Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control

Aujoulat, Isabelle; Marcolongo, Renzo; Bonadiman, Leopoldo; Deccache, Alain

doi:10.1016/j.socscimed.2007.11.034

Cited by 275 publications

(263 citation statements)

References 37 publications

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“…As designated by Bandura's theory of self-efficacy, perceived self-efficacy is defined as people's beliefs about their capability to influence change in their lives [28]. A high level of perceived self-efficacy has clear benefits in individual confidence, assuring individuals of their capabilities, and enabling them to face difficulties with a sense of personal agency and ability to exercise control.…”

Section: Discussionmentioning

confidence: 99%

Using Cocreation in the Process of Designing a Smartphone App for Adolescents and Young Adults With Cancer: Prototype Development Study (Preprint)

Elsbernd¹,

Hjerming²,

Visler³

et al. 2018

Preprint

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Background: Adolescent and young adult (AYA) oncology and hematology is a developing field of medicine, focusing on a population that faces many challenges throughout medical treatment and beyond. Mobile health (mHealth) interventions provide exciting new opportunities for improvement of health-related quality of life (HRQoL) in AYA cancer patients. Many smartphone applications (apps) are currently available for AYAs with cancer; however, very few apps for AYAs with cancer have been designed with direct input from AYAs themselves or have demonstrated their effectiveness and benefit.

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Section: Discussionmentioning

confidence: 99%

Using Cocreation in the Process of Designing a Smartphone App for Adolescents and Young Adults With Cancer: Prototype Development Study (Preprint)

Elsbernd¹,

Hjerming²,

Visler³

et al. 2018

Preprint

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“…This revealed no objective improvement in memory but improved perceived memory (Rapp et al 2002) and wellbeing, owing to decrease distress around memory (Schmitter-Edgecombe et al 2008). Accepting changes owing to chronic illness is an important part of self-management: ''letting go'' of one's previous identity may promote adjustment (Aujoulat et al 2008).…”

Section: Target 3: Psychological Wellbeingmentioning

confidence: 98%

Conceptualisation of self-management intervention for people with early stage dementia

et al. 2012

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Dementia is a major challenge for health and social care services. People living with dementia in the earlier stages experience a ''care-gap''. Although they may address this gap in care, self-management interventions have not been provided to people with dementia. It is unclear how to conceptualise self-management for this group and few published papers address intervention design. Initial focusing work used a logic mapping approach, interviews with key stakeholders, including people with dementia and their family members. An initial set of self-management targets were identified for potential intervention. Self-management for people living with dementia was conceptualised as covering five targets: (1) relationship with family, (2) maintaining an active lifestyle, (3) psychological wellbeing, (4) techniques to cope with memory changes, and (5) information about dementia. These targets were used to focus literature reviewing to explore an evidence base for the conceptualisation. We discuss the utility of the Corbin and Strauss (Unending work and care: managing chronic illness at home. JosseyBass, Oxford, 1988) model of self-management, specifically that self-management for people living with dementia should be conceptualised as emphasising the importance of ''everyday life work'' (targets 1 and 2) and ''biographical work'' (target 3), with inclusion of but less emphasis on specific ''illness work'' (targets 4, 5). We argue that selfmanagement is possible for people with dementia, with a strengths focus and emphasis on quality of life, which can be achieved despite cognitive impairments. Further development and testing of such interventions is required to provide much needed support for people in early stages of dementia.

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“…An element of this may be encouraging a person to create realistic goals leading to feelings of empowerment, providing a way for open awareness to promote hope rather than reduce it (Clayton et al 2008;Batho 2015). This form of empowerment can be seen as more than 'regaining control' as it is a transformation that reconciles holding on to previous identities, while letting go of previous areas of control (Aujoulat et al 2008).…”

Section: The Use Of the Sage And Thyme Modelmentioning

confidence: 99%

How a Model of Communication Can Assist Nurses to Foster Hope When Communicating with Patients Living with a Terminal Prognosis

Petley

2017

Religions

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Nurses play a central role in joint decision-making and person-centred care, whereby care is focused on the needs of an individual patient. A key part of person-centred care is the way nurses engage with patients because good communication can impact on a person's spiritual wellbeing, particularly in relation to their ability to have hope. The way nurses communicate can be even more pertinent for people living with a terminal prognosis as the issues discussed can in themselves significantly influence a person's spiritual wellbeing. This paper combines contemporary research on how health professionals can foster hope in patients living with a terminal prognosis with The Awareness Context Theory described by Glaser and Strauss in 1965. A model of communication is then used to demonstrate how the research on hope and The Awareness Context Theory can be applied to practice.

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Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control

Cited by 275 publications

References 37 publications

Using Cocreation in the Process of Designing a Smartphone App for Adolescents and Young Adults With Cancer: Prototype Development Study (Preprint)

Using Cocreation in the Process of Designing a Smartphone App for Adolescents and Young Adults With Cancer: Prototype Development Study (Preprint)

Conceptualisation of self-management intervention for people with early stage dementia

How a Model of Communication Can Assist Nurses to Foster Hope When Communicating with Patients Living with a Terminal Prognosis

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