Recreating Life: Toward a Theory of Relationship Development in Acute Home Care

Conger, Cynthia O'Neill; Marshall, Elaine S.

doi:10.1177/104973239800800407

Cited by 6 publications

(11 citation statements)

References 24 publications

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“…To facilitate adoption of caregiver roles, we suggest the development of brief education programs to improve caregiver abilities to assess care recipient needs and access community resources. Conger and Marshall (1998) found that skill acquisition was identified by family caregivers as ''the first step toward gaining confidence in caregiving ability and competence in caregiving'' (p. 537). Competent family caregivers facilitate the well-being of care recipients and may be more likely to enact caregiving roles successfully than caregivers who lack information and skills.…”

Section: Implications For Practitionersmentioning

confidence: 99%

“…They then perform that behavior with the expectation of similar consequences (Bandura, 1977). Although negative consequences of parent caresuch as stress, burden, and depression-are well documented, (Aneshensel, Pearlin, Mullan, Zarit, & Whitlatch, 1995;Schulz, Visintainer, & Williamson, 1990), caregivers have reported positive consequences from their experiences, such as closer relationships with the care recipient (Allen & Walker, 1992;Conger & Marshall, 1998;Horowitz & Shindelman, 1983;Walker, Shin, & Bird, 1990), personal growth (Farran, Keane-Hagerty, Salloway, Kupferer, & Wilken, 1991), and an opportunity to reciprocate care given to them as children (Piercy, 1996). Bandura (1977Bandura ( , 1986 maintained that individuals' thought processes, including attitudes, beliefs, expectations, and instructions, were as important as behavior and environment in determining their actions.…”

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confidence: 99%

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Adopting the Caregiver Role: A Family Legacy^*

Piercy

Chapman

2001

Family Relations

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A qualitative study was done to investigate how adult children become caregivers to older parents with functional impairments and what roles their own children adopt in their family's care arrangements. In-depth interviews with 43 members of 15 families revealed 5 influences on children and grandchildren's adoption of caregiver roles: expectations, family rules, religious training, role modeling and role making. Further analysis of families with grandchild participants showed considerable variation both between and within families in how and what kinds of eldercare roles were adopted. These results can be used by family life educators interested in creating parent-care education programs.

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Section: Implications For Practitionersmentioning

confidence: 99%

mentioning

confidence: 99%

Adopting the Caregiver Role: A Family Legacy^*

Piercy

Chapman

2001

Family Relations

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“…Being part of everyday home life, attached to people to whom one feels close through the ties of kinship in experience of mutual history, where feelings of hope, despair, angst, compassion, joy and sorrow are permitted as a fundamental quality in the family (6, 10). In the mutual relations and in the special atmosphere created, the critically ill and dying person can be supported in the course of the acceleration of the disease, with the wish for a good death being implicit (11, 12).…”

Section: Introductionmentioning

confidence: 99%

“…The choice of staying at home in the palliative phase of life brings multiple complex issues for the primary caregiver who is subject to stress during a longer period than the critically ill person (13–15). Stressors are primarily the mental and physical burden, secondarily the role change within the family, having to assume responsibility for finances and practical tasks (3, 10, 12, 16). For the palliative process in the home and the primary caregiver's stress handling to succeed, decisive factors are the background and resources of the primary caregiver (gender, age, health and flexibility in role change) (4).…”

Section: Introductionmentioning

confidence: 99%

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Experiences of surviving spouse of terminally ill spouse: a phenomenological study of an altruistic perspective

Fisker

Strandmark

2007

Scandinavian Caring Sciences

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The aim of the study was to illuminate the experiences of surviving relatives in connection with their care at home of terminally ill, dying spouses, followed by an outline of the need for palliative assistance by the district nurse. Qualitative interviews with eight surviving relatives have been analysed on the basis of the phenomenological method. The essence of these phenomena was the loving promise to the terminally ill and dying spouse in which the shared grief, structural disintegration and powerlessness, lifelines and supporters and viable grief appeared. This promise consisted of that dying spouse will be able to stay at home during the illness and his or her desire to die at home. It was given during uncomfortable hospitalization and springing from the spouse's desire for autonomy and integrity at the end of his or her life. In keeping the promise, the surviving spouse became altruistic, neglecting his or her own primary needs in the unselfish fulfilment of the needs of the terminally ill spouse. The surviving spouse grieved in lonely isolation characterized by stress and an ethical dilemma in connection with breaching the promise. Light was shed on the professional palliative care with the surviving spouse's lacking verbalization of grief and powerlessness, regardless of whether expert professional palliation or insufficient professional palliation was provided. In that way the findings of the study showed the necessity for professional involvement in the decision concerning palliation at home, including identification of the resources of the primary caregiver.

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