Relationship between Childhood Disability or Developmental Delay and COVID-19 Pandemic Impacts on Families across the Canadian Maritime Provinces

Abstract

This study examined the relationship between having a child with a disability or developmental delay and early impacts of the COVID-19 pandemic on family environments that influenced early childhood development and health in the Maritime provinces of Canada. This was a mixed method cross-sectional survey involving 256 primary caregivers of children with disabilities or developmental delays and 1720 primary caregivers of typically developing children aged 0–8 years. A Family access to resources and social support, parenting Abilities and self-care, and home Routines and Environments change scale (FARE Change Scale) was produced from the survey to assess the early impacts of the pandemic on family environments that influenced early childhood development and health. Open-ended questions provided in-depth description of the early impacts of the pandemic on family environments. Pooled bivariate and multivariate regression coefficients revealed that having a child with a disability or developmental delay significantly decreased a caregiver’s score on the FARE Change Scale by 1.95. The open-ended questions were thematically analyzed. Caregivers of children with disabilities or developmental delays discussed positive and negative impacts of the pandemic on their family environments. Overall, the study findings indicate that the early impacts of the pandemic on family environments that influenced early childhood development and health of children with disabilities or developmental delays were mixed and context-specific. The study findings inform the development of context-specific policies and programs to adequately support families of children with disabilities or developmental delays in public health crises similar to the pandemic.