Recruitment and retention in a longitudinal palliative care study

Sherman, Deborah Witt; McSherry, Christina Beyer; Parkas, Valerie; Ye, Xiang Y.; Calabrese, Miriam; Gatto, Maria Alice Fortes

doi:10.1016/j.apnr.2005.04.003

Cited by 46 publications

(44 citation statements)

References 23 publications

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“…Therefore, our nonsignificant findings must be interpreted with caution. However, several other authors have pointed out the recruitment problems of patients and PCGs in the palliative phase, and therefore low sample size could be expected [21,26,30,31].…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Global quality of life in primary caregivers of patients with cancer in palliative phase staying at home

Grov

Dahl²,

Fosså

et al. 2006

Support Care Cancer

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Section: Strengths and Limitationsmentioning

confidence: 99%

Global quality of life in primary caregivers of patients with cancer in palliative phase staying at home

Grov

Dahl²,

Fosså

et al. 2006

Support Care Cancer

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“…20,21 Participation in research may provide bereaved persons with the opportunity to tell their story to an empathic listener interested in the details of their experience, a situation that may not happen often in every-day life. 6,18,20,22 Emanuel et al 20 reported that 73% of bereaved caregivers found participation in an interview about their loved one's death to cause little to no distress and that 41% found the interview helpful.…”

Section: Minimizing Risksmentioning

confidence: 99%

Ethical and Logistical Considerations of Multicenter Parental Bereavement Research

Meert

Eggly

Dean

et al. 2008

Journal of Palliative Medicine

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Background-Multicenter research has the potential to recruit participants with diverse racial, ethnic, and geographic backgrounds and is essential for understanding heterogeneity in bereavement. The National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network (CPCCRN) is a multicenter network charged with conducting research on the pathophysiology and management of critical illness in childhood. Among its research activities, the CPCCRN has undertaken research in parental bereavement because most childhood deaths in the United States occur in hospitals, primarily in critical care units.

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“…Recognized limitations of the present study include small sample size and recruitment and attrition issues, well-documented and challenging problems in palliative care research (McMillan & Mahon, 1994;Sherman et al, 2005;Sherman et al, 2007). Patient death was by far the most frequent reason for withdrawal from the study prior to one-month data collection, and we suggest more frequent assessment in future research.…”

Section: Discussionmentioning

confidence: 99%