Reflecting the scope and work of palliative care teams today: an action research project to modernise a national minimum data set

Jack, Barbara; Littlewood, C.; Eve, Ann; Murphy, Deborah; Khatri, A; Ellershaw, John

doi:10.1177/0269216308098477

Cited by 6 publications

(3 citation statements)

References 6 publications

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“…Starting from 1995, the National Council for Hospice and Specialist Palliative Care Services has set a systematic data collection of minimum standard (The Minimum Data Set (MDS)) to inform and analyze the activity of Palliative Care Services. MDS methods have been adopted worldwide by most of Palliative Care Organizations and have allowed consistent data comparison, including venous thromboembolism (VTE) in specialist palliative care units (SPCUs) [19].…”

Section: Incidence Of Vte In Palliative Cancer Patients-a Road Map Apmentioning

confidence: 99%

Venous Thromboembolism in Cancer Patients on Simultaneous and Palliative Care

Riondino

Ferroni

Monte

et al. 2020

Cancers

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Simultaneous care represents the ideal integration between early supportive and palliative care in cancer patients under active antineoplastic treatment. Cancer patients require a composite clinical, social and psychological management that can be effective only if care continuity from hospital to home is guaranteed and if such a care takes place early in the course of the disease, combining standard oncology care and palliative care. In these settings, venous thromboembolism (VTE) represents a difficult medical challenge, for the requirement of acute treatments and for the strong impact on anticancer therapies that might be delayed or, even, totally discontinued. Moreover, cancer patients not only display high rates of VTE occurrence/recurrence but are also more prone to bleeding and this forces clinicians to optimize treatment strategies, balancing between hemorrhages and thrombus formation. VTE prevention is, therefore, regarded as a double-edged sword. Indeed, while on one hand the appropriate use of antithrombotic agents can reduce VTE occurrence, on the other it significantly increases the bleeding risk, especially in the frail patients who present with multiple co-morbidities and poly-therapy that can interact with anticoagulant drugs. For these reasons, thromboprophylaxis should start while active cancer treatment is ongoing, according to a simultaneous care model in a patient-centered perspective.

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Section: Incidence Of Vte In Palliative Cancer Patients-a Road Map Apmentioning

confidence: 99%

Venous Thromboembolism in Cancer Patients on Simultaneous and Palliative Care

Riondino

Ferroni

Monte

et al. 2020

Cancers

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“…La Estrategia plantea la disposición de sistemas de registro y evalua ción sistemática de resultados en cuidados paliativos. Recientemente se ha publicado una revisión de la experiencia de los conjuntos mínimos de datos del Reino Unido, con sugerencias sobre modelos de recogida de datos en distintos niveles asistenciales 63 . Una revisión canadiense apoya el diseño de sistemas de información comunes 64 .…”

Section: Situación Actualunclassified

Quantification of quality of life improvement after appropriate symptoms control in cancer patients with breakthrough pain: A four-week follow-up study in a palliative care unit

Viejo¹,

Manrique²,

Rey³

et al. 2019

Trends Med

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“…Does the degree of development of palliative care services influence the characteristics of the patients they attend? There are currently no clear answers to these questions, and although a number of initiatives exist that are trying to reach consensus on the minimum information required to describe some symptoms, there is as yet no standardized practice (Jack et al 2009; 2010; Knudsen et al 2009). This fact has great transcendence in research and clinical practice.…”

Section: Introductionmentioning

confidence: 99%

Patients attended by palliative care teams: are they always comparable populations?

et al. 2013

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Patients attended by palliative care teams: are they always comparable populations? To answer this question we have compared the basic epidemiological characteristics of patients attended by home palliative care teams (HPCT) in two autonomous regions of Spain.We carried out a coordinated analytical, observational and prospective study in two Spanish autonomous regions: Aragon and Catalonia. Data were kept during each home care visit according to patients' needs. Inclusion criteria were: advanced cancer, over 18 years old and first contact with a HPCT. The recruitment period was 6 months. Variables included were: Survival time (days), age, sex, primary disease and extension, place of residence. Functional and cognitive state, and co-morbidity. 10 signs/symptoms: asthenia, anorexia, cachexia, dysphagia, xerostomy, dyspnoea, oedemas, level of consciousness, presence of delirium, presence of pressure ulcers and some treatment data. Others variables considered were: responsible team, origin, destination when discharge, date and place of death, number of visits made and duration of monitoring. We developed a comparison between groups by Chi-squared test or the non-parametric Mann–Whitney U test and a survival analysis by Kaplan-Meier curves and the logrank test to determine differences between factors. The SPSS version 15.0 software package was used.698 patients were included, 56.2% from Aragon and 43.8% from Catalonia. 60.3% were males, without differences between the regions. Characteristics relative to age, sex, place of residence and extension of oncological diseases were similar for both groups. We found significant differences between the two populations relative to survival time, co-morbidity, functional state, presence and intensity of a number of symptoms and the treatments, patient monitoring and the their destination after discharge.We can conclude that palliative care teams cover different profiles of patients with regard to their co-morbidity, functional, cognitive and symptomatic states. It must be pointed that the organization of palliative care services and their experience appears to condition the profile of patients they attend. There is a need of consensus on the basic descriptors for palliative care patients in order to ensure that results will be comparable.

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Reflecting the scope and work of palliative care teams today: an action research project to modernise a national minimum data set

Cited by 6 publications

References 6 publications

Venous Thromboembolism in Cancer Patients on Simultaneous and Palliative Care

Venous Thromboembolism in Cancer Patients on Simultaneous and Palliative Care

Quantification of quality of life improvement after appropriate symptoms control in cancer patients with breakthrough pain: A four-week follow-up study in a palliative care unit

Patients attended by palliative care teams: are they always comparable populations?

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