Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement Building

Abstract

Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others’ research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars.

Communicating results in post-Belmont era biomonitoring studies: Lessons from genetics and neuroimaging research

“…A description of the frequency and manner by which the aggregate data and progress reports will be shared with research review committees along with a communication plan for presenting aggregate results to the community at large must be included in study protocols. These requirements affirm the notion of community-engagement in the development of results communication protocols and the report-back of results as an ongoing, reflexive, and iterative process (Cordner et al, 2012). …”

Finding Pathways to More Equitable and Meaningful Public-Scientist Partnerships

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“…More recently the concept of “reflexive research ethics” has been proposed for environmental health and justice, to improve academic research and community partnerships through constant reflection on various ethical moments that arise in academic-community partnerships (Cordner et al 2012). …”