Recruitment and Retention of Children in Behavioral Health Risk Factor Studies: REACH Strategies

Schöeppe, Stephanie; Oliver, Melody; Badland, Hannah; Burke, Matthew; Duncan, Mitch J.

doi:10.1007/s12529-013-9347-5

Cited by 62 publications

(97 citation statements)

References 49 publications

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“…In future research, active travel to non-school destinations should receive more attention as this study showed that active travel to non-school destinations is more common in children than active travel to school (53% versus 37%), hence, it may have more potential to increase children's physical activity levels than active school travel. The low response rate and substantial missing data in this study shows the common challenge of recruiting and retaining children in behavioral studies (Schoeppe et al, 2013). More guidance is needed on successful recruitment and retention strategies applied in child populations (Schoeppe et al, 2013).…”

Section: Discussionmentioning

confidence: 91%

See 1 more Smart Citation

Associations between children׳s active travel and levels of physical activity and sedentary behavior

Schöeppe

Duncan

Badland

et al. 2015

Journal of Transport & Health

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Section: Discussionmentioning

confidence: 91%

“…The low response rate and substantial missing data in this study shows the common challenge of recruiting and retaining children in behavioral studies (Schoeppe et al, 2013). More guidance is needed on successful recruitment and retention strategies applied in child populations (Schoeppe et al, 2013).…”

Section: Discussionmentioning

confidence: 91%

Associations between children׳s active travel and levels of physical activity and sedentary behavior

Schöeppe

Duncan

Badland

et al. 2015

Journal of Transport & Health

Self Cite

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“…In the literature, the use of champions is considered a general best practice for enrollment and retention. 30 There are different types of champions, including administrative and community champions. 31 Administrative champions are individuals from within an organization who can advocate for a project, assist with acquiring resources, or foster project development in some way.…”

Section: Engage a MIX Of Study Championsmentioning

confidence: 99%

“…In addition to community champions, other people connected to participants, or even participants themselves, can act as champions-for example, by explaining the project to others or advocating for others' participation. 30 In the AoURP, RMCs most often find that provider champions are effective advocates.…”

Section: Engage a MIX Of Study Championsmentioning

confidence: 99%

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

Khodyakov¹,

Bromley²,

Evans³

et al. 2018

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Limited Print and Electronic Distribution RightsThis document and trademark(s) contained herein are protected by law. This representation of RAND intellectual property is provided for noncommercial use only. Unauthorized posting of this publication online is prohibited. Permission is given to duplicate this document for personal use only, as long as it is unaltered and complete. Permission is required from RAND to reproduce, or reuse in another form, any of its research documents for commercial use. For information on reprint and linking permissions, please visit www.rand.org/pubs/permissions.The RAND Corporation is a research organization that develops solutions to public policy challenges to help make communities throughout the world safer and more secure, healthier and more prosperous. RAND is nonprofit, nonpartisan, and committed to the public interest.RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.Support RAND Make a tax-deductible charitable contribution at www.rand.org/giving/contribute www.rand.org For more information on this publication, visit www.rand.org/t/RR2578Published by the RAND Corporation, Santa Monica, Calif. © Copyright 2018 RAND CorporationR® is a registered trademark.iii PrefaceThe All of Us Research Program (AoURP), a key component of the Precision Medicine Initiative launched by President Barack Obama in January 2015, is an ambitious and innovative research initiative led by the National Institutes of Health (NIH) with a mission to "revolutionize how we improve health and treat disease."1 The AoURP is collecting survey data, electronic health records, physical measurements, and biospecimens to build a large and diverse data set for health research. The program's goal is to engage one million or more individuals living in the United States from diverse social, racial/ethnic, geographic, and economic backgrounds, as well as from all age groups over 18, regardless of health status. The expectation is that participants will remain involved with the AoURP for at least ten years, and perhaps even longer.In response to a request from AoURP leadership, RAND researchers conducted a mixedmethods study of participant and stakeholder engagement in the AoURP to define a set of best practices that all participating regional medical centers (RMCs) involved in engagement activities should consider adapting at their sites before the national AoURP launch in May 2018. Engagement in the AoURP comprises the tasks of making potential participants aware of the AoURP, enrolling them to participate, and retaining them within the program. To develop best practices, we used the Rapid Assessment Procedure, which enabled us to combine information from several data sources, verify emerging findings through triangulation, iterate between data collection and analysis activities, and inform relevant stakeholders of emerging findings in a timely manner.These findings should be of interest not only to RMC engagement leads and staff and AoURP leadership, but also to those ...

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“…13–16 Many of these programs, however, have struggled to engage and retain minority youth, 17–22 which may contribute to disparities in diabetes risk and outcomes. In attempt to more effectively reach high-risk individuals, tailored and adapted approaches have been recommended that modify content, language, mode of delivery, theoretical approach or other intervention components to improve engagement and outcomes.…”

Section: Contextmentioning

confidence: 99%

Prevention of Type 2 Diabetes in U.S. Hispanic Youth: A Systematic Review of Lifestyle Interventions

McCurley

Crawford

Gallo

2017

American Journal of Preventive Medicine

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Context Prevalence of type 2 diabetes mellitus (T2DM) in youth has increased rapidly in recent decades along with rises in childhood obesity. Disparities in risk and prevalence of T2DM are evident in Hispanic youth when compared with non-Hispanic whites. Targeted diabetes prevention programs have been recommended to reduce risk prior to adulthood in this population. This systematic review explores the effectiveness of lifestyle-based diabetes prevention interventions for Hispanic youth. Evidence acquisition PubMed, PsychInfo, Web of Science, and CENTRAL were searched from database inception to March 1, 2017, for studies that evaluated lifestyle-focused prevention trials targeting U.S. Hispanic youth under age 18 years. Fifteen publications met criteria for inclusion. Evidence synthesis Eleven of fifteen studies were RCTs; four were uncontrolled. Interventions were heterogeneous in intensity, content, and setting. Duration of most trials was 12–16 weeks. Mean age of participants ranged from 9.8 to 15.8 years, sample sizes were generally small, and the majority of participants were overweight (BMI ≥85th percentile). Three studies reported statistically significant reductions in mean BMI, four in BMI z-score, and six in fasting glucose/insulin. Study quality was moderate to high. Effect sizes were generally small to medium. Conclusions Evidence for the impact of lifestyle-based diabetes prevention interventions targeting U.S. Hispanic youth remains limited. Few interventions demonstrated success in reducing BMI and glucose regulation and follow-up times were brief. More studies are needed that recruit larger samples sizes, extend follow-up times, explore innovative delivery modalities, and examine effectiveness across sex and age.

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Recruitment and Retention of Children in Behavioral Health Risk Factor Studies: REACH Strategies

Cited by 62 publications

References 49 publications

Associations between children׳s active travel and levels of physical activity and sedentary behavior

Associations between children׳s active travel and levels of physical activity and sedentary behavior

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

Prevention of Type 2 Diabetes in U.S. Hispanic Youth: A Systematic Review of Lifestyle Interventions

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