Reconciliation and Indigenous self-determination in health research: A call to action

Roach, Pamela; McMillan, Faye

doi:10.1371/journal.pgph.0000999

Cited by 10 publications

(9 citation statements)

References 7 publications

(7 reference statements)

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“…Kilian et al, 2019;Moore, 2015). • • A lack of understanding about the importance of self-determination and the simultaneous loss of control over research in their own communities that some academic researchers and existing university policies enable (Kilian et al, 2019;Roach and McMillan, 2022). • • Inadequate timeliness and time devoted to engagement with communities, and the building of trustworthy relationships (e.g.…”

Section: Findings From the Literaturementioning

confidence: 99%

“…• • An absence of respectful integration of Indigenous knowledges and worldviews into research practices that accurately represent the diversity within and between Nations, throughout the research process. Not all Nations have the same needs or protocols (Glass and Kaufert, 2007;Roach and McMillan, 2022). • • Inadequate anti-colonial frameworks to guide Indigenous research and relationship building (Brown and Smye, 2002).…”

Section: Findings From the Literaturementioning

confidence: 99%

“…A lack of understanding about the importance of self-determination and the simultaneous loss of control over research in their own communities that some academic researchers and existing university policies enable (Kilian et al, 2019; Roach and McMillan, 2022).…”

Section: Findings From the Literaturementioning

confidence: 99%

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Systemic disruptions: decolonizing indigenous research ethics using indigenous knowledges

et al. 2023

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Research involving and impacting Indigenous Peoples is often of little or no benefit to the communities involved and, in many cases, causes harm. Ensuring that Indigenous research is not only ethical but also of benefit to the communities involved is a long-standing problem that requires fundamental changes in higher education. To address this necessity for change, the authors of this paper, with the help of graduate and Indigenous community research assistants, undertook community consultation across their university to identify the local and national ethical needs of Indigenous researchers, communities, and Elders. This paper provides an overview of the consultation process, the themes that emerged from the consultations, and a model of the Wholistic Indigenous Research Framework that emerged.

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Section: Findings From the Literaturementioning

confidence: 99%

Section: Findings From the Literaturementioning

confidence: 99%

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Systemic disruptions: decolonizing indigenous research ethics using indigenous knowledges

et al. 2023

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“…It is incredibly important within academic and other spaces to explicitly acknowledge positionality to community and place when speaking about Indigenous Peoples and anything that involves them (ie, "nothing about us without us"). [9][10][11] We present ourselves to readers for this purpose as identifying our relations also keeps us accountable within this work. The lead author Quanah Yellow Cloud, is a member of the Oglala Lakota Nation from the Pine Ridge Reservation near the K?e Sapa (Black Hills) and is working and living on the traditional homelands of the Seneca Nation a member of the Haudenosaunee/Six Nations Confederacy.…”

Section: Positionalitymentioning

confidence: 99%

Honoring Indigenous Sacred Places and Spirit in Environmental Health

Cloud

Redvers

2023

Environ�Health�Insights

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Indigenous Peoples and their deep knowledges offer a fundamentally important way of seeing the world and the environment. Through relationships to distinct ancestral homelands, Indigenous Peoples have developed unique ways of surviving, adapting, connecting, and relating to their respective environments. Indigenous Sacred Places themselves are connections to ancestors, to all beings on the planet, and to different planes of existence. Sacred Places serve an important environmental role in many Indigenous Nations around the globe. Yet, Indigenous Sacred Places, and in particular understandings of spirit that connect Sacred Places, have been historically and contemporarily marginalized and excluded from environmental health academic discourse and spaces. This despite concrete calls for the amplification of Indigenous traditional knowledges—that of which does not separate spirit from knowledge, or spirit from action—they are intertwined. With this, we sought to amplify in this Perspective, understandings and connectivity between Sacred Places, spirit, and environmental health through the stories from Indigenous Elders, processes of ceremony, and personal synthesis.

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“…20,24 The right to selfdetermination prioritises Aboriginal and Torres Strait Islander values within Western systems and is needed for equitable healthcare. 23,25 In support of self-determination, the WCFARN service appreciates the therapeutic value in encouraging families to lead their own treatment and healing plans. Critically, families are seen as a protective resource to be directly involved in therapeutic process.…”

Section: Instrument Referencementioning

confidence: 99%

A culturally safe referral service for at-risk mothers and infants in marginalised, Aboriginal, and Culturally and Linguistically Diverse families

Booth

McIntosh

Sri³

et al. 2022

Aust. Health Rev.

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This case study describes the development and implementation of a replicable early assessment and referral service for mothers experiencing minority group disadvantage and family violence in the perinatal period. The service aims to mitigate harms for at-risk mother-infant dyads that can lead to involvement in statutory child protection systems. In doing this, the service follows a culturally safe, restorative practice approach to supporting vulnerable families, which emphasises the relationship between worker and client to create a nurturing environment for change. The service model has been developed and refined since 2018 to now, involving stakeholders from the service team, the not-for-profit community organisation, and a university partner organisation, who provided evidence enrichment and support for clinical skill development. To date: the model has provided practitioners with structured and evidence-based ways of creating shared understandings with clients to prioritise cultural and relational needs; achieved culturally safe ways of engaging with Aboriginal and Torres Strait Islander and Culturally and Linguistically Diverse families; improved practitioners’ confidence in detecting risk in parent-infant relationships; promoted effective communications with external providers; and enhanced therapeutic outcomes for vulnerable families at risk of entry into statutory child protection systems. The model may be suitable for uptake by practitioners and services seeking to improve cultural safety and therapeutic outcomes for diverse and vulnerable families. We share reflections on the scope and function of the model of care with reference to potential for broader application.

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Reconciliation and Indigenous self-determination in health research: A call to action

Cited by 10 publications

References 7 publications

Systemic disruptions: decolonizing indigenous research ethics using indigenous knowledges

Systemic disruptions: decolonizing indigenous research ethics using indigenous knowledges

Honoring Indigenous Sacred Places and Spirit in Environmental Health

A culturally safe referral service for at-risk mothers and infants in marginalised, Aboriginal, and Culturally and Linguistically Diverse families

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