographic data between the groups. Both ST and BT patients had a slightly, but significantly, reduced physical function using the SF-36 subscales, SF-36/Physical Component Summary (PCS) score as well as the Oswestry Disability Back Pain Questionnaire compared to the controls. Neither the mental subscales and the Mental Component Summary (MCS) score of SF-36 nor the PGWB index showed any significant difference between the groups. Forty-nine percent of ST, 34% of BT and 15% of controls admitted limitation of social activities due to their back [P<0.001 ST vs controls, P=0.0010 BT vs controls, and n.s. (P=0.024) ST vs BT], mostly due to difficulties with physical participation in activities or selfconsciousness about appearance. Pain was a minor reason for limitation. No correlation was found between the outcome scores and curve size after treatment, curve type, total treatment time or age at completed treatment. Patients treated for adolescent idiopathic scoliosis were found to have approximately the same HRQL as the general population. A minority of the patients (4%) had a severely decreased psychological well-being, and a few (1.5%) were severely physically disabled due to the back.

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Relevance of Norm Values as Part of the Documentation of Quality of Life Instruments for Use in Upper Gastrointestinal Disease

Cited by 323 publications

References 11 publications

Diarrhoea is not the only symptom that needs to be treated in patients with microscopic colitis

Diarrhoea is not the only symptom that needs to be treated in patients with microscopic colitis

Evaluation of quality of life after laparoscopic surgery: evidence-based guidelines of the European Association for Endoscopic Surgery

Health-related quality of life in patients with adolescent idiopathic scoliosis: a matched follow-up at least 20 years after treatment with brace or surgery

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