Relationship quality and perceived social support in persons with spinal cord injury

Tramonti, Francesco; Gerini, Adriana; Stampacchia, G.

doi:10.1038/sc.2014.229

Cited by 28 publications

(20 citation statements)

References 32 publications

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“…The participants acknowledged that the support they received impacted positively on their adjustment to the injury. The need for social support for persons with SCI is well documented in the literature [51, 52]. Spousal support was identified by the participants who were married as the most important form of support, while the majority of the unmarried participants identified support from friends and family support as the most valuable form of support.…”

Section: Discussionmentioning

confidence: 99%

“…Similarly, Kalpakjian et al [53] reported on the importance of marriage to the wellbeing of persons with SCI and argued that being married was a facilitator for lower depressive symptoms and wellbeing among persons with SCI [53]. Similarly, in a cross-sectional survey, Tramonti and colleagues [52] identified couple and family support as the most important sources of support when compared with support from informal social networks such as friendships [52]. This implies that spousal and family support play a pivotal role among persons with SCI in the adjustment and adaptation to the injury.…”

Section: Discussionmentioning

confidence: 99%

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Beyond the Diagnosis: Lived Experiences of Persons with Spinal Cord Injury in a Selected Town in Ghana

Fuseini

Aniteye

Alhassan

2019

Neurology Research International

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Background Although several studies have been conducted on the lived experiences of persons with spinal cord injury (SCI) in high income countries, there is no published data on such experiences in Ghana. The purpose of this study was to explore the lived experiences of persons with SCI in the Tamale Metropolis of the Northern Region of Ghana. Material and Methods A qualitative descriptive design involving thirteen participants was conducted at the Tamale Metropolis-Ghana. A purposive sampling technique was used to recruit participants, using the Neurosurgical Unit of the Tamale Teaching Hospital as an outlet for recruitment of the sample. Data was gathered mainly through face-to-face in-depth interviews. The data was analyzed concurrently with data collection, using thematic content analysis. Ethical approval was obtained for the study from the Noguchi Memorial Institute for Medical Research and the research unit of the Tamale Teaching Hospital. Results The three main themes that emerged from the data during analysis were “physical effects,” “psychological effects,” and “social issues.” Conclusion. The findings from the study suggest that SCI is a life threatening condition and that persons with SCI grapple with a myriad of physical symptoms that range from chronic pain and paralysis of lower and/or upper limbs, to bladder and bowel incontinence. These physical symptoms have significant psychological and social effects on the functioning of the affected persons.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Beyond the Diagnosis: Lived Experiences of Persons with Spinal Cord Injury in a Selected Town in Ghana

Fuseini

Aniteye

Alhassan

2019

Neurology Research International

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“…An individual's state of health has been suggested to influence social participation and relationships for people with SCI, both positively [47, 58, 63, 72] and negatively [58]. Secondary impairments to body structure and function from SCI, including pressure injuries and pain, can be socially limiting, while general physical well-being will maximize social opportunities.…”

Section: Resultsmentioning

confidence: 99%

“…Factors which were suggested to consolidate partner relationships after SCI included understanding, acceptance, and support from the non-SCI partner [16, 34, 72, 80–82]; the presence of children, which leads to shared focus and purpose [34]; and spending quality time together and with family [34, 41]. The degree of social integration of persons with SCI was also associated with persistence of partner relationships over time [47].…”

Section: Resultsmentioning

confidence: 99%

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Factors Which Facilitate or Impede Interpersonal Interactions and Relationships after Spinal Cord Injury: A Scoping Review with Suggestions for Rehabilitation

Amsters

Schuurs

Pershouse

et al. 2016

Rehabilitation Research and Practice

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Interpersonal interactions and relationships can influence an individual's perceptions of health and quality of life in the presence of disability. In the case of people with spinal cord injury (SCI), positive interpersonal interactions and relationships have been shown to contribute to resilience and adaptability. Understanding factors which facilitate or impede the development and maintenance of relationships after SCI may form the basis for proactive relationship support for people with SCI. To gain a broad insight into these factors, a scoping review was undertaken. Databases were searched for English language studies published between 2000 and 2015 that informed the review question. Sixty-two (62) studies were identified. Thematic analysis was conducted on data extracted from the studies and 51 factors which may facilitate relationships and 38 factors which may impede relationships after SCI were noted. The majority of factors could be categorized as environmental or personal according to the domains of the International Classification of Functioning, Disability, and Health (ICF). The facilitating factors included partner and social support, reciprocity in relationships, and presenting oneself positively. Impeding factors included physical environmental barriers, real and perceived social biases, and poor self-image. Factors identified may inform the provision of supportive, holistic rehabilitation for people with SCI.

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Systems thinking and the biopsychosocial approach: A multilevel framework for patient‐centred care

Tramonti

Giorgi

Fanali³

2020

Syst Res Behav Sci

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Patient‐centred care is an approach intended to include service‐users' needs and perspectives as crucial aspects of clinical treatment, superseding any attempt to paternalistic and unilateral attitude in the therapeutic relationship. It is a call to think about persons and not simply of their diseases and implies the adoption of a biopsychosocial perspective and shared decision making. Nonetheless, thinking about persons inevitably means taking the context into due consideration, as individuals are not isolated and any kind of illness experience cannot be thought as a simple matter of inner thoughts and feelings. This perspective article builds on the core tenets of systems thinking and the biopsychosocial approach, with the aim of developing a multilevel approach to patient‐centred care. Within this framework, a literature review has been conducted to gather relevant research findings concerning each level of analysis and the interrelations of such levels. Systems thinking is an ideal framework for capturing the multilayered aspects of illness, from the biological processes that lead to a given disease to the social context where people live. From this angle, we can argue that systems‐centred care is the framework we actually need to truly accomplish patient‐centred goals. This means seeing people as complex dynamical systems and always bearing in mind the ecology of their lives. This also means gearing research and clinical practice towards this direction because complex phenomena like health require adequate methods of inquiry and treatment plans. A multilevel approach is the main road to effective and enduring outcomes. On the contrary, fragmentation of knowledge and excessive specialization without integration can pave the way to short‐term solutions and weak or vanishing improvements in the long run, with obvious costs for persons, families and the community.

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Relationship quality and perceived social support in persons with spinal cord injury

Cited by 28 publications

References 32 publications

Beyond the Diagnosis: Lived Experiences of Persons with Spinal Cord Injury in a Selected Town in Ghana

Beyond the Diagnosis: Lived Experiences of Persons with Spinal Cord Injury in a Selected Town in Ghana

Factors Which Facilitate or Impede Interpersonal Interactions and Relationships after Spinal Cord Injury: A Scoping Review with Suggestions for Rehabilitation

Systems thinking and the biopsychosocial approach: A multilevel framework for patient‐centred care

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