Relation Between Social Support Received and Provided by Parents of Children, Adolescents and Young Adults With Cancer and Stress Levels and Life and Family Satisfaction

Melguizo-Garín, Anabel; Martos-Méndez, María José; Hombrados‐Mendieta, Isabel; Ruiz-Rodríguez, Iván

doi:10.3389/fpsyg.2022.728733

Cited by 4 publications

(5 citation statements)

References 39 publications

(40 reference statements)

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“…It was consistent with the previous ndings, in which parents in the US who had children with food allergic and had more social support were signi cantly associated with less parental monitoring, as well as a study in China reported that parents who had children with chronic conditions and had a relationship with friends, relatives, and neighbors increased parental mutuality, one component of EFM [31,48]. Better social support caused low levels of stress and burden, so it interfered with the management efforts and perceived fewer di culties, and predicted resilience [23,[49][50][51]. This result followed the previous research that stated that social support signi cantly predicted the resilience of Iranian parents with childhood cancer [51].…”

Section: Discussionmentioning

confidence: 99%

Mediating effects of family management on health-related quality of life of Indonesian parents whose children with leukemia

Arifah,

Pookboonmee,

Patoomwan

et al. 2023

Preprint

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Background Health-related quality of life (HRQoL) is one indicator of successful treatment of children's leukemia. It was influenced by many factors, including family management, one of the family variables. According to the family management framework, family management is a mediator that mediates between several factors and the health-related quality of life of children with specific diseases. This study aimed to evaluate mediating effects of family management on the relationship between several contextual influences and pediatric HRQoL of families with leukemia children in Indonesia. Methods This cross-sectional study involved parents of children with leukemia during active treatment recruited by purposive sampling from three hospitals in Java Island, Indonesia, starting from January 2021 to May 2022. Parents answered the questionnaire and interview to evaluate family management, Pediatric Quality of Life Inventory™ Cancer Module (PedsQL-C) to measure children’ HRQoL, the Multidimensional Illness Severity Questionnaire used to investigate the disease severity, and the Multidimensional Scale of Perceived Social Support to assess the social support. Descriptive statistics and path analysis were used to analyze family management as a mediator between family income, family structure, social support, geographic location, age of child, severity of disease, and HRQoL as the response variable. Results Based on 202 parents who completed the questionnaire found that social support and the severity of the disease significantly influenced both components of family management. Social support positively affected Easy Family Management (EFM) (β = .330, p = .000), while the severity of disease negatively influenced EFM (β = − .342, p = .000). In contrast, social support negatively affected Difficulty in Family Management (DFM) (β = − .137, p = .006), and severity of disease positively influenced DFM (β = .384, p = .000). Moreover, both of EFM and DFM had mediated the only relationship between severity of disease and health-related quality of life with p-value < 0.05. Conclusion This study partially supported the Family Management Style Framework. Social support and family management as modifiable factors should be adjusted to develop specific interventions and strategies to improve the quality of life of children.

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Section: Discussionmentioning

confidence: 99%

Mediating effects of family management on health-related quality of life of Indonesian parents whose children with leukemia

Arifah,

Pookboonmee,

Patoomwan

et al. 2023

Preprint

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“…Questionnaire for the assessment of adjustment of parents of children with cancer Designed ad hoc by Hombrados-Mendieta and Martos-Méndez [44,45], this questionnaire measures situations that take place in different areas of parents' lives over the course of the child's cancer. It asks participants about the changes or disruptions brought about in different areas of their lives due to the child's cancer: partner (items 1 to 8), children (items 9 to 16), extended family (17 to 22), social relations (23 to 27), and economic and employment situations (items 28 to 30).…”

Section: Methodsmentioning

confidence: 99%

“…Previous studies have analyzed some of the relations between the variables described, proving that social support received helps reduce parents' stress [43,44]. It has also been observed that both social supports received and provided by parents to their network increases their life satisfaction [43,44]. We also know that parents' adjustment relates negatively to social support received and provided, meaning that providing and receiving support reduces the impact of the disruptions they experience [45].…”

Section: Introductionmentioning

confidence: 90%

“…The positive effect of social support can play an essential role in parents' satisfaction with life [41,42]. Previous studies have analyzed some of the relations between the variables described, proving that social support received helps reduce parents' stress [43,44]. It has also been observed that both social supports received and provided by parents to their network increases their life satisfaction [43,44].…”

Section: Introductionmentioning

confidence: 99%

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Importance of Social Support of Parents of Children with Cancer: A Multicomponent Model Using Partial Least Squares-Path Modelling

