Recruitment in response to a pandemic: pivoting a community-based recruitment strategy to facebook for hard-to-reach populations during COVID-19

Archer-Kuhn, Beth; Beltrano, Natalie; Hughes, Judith; Saini, Michael; Tam, Dora M. Y.

doi:10.1080/13645579.2021.1941647

Cited by 19 publications

(10 citation statements)

References 24 publications

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“…Research participant recruitment during the COVID-19 pandemic was challenging across most disciplines, and especially difficult for those attempting to recruit difficult to reach populations. 33 Ultimately, we were able to effectively recruit participants for a pilot trial in extremely difficult circumstances, showing that it is possible to have an intervention trial of a mobile app in a dementia caregiver population.…”

Section: Discussionmentioning

confidence: 99%

Technology caregiver intervention for Alzheimer's disease (I‐CARE): Feasibility and preliminary efficacy of Brain CareNotes

Rodriguez,

Kercher,

Jordan

et al. 2023

J American Geriatrics Society

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BackgroundThe primary aim of the current pilot study was to examine enrollment rate, data completion, usability, acceptance and use of a mobile telehealth application, Brain CareNotes. A secondary aim was to estimate the application's effect in reducing caregiver burden and behavioral and psychological symptoms related to dementia (BPSD).MethodsPatient‐caregiver dyads (n = 53) were recruited and randomized to intervention and control groups. Assessment of usability, acceptance, BPSD symptoms, and caregiver burden were collected at baseline, 3‐ and 6‐month follow‐up.ResultsThe enrollment rate was acceptable despite pandemic related challenges (53/60 target recruitment sample). Among randomized individuals, there was a retention rate of 85% and data completion was attained for 81.5% of those allocated to usual care and 88.5% of those allocated to Brain CareNotes. Mean caregiver‐reported app usability at 6 months was 72.5 (IQR 70.0–90.0) on the System Usability Scale—considered “Good to Excellent”—and user acceptance was reasonable as indicated by 85%–90% of caregivers reporting they would intend to use the app to some degree in the next 6 months, if able. Regarding intervention effect, although differences in outcome measures between the groups were not statistically significant, compared to baseline, we found a reduction of caregiver burden (NPI‐Caregiver Distress) of 1.0 at 3 months and 0.7 at 6 months for those in the intervention group. BPSD (NPI Total Score) was also reduced from baseline by 4.0 at 3 months and by 0.5 at 6 months.ConclusionsBrain CareNotes is a highly scalable, usable and acceptable mobile caregiver intervention. Future studies should focus on testing Brain CareNotes on a larger sample size to examine efficacy of reducing caregiver burden and BPSD.

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Section: Discussionmentioning

confidence: 99%

Technology caregiver intervention for Alzheimer's disease (I‐CARE): Feasibility and preliminary efficacy of Brain CareNotes

Rodriguez,

Kercher,

Jordan

et al. 2023

J American Geriatrics Society

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“…Face‐to‐face recruitment has long been considered critical in developing effective recruitment strategies for mothers who have experienced domestic violence (Bender, 2017; Dichter et al, 2019). The pandemic hit at the time that we were preparing for recruitment, and we switched to online recruitment through advertising on our project's Facebook page (Archer‐Kuhn et al, 2021) in addition to relying on a spectrum of our community partners (pediatricians, family lawyers, childcare providers, elementary school teachers, mothers' shelters) to bring awareness to our study. Community partners included the link to our Facebook page where our study was advertised on their social media pages.…”

Section: Methodsmentioning

confidence: 99%

A survey of mothers' experiences of shared parenting and domestic violence

Archer-Kuhn

Saini

Tam

et al. 2023

Family Court Review

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This cross‐sectional survey reports on the experiences and impact of mothers in shared parenting arrangements and their young children ages 0–4 years across three provinces in Canada (Alberta, Manitoba, Ontario). The purpose of the study was to explore shared parenting arrangements in the context of domestic violence, and we sought to recruit mothers from a range of experiences regarding reported violence in their relationships with their ex‐partners. The online survey consisted of standardized tools to measure child development, depression, substance use, and anxiety, extent and severity of domestic violence, and coparenting. Recruiting during the pandemic was challenging, which required various recruitment strategies. The total sample included 84 mothers who completed questionnaires. Findings show that while mothers experienced various forms of domestic violence in shared parenting arrangements, experiences of coercive control were most evident. Implications are identified and discussed in relation to parenting plans, shared parenting and all forms of domestic violence including coercive control.

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“…Difficulties associated with successful study participation among economically marginalized and disproportionately affected populations is a common occurrence in research with justice-involved populations 34 and a problem only made worse by COVID-19. 35 Our experience was similarly challenging and also severely affected by the pandemic with nearly every aspect of our study touched in some way. Families were stressed with social isolation, loss of life and illness, unemployment, and school closures.…”

Section: Intervention Feasibilitymentioning

confidence: 95%

Assessment of Feasibility and Acceptability of the Pathways for Parents After Incarceration Program

Charles,

Muentner,

Grade

et al. 2023

Family &Amp; Community Health

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Most incarcerated fathers have connections to their families, and the quality of their family relationships is important not only to their reentry success but also to shaping positive child and family outcomes. However, there is a lack of rigorous evidence about interventions designed to strengthen parent-child and other family relationships among formerly incarcerated parents. The purpose of this study was to develop and assess for feasibility and acceptability an intervention for formerly incarcerated fathers, co-parents, and their children. We created and implemented the Pathways for Parents after Incarceration Program (P4P), a multilevel intervention that focuses on strengthening positive parenting skills, building constructive co-parenting strategies, providing social support, and connecting families to needed specialized services. We delivered P4P virtually to 3 groups of participants, collecting data at several points. Results suggest that while the program was well liked and appreciated by participants and parent coaches and had a positive effect on parenting skills and attitudes, recruitment and retention were challenging. Findings suggest that P4P has the potential to support child and family well-being when fathers reenter by bolstering protective factors, and supporting access to necessary supports associated with improved reentry outcomes. Additional research is needed to address feasibility concerns and establish program efficacy.

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Recruitment in response to a pandemic: pivoting a community-based recruitment strategy to facebook for hard-to-reach populations during COVID-19

Cited by 19 publications

References 24 publications

Technology caregiver intervention for Alzheimer's disease (I‐CARE): Feasibility and preliminary efficacy of Brain CareNotes

Technology caregiver intervention for Alzheimer's disease (I‐CARE): Feasibility and preliminary efficacy of Brain CareNotes

A survey of mothers' experiences of shared parenting and domestic violence

Assessment of Feasibility and Acceptability of the Pathways for Parents After Incarceration Program

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