Rehabilitation and future participation of youth following spinal cord injury: caregiver perspectives

House, Lisa; Russell, Heather F.; Kelly, Erin H.; Gerson, Arlene C.

doi:10.1038/sc.2009.64

Cited by 27 publications

(13 citation statements)

References 14 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Caregivers in American samples have been found to benefit from psychosocial and educational services related to the perceived challenges of caregiving (House, Russell, Kelly, Gerson, & Vogel, 2009), and the current findings highlight a need for future research on similar services in Latin America. Due to the collectivist nature of many Latino cultures (Marin & Marin, 1991), and the importance of family in rehabilitation with Latino populations (Hanson & Kerkhoff, 2007), family support systems may be important variables to consider when constructing these SCI caregiver interventions.…”

Section: Limitations and Future Directionsmentioning

confidence: 79%

Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a Colombian Sample: An Exploratory Study

Wiese¹,

Leibach²,

Perrin³

et al. 2015

psdc

View full text Add to dashboard Cite

psicología desde el caribe issn 0123-417x (impreso) issn 2011-7485 (on line) Vol. 32, n.° 3, septiembre-diciembre 2015 http://dx.doi.org/10.14482/psdc.32.3.6593 Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a colombian sample: An exploratory study Deficiencias funcionales en pacientes con lesiones de la médula espinal y la salud mental del cuidador: un estudio exploratorio en una muestra colombiana AbstractLimited literature has examined the connections between caregiver mental health and the physical and psychosocial functioning of individuals with spinal cord injury (SCI) in Latin America, despite the dearth of services and unique needs of this population. The purpose of the current study was to examine the relationships between caregiver mental health (anxiety, burden, depression, satisfaction with life, and self-esteem) and SCI physical and psychosocial functional impairments in a Colombian sample. Forty SCI caregivers were recruited from Neiva, Colombia, and completed measures of SCI impairments and their own mental health. Greater SCI impairments, and caregiver stress due to those impairments, were associated with higher caregiver depression and anxiety, although only patient psychosocial functional impairments and related caregiver stress were uniquely associated with caregiver depression. Due to the collectivist nature of and the importance of family in many Latino cultures, mental health interventions for family members who provide care for an individual with SCI having greater psychosocial impairments may be particularly important. Palabras clave: SCI impairment, caregivers, mental health. ResumenPoca literatura ha examinado las relaciones entre salud mental del cuidador y funcionamiento físico y psicosocial de las personas con traumatismo de médula espinal en América Latina, a pesar de la escasez de servicios y necesidades únicas de esta población. El propósito del presente estudio fue examinar las relaciones entre la salud mental del cuidador (ansiedad, sobrecarga, depresión, satisfacción con la vida y autoestima) y las discapacidades físicas y psicosociales de personas con traumatismo de médula espinal en una muestra colombiana. Cuarenta cuidadores de personas con traumatismo de médula espinal fueron reclutados en Neiva, Colombia, quienes completaron medidas de discapacidad del traumatismo de mé-dula espinal y de su propia salud mental. Mayores niveles de discapacidad en personas con traumatismo de médula espinal y niveles de estrés del cuidador debido a esas discapacidades, fueron asociadas con mayores niveles de depresión y ansiedad en el cuidador, aunque sólo las discapacidades psicosociales de los pacientes y el estrés relacionado con el cuidador fueron asociados con la depresión en el cuidador. Debido a la naturaleza colectivista y la importancia de la familia en la mayoría de las culturas latinas, las intervenciones centradas en la salud mental de los familiares que cuidan de personas con traumatismo de la medula espinal pueden ser particularmente importantes.

show abstract

Section: Limitations and Future Directionsmentioning

confidence: 79%

Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a Colombian Sample: An Exploratory Study

Wiese¹,

Leibach²,

Perrin³

et al. 2015

psdc

View full text Add to dashboard Cite

show abstract

“…In particular, the importance of family support and the social environmental factors were emphasized in many researches recently 21,22. These factors are also the important basis of the rehabilitation goal setting in our clinic 18…”

Section: Discussionmentioning

confidence: 97%

ICF Based Comprehensive Evaluation for Post-Acute Spinal Cord Injury

2012

View full text Add to dashboard Cite

ObjectiveTo evaluate the feasibility of the ICF for initial comprehensive evaluation of early post-acute spinal cord injury.MethodA comprehensive evaluation of 62 early post-acute spinal cord injury (SCI) patients was conducted by rehabilitation team members, such as physicians, physical therapists, occupational therapists, nutritionists, medical social-workers, and nurses. They recorded each of their evaluation according to the ICF first level classification. The contents of the comprehensive evaluation were linked to the ICF second level categories, retrospectively. The linked codes were analyzed descriptively and were also compared with the brief ICF core set for early post-acute SCI.ResultsIn the evaluation of early post-acute SCI patients based on the ICF first level categories, 19 items from the body functions domain, such as muscle power functions (b730) and urination functions (b620), 15 items from the body structures domain, including spinal cord and related structures (s120), 11 items from the activities and participation domain, such as transferring oneself (d420) and walking (d450), and 9 items from the environmental factors domain, e.g., health professionals (e355), were linked to the ICF second level categories. In total, 82.4% of all contents were linked to the brief ICF core set. Prognosis insight, a personal factor not linkable to an ICF code, was mentioned in 29.0% of all patients.ConclusionFirst level ICF categories can provide a structural base for a comprehensive evaluation in early post-acute spinal cord injury. However, frequently linked items, including the brief core set, as well as personal factors should be considered via a checklist in order to prevent the omission of significant contents.

show abstract

“…This compliments findings from a study investigating factors that enhanced the participation of youth with SCI; specifically that caregivers of youth injured at an older age were more likely to have found something in rehabilitation helpful to their child's future participation. 26 Caregiver-report of obstacles to child participation also varied by caregiver characteristics. Caregivers who were employed were more likely to report Practical Concerns; these concerns likely result from juggling family and work responsibilities.…”

Section: Discussionmentioning

confidence: 99%