Melguizo-Garín

Benítez-Márquez

Hombrados‐Mendieta

et al. 2023

IJERPH

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The purpose of the present study is to build a model combining some variables that have been previously studied separately to improve our understanding on how they relate in parents of children with cancer. A total of 112 parents with an average age of 41 completed the self-assessment questionnaires containing the factors studied: social support received, social support provided, stress, adjustment of parents and life satisfaction. Two models were developed: one for social support received and one for social support provided. Structural equation models based on the variance estimated through partial least squares were used to analyze factors involved in quality of life based on an exploratory model of second order. The estimated model was robust in terms of quality of measurement (reliability and validity). According to results from the structural model, in the model of social support received, the impact of social support received on stress was considerable (β = −0.26; p = 0.02) and it explained 16% of the variance. The impact of social support received by parents on their adjustment (β = −0.56; p < 0.001) was also considerable, explaining 32% of the variance. Finally, adjustment of parents also showed an effect on life satisfaction (β = −0.33; p < 0.001) and it explained 26% of the variance. However, the relation between social support received (β = 0.15; p = 0.11) and life satisfaction, the relation between stress (β = −0.15; p = 0.08) and life satisfaction, and the relation between adjustment of parents (β = 0.20; p = 0.07) and stress were not significant. In the model of social support provided by parents, social support provided (β = 0.35; p < 0.001), and adjustment of parents (β = −0.31; p < 0.01) impacted life satisfaction, explaining 36% of the variance. Social support provided (β = −0.34; p < 0.01) impacted adjustment of parents and it explained 12% of the variance. Adjustment of parents (β = 0.28; p < 0.05) also impacted parents’ perception of stress, explaining 14% of the variance. However, the relation between social support provided (β = −0.17; p = 0.06) and stress, and the relation between stress (β = −0.13; p = 0.08) and life satisfaction, were not significant. Social support received showed a strong connection with stress and parents’ adjustment. Additionally, social support received showed a decrease in stress and parents’ adjustment. Social support provided by parents and the adjustments they experience are linked to their life satisfaction. Additionally, social support provided showed a decrease in adjustment and an increase in parents’ life satisfaction. The models can be used to improve parents’ situations and it has strong practical implications.

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“…Social support encompasses significant resilience and a buffering factor against the negative implications of stress ( Schwartz-Attias et al, 2023 ). Stronger social support has been correlated with a higher level of well-being, which is reflected in life satisfaction, the cognitive component of well-being, and positive emotions, reflecting the emotional component of well-being ( Gise and Cohen, 2022 ; Melguizo-Garín et al, 2022 ), as well as lower levels of stress, hopelessness, and depression ( Makhoul Khoury et al, 2018 ). Little is known about the relation between social support and hope among parents of children with cancer.…”

Section: Introductionmentioning

confidence: 99%

Well-being in parents of children with cancer: illness perceptions’ mediating role for hope and social support

Schwartz-Attias,

Krulik,

Ronen

2024

Front. Psychol.

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IntroductionParents of children with cancer may experience enormous physical and emotional pressures. During such times, perception of the situation can be important in mediating the link between one’s basic resources (mainly cognitive and social) and the well-being one attains as an emotional and cognitive response. This study aimed to explore the role of illness impact perceptions in mediating the link between hope, social support and subjective well-being in parents of children with cancer.MethodsThe cross-sectional study included 108 parents of children aged 7–18 diagnosed with cancer at least 6 months prior to the study. The parents completed one questionnaire comprising five instruments: perceived impact of illness, hope, social support, positive and negative affect (the emotional component of well-being) and life satisfaction (the cognitive component of well-being). Descriptive statistics and Pearson correlations were conducted for all study variables. SEM analysis was performed to examine the study’s theoretical model.ResultsThe current sample included 108 parents of children with cancer recruited from two pediatric hematology-oncology wards in two different hospitals in central Israel. Most participants were mothers (70.4%), and the mean age was 44.46. The main results indicated that hope and social support correlated negatively with perceptions of the illness’ impact. Illness impact perceptions mediated the relations between hope, social support and positive emotions, which means that when the parents perceived their child’s illness as less impactful on the family, they experienced higher levels of emotional well-being.ConclusionA parent with social support resources and higher levels of hope experiences higher levels of positive perceptions regarding their child’s illness. Higher levels of positive perceptions allow the parent to express more positive than negative emotions, thus maintaining a more optimal level of subjective emotional well-being. The findings offer implications for healthcare teams to enhance sensitivity to parents’ needs and to help parents attain more resources, positive perceptions, and well-being.

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Relation Between Social Support Received and Provided by Parents of Children, Adolescents and Young Adults With Cancer and Stress Levels and Life and Family Satisfaction

Cited by 4 publications

References 39 publications

Mediating effects of family management on health-related quality of life of Indonesian parents whose children with leukemia

Mediating effects of family management on health-related quality of life of Indonesian parents whose children with leukemia

Importance of Social Support of Parents of Children with Cancer: A Multicomponent Model Using Partial Least Squares-Path Modelling

Well-being in parents of children with cancer: illness perceptions’ mediating role for hope and social support

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