Efforts to persuade policymakers to rely on data to plan health care services for people with a disability or a chronic illness must confront the fact that many competing definitions of disability are currently used. It is important to recognize that pressures for standardization as well as disputes over disability definitions take place in a broader social and political context. Despite the practical difficulties facing researchers and the highly charged atmosphere in which disagreements over definitions must be managed, researchers have made progress in developing policy-relevant data that underline the importance of the health needs of people with a disability.In his memoir, novelist Reynolds Price (1994) described the care he received for a spinal cord tumor. As a faculty member at Duke University, Price was treated in the medical school there. Yet, he found the most crucial contributions to his recovery were made by services far removed from the acute care system. An inpatient rehabilitation program restored a lost sense of control. A biofeedback program brought relief from the previously intractable chronic pain that had sapped his will to live. Also important were arrangements he made, and paid for out of pocket, for a live-in personal care assistant, whose help enabled Price to resume many of his professional roles. Price's recovery, which exceeded all expectations, was nearly derailed, however, when he was struck with panic attacks and severe symptoms of depression, conditions that may have been needlessly prolonged when they were treated with anxiolydcs. In another memoir of life with a spinal cord tumor, the late Columbia University anthropologist Robert Murphy offered an insider's glimpse of what some experts have labeled