Relatives of hospitalized stroke patients: their needs for information, counselling and accessibility

Smagt‐Duijnstee, Miebet E. Van Der; Hamers, Jan P.H.; Abu‐Saad, Huda Huijer; Zuidhof, Arjan

doi:10.1046/j.1365-2648.2001.01666.x

Cited by 31 publications

(30 citation statements)

References 13 publications

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“…Of course, providing resources to members of a patient's social network can be difficult: Past research indicates that even caregivers who are often in regular contact with professionals do not always receive adequate information (Denman, 1998;Smagt-Duijnstee et al, 2001). Future research should test the practicality and utility of these suggestions.…”

Section: Practical Implications and Directions For Future Researchmentioning

confidence: 99%

Effects of Communication-Debilitating Illnesses and Injuries on Close Relationships: A Relational Maintenance Perspective

Bute

Donovan-Kicken

Martins

2007

Health Communication

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A communication-debilitating illness or injury (CDI) presents significant challenges for patients as well as for friends and family. In a qualitative study of the effects of a CDI on close relationships, twenty-eight individuals with loved ones who had experienced a CDI were It's cruel that this was a person who was a great communicator. This was her forte and to watch that being robbed…it would have been better if she would have died or been blinded or deafened because this seems to be the cruelest hit. -Rachel, whose mother had a stroke.This comment from Rachel is indicative of the impact that serious health conditions can have on people's interpersonal relationships. More specifically, it provides a glimpse of what it is like to know and care about someone who has lost certain fundamental communication abilities.The theories and definitions that guide our understanding of interpersonal communication and interpersonal relationships assume that when people interact, they are capable of exchanging messages. Although communication skills may vary from person to person, the basic ability to express, receive, and process information is taken for granted as fundamental to relationships, especially close ones. Communication is what helps people to perform relationships (Burleson, Metts, & Kirch, 2000). But how are relationships maintained when communication abilities are lacking? Sometimes a person's ability to communicate is damaged or destroyed, such as in the case of certain injuries and chronic illnesses that involve physical or cognitive disabilities. With a few notable exceptions (Baxter, Braithwaite, Golish & Olson, 2002;Kemper, Lyons & Anagnopoulos, 1995;Orange, Ven Gennep, Miller, & Johnson, 1998) CDI: Communication-Debilitating Illness or InjuryThe sometimes sudden onset of a chronic condition can be a great disruption to everyday life, and a tremendous source of anxiety for the patient as well as his or her friends and family (Bury, 1982). The disruption of chronic illness can be further exacerbated when the condition involves a communication disability. The focus of this investigation is on relationships in the context of communication impairment, so our interest is in conditions that, regardless of other symptoms or trajectories, are characterized by a patient's altered ability to communicate. For the purposes of this study, the term communication-debilitating illness or injury, or CDI, is used to broadly identify a chronic condition yielding an incapacity to use language in a standard manner, and almost exclusively 1 describes the loss of an ability that existed prior to the onset of the illness or condition, or prior to the occurrence of the injury. A variety of illnesses and injuries can result in impaired communication, including, but certainly not limited to, stroke (Sundin, Jansson, & Norberg, 2000;, multiple sclerosis (Pring, 1999), Alzheimer's disease (Williamson & Schulz, 1990), and traumatic brain injury (Allen, Linn, Gutierrez, & Willer, 1994). Relationships and Chronic IllnessIn gene...

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Section: Practical Implications and Directions For Future Researchmentioning

confidence: 99%

Effects of Communication-Debilitating Illnesses and Injuries on Close Relationships: A Relational Maintenance Perspective

Bute

Donovan-Kicken

Martins

2007

Health Communication

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“…Although the social work support services provided to family members were not directly measured in this study, the results of this study suggest that it is important for social workers to provide services to the family members and significant others of patients in inpatient rehabilitation programs. Previous research supports this finding (Evans, Matlock, Bishop, Stranahan, & Pederson, 1988;van der Smagt-Duijnstee, Hamers, Abu-Saad, & Zuidhof, 2001). Many of the informational support services (e.g., family teaching, patient/family CVA education group) were provided to family members as well as CVA patients.…”

Section: Social Work In Health Carementioning

confidence: 64%

Social Work Support Services for Stroke Patients

Rizzo

2006

Social Work in Health Care

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This study aims to better understand the influence of social work support services on the efficient use of rehabilitation services (LOS-EFF) and total hospital charges for individuals participating in an inpatient physical rehabilitation program following stroke. Although the effects of the social work support services on stroke outcomes were modest, the study found that these services influenced stroke outcomes. Most importantly, the study revealed that higher levels of informational social work support services were associated with lower total hospital charges.

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“…Nevertheless, the perceptions of the family members indicated that family interpretation should be complemented by professional interpretation in daily nursing care. The finding by van der Smagt-Duijnstee et al (2001) that in The Netherlands female relatives request more information than their male counterparts is of cultural interest and may also be valid in other western countries.…”

Section: Discussionmentioning

confidence: 83%

Multicultural family members’ experiences with nurses and the intensive care context: A hermeneutic study

Høye¹,

Severinsson

2010

Intensive and Critical Care Nursing

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Relatives of hospitalized stroke patients: their needs for information, counselling and accessibility

Cited by 31 publications

References 13 publications

Effects of Communication-Debilitating Illnesses and Injuries on Close Relationships: A Relational Maintenance Perspective

Effects of Communication-Debilitating Illnesses and Injuries on Close Relationships: A Relational Maintenance Perspective

Social Work Support Services for Stroke Patients

Multicultural family members’ experiences with nurses and the intensive care context: A hermeneutic study

